In prepping for a chat I helped facilitate for the team at The Patient Revolution, I came across this quote in Victor’s book: These words really build a visual around the effort of diabetes management. There’s a tremendous amount of work that goes on behind-the-scenes of diabetes – so many individual threads and colors on this particular patient loom –…
Accidental blog hiatus. You know what that means … mmm hmmm. Bullet points. Children with Diabetes* Friends for Life conference took place in Orlando last week, concluding on Sunday. It was exactly the diabetes emotional and educational refresher I needed, and I’ll have more in terms of stories to share this week. But for the time being, you can check…
Visualizing Diabetes
Diabetes and Emotions, Diabetes Complications, Healthcare, Mental Health, Psychosocial Support, Real Life DiabetesLast week, I had the pleasure of connecting with Katie McCurdy through my work at The Patient Revolution, and she and I talked about her health visualization tool, Pictal. (That interview can be found on the Patient Revolution blog.) From the article: “Pictal is a set of worksheets that patients can use to create a health history timeline and show…
“You have a nice bedside manner. I don’t feel stupid being honest about the health concerns I have. And I don’t feel like you’re judging me when I tell you my A1C went up; that makes it easier to be honest with you about where I struggle.” “I really appreciate that,” she said. I’m in the process of switching to…
“Do you understand everything we’ve talked about?” Nods. “Do you have any questions?” Shoot. I did, on the ride up here. I had a whole pile of concerns and questions, but they disappeared awkwardly upon sitting in this chair. And sometimes, even when I remember what I wanted to ask, I end up somehow caught up in the flurry of discussing medications,…
I like Dr. Victor Montori. He’s a Mayo Clinic diabetes doctor and researcher who is working for a patient revolution – versus healthcare corruption – and for treatments that fit patients properly. He and I are part of a PCORI team looking at user-centered design and the development of patient decision aids, and I had the chance to meet with…