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Small Victories.

Blood Sugars, Dexcom, Diabetes Products, Psychosocial Support, Real Life Diabetes By January 7, 2016 Tags: , , , , , , , 3 Comments

My only resolution for 2016 was to write more. Not necessarily here on my website, but wherever the words seem to come most comfortably. I have a few fiction ideas I’m fleshing out here at home, but blogging has always served as a way to unknot some of the thoughts in my head, mostly centered around my disease. Once my…

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To A Crisp.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By September 1, 2015 Tags: , , , , , , , , 6 Comments

The folks at Diabetes Daily have cobbled together a day to discuss diabetes social media burnout.  (Yes, ironic to dedicate a day of online discussion about diabetes social media burnout …) but the topic is real and something that we have all encountered over the years, so it bears discussion. Only I’m not talking about it today. Why?  Because I…

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What Are You Advocating For?

Diabetes Advocacy, Diabetes Community, Diabetes Online Community By July 7, 2015 Tags: , , , , , , , 1 Comment

A discussion from Masterlab at Friends for Life: Social Media Prompt: What are you advocating for?? #MasterLab — Diabetes Hands Fndn (@diabeteshf) July 7, 2015 Some answers: My spiel: We need to stop blaming. Help everyone get the tools they need to be healthy. Access to tools for all! #diabetes #masterlab — Diabetes Ramblings (@RFamsRamblings) July 7, 2015 Our mission:…

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What Does the DOC Mean to You?

Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes, Uncategorized By October 8, 2014 Tags: , , , , , 1 Comment

Two weeks ago, the #dsma chat was centered on the how and why of people’s participation in the Diabetes Online Community (DOC), and after chat participants shared what brought them to the web for diabetes information, the last question of the night asked them what the DOC means to them. The answers created a quilt of community and comfort that…

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Drafting Off #DSMA: Diabetes Job Description.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By August 28, 2014 Tags: , , , , , , , 1 Comment

I love tuning in to the diabetes discussions on Twitter – they are always insightful and make me see things through a different (insulin-colored?) lens. The final question of last night’s #dsma chat really brought out some interesting responses: Q4 At the time of diagnosis, would it have been helpful to be offered a Position Description for life with diabetes?…

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Advocacy: Do It with Flair.

Diabetes Advocacy, Diabetes Online Community, Real Life Diabetes By August 17, 2014 Tags: , , , 5 Comments

From @sixuntilme, after watching some of DarthSkeptic’s Tweets correcting diabetes misinformation fly by in my feed (thanks to @txtingmypancreas for highlighting):  “Why did you decide to take this wickedly funny high road?” From @darthskeptic:  “It was partially based on frustration and partially based on ‘TheoryFail’ and ‘TakeThatDarwin‘ addressing and mocking people ignorant about basic science.” Whatever the reason, I love…

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Tallygear Giveaway! Exclamation Point!

Diabetes Advocacy, Diabetes and Emotions, Diabetes Products, Real Life Diabetes, Robot Life By July 15, 2014 Tags: , , , , , , , , 61 Comments

Tallygear is awesome, and I’ve been a big fan for many years.  After switching over to the Dexcom G4 continuous glucose monitor, I was so happy to see that Donna at Tallygear had created a case to protect the G4 (and have been using it daily since).  And now she’s up and running with a lot of new cases for…

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We Are Not Waiting: CGM in the Cloud (Part 1).

Diabetes Advocacy, Diabetes and Family, Diabetes Community, Diabetes Online Community, Diabetes Products, Guest Diabetes Blogger, Real Life Diabetes, Robot Life By July 10, 2014 Tags: , , , , , , , , , , , , , , , 31 Comments

Waiting, when it comes to diabetes, frustrates the hell out of me.  According to the “cure in five years!” mantra that rang out constantly when I was diagnosed in 1986, I’ve been waiting for a cure for almost 30 years.  Currently, I wait (impatiently) for the Animas Vibe to become available to US patients.  I wait for the Dexcom Share…

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How Real Do You Want It?

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Complications, Psychosocial Support, Real Life Diabetes By January 23, 2014 Tags: , , , , , , , , , , , , , 17 Comments

Over the last few weeks, I’ve been watching the articles about Lisa Bonchek Adams circle, ranging from the New York Times opinion piece by Bill Keller to the one written by Emma Keller (his wife) for The Guardian (which has been removed from The Guardian site but lives on in the archives), to the response piece written by Brian Loew…

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What is a Diabetes Advocate?

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Real Life Diabetes, Uncategorized By January 16, 2014 Tags: , , , , 6 Comments

Last night’s #dsma chat was a terrific one, focusing on how people in the diabetes community define “advocacy.” I wanted to summarize it here (at least the parts that resonated for me) because it could serve as a catalyst to inspire. [For information on what the #dsma chat is, click here. And to learn more about connecting with people with…

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