Browsing Tag

diabetes advocacy

Diabetes Cost of Living

Diabetes Advocacy, Insulin, Real Life Diabetes By November 16, 2018 Tags: , , , , , , 7 Comments

It is humbling to look in the butter compartment of my fridge and see insulin.  It’s necessary.  And I’m grateful. The out of pocket cost is upwards of $380 per bottle without insurance, and making sure our family has insurance coverage is our biggest worry in regular rotation. When job situations look dicey, my first concern is insurance.  When there’s talk of storms…

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Seven Versions of One Low Blood Sugar

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes, Relationships By January 23, 2018 Tags: , , , , , 18 Comments

SCENARIO:  A blood sugar of 53 mg/dL caused me to wake up at 2 am, drink a juice box, and stay awake until 2.30 am waiting for my blood sugar to rise. DESCRIBING TO MY FRIEND:  “Yeah, sometimes diabetes is a thing at night.  I had a low last night that woke me up around 2 am, but that’s why…

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A Response from ADA

Diabetes Advocacy By January 22, 2018 Tags: , , 15 Comments

Last Friday, I received a phone call from Michelle Kirkwood, Senior Director, Strategic Communications and Media Relations at the American Diabetes Association.  We had a candid discussion about the email that was sent out last week from the ADA with the subject line “Cause of death:  Diabetes“.  I shared my concerns with Michelle about the doom and despair approach, and we…

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Diabetes Month: Meter Maid

Diabetes Advocacy By November 1, 2017 Tags: , , 5 Comments

What’s in the baaaaaaag?  C’mon … what’s in the bag? Yep.  This little bag is with me at all times.  All.  Times.  My daughter picked it out years ago and I’ve been dragging it around the world with me since, housing essentials for my diabetes management. Meter, test strips, lancets, lancing device, an insulin pen in case of pump failure,…

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DBlogWeek 2017: The Cost of Chronic Illness.

Uncategorized By May 16, 2017 Tags: , , , , , , , 20 Comments

Diabetes Blog Week prompt for Tuesday:  Insulin and other diabetes medications and supplies can be costly. Here in the US, insurance status and age (as in Medicare eligibility) can impact both the cost and coverage. So today, let’s discuss how cost impacts our diabetes care. Do you have advice to share? For those outside the US, is cost a concern?…

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The Patient Voice 2016: Bridging the Diabetes Gaps

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Complications, Diabetes Online Community, Diabetes Poetry By March 4, 2016 Tags: , , , , , , , 2 Comments

Happy Friday, friends!  Today, Marina Tsaplina is borrowing the blog to help spread the word about an event she is hosting in New York City on March 20th.  It’s the debut event for The Betes organization, and the goal is to give rise to discussions about the emotional influence of chronic illness.  Part of the presentation will be a discussion…

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Friday Six: But Not On Friday.

The Friday Six By July 24, 2014 Tags: , , , , , , , , , , , 5 Comments

SUM stuff from around the Internet: “The latest in this trend is the meme showing a fat little girl titled ‘Lil Diabeetus snacks’ as a take-off to Little Debbie Snacks.  It’s being bandied about on FaceBook as ‘cute’ and ‘funny’; an appropriate name change.  Is it funny?  I don’t think so.”  Kate weighs in on the Facebook meme. Tuesday’s #dblogcheck…

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Miss Idaho: #ShowMeYourPump!

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Pumping Insulin, Real Life Diabetes, Robot Life By July 19, 2014 Tags: , , , , , , , 8 Comments

Have you heard?  Sierra Sandison just earned the crown as Miss Idaho, and she accomplished her goal with an insulin pump clipped to her hip.  Yes, that’s right – another Miss America contender has hit the stage with diabetes front-and-center.  And since winning Miss Idaho barely a week ago, Sierra has already brought type 1 diabetes to the national stage…

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What’s Your Itch?

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support By April 2, 2014 Tags: , , , , , 16 Comments

My “diabetes advocacy itch” has always been emotional health.  I’m not a doctor and I don’t know everything about type 1 diabetes, but I do know that I pay more attention to my diabetes when my head is in a healthy space, and being tuned in to diabetes improves outcomes, for me.  Feeling stressed, overwhelmed, upset … any kind of…

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Spare a Rose.

Diabetes Advocacy, Diabetes Complications, Diabetes Online Community, Real Life Diabetes By January 31, 2014 Tags: , , , , , , 5 Comments

They’re so often a symbol of love and romantic relationships, but lovely as they are, roses wilt within a week or two, and eventually end up discarded. Five dollars per rose, sixty dollars for a dozen. But the cost of those roses can provide life-sustaining insulin for a child with diabetes for an entire year. Through the Spare a Rose,…

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The Friday Six: Eyeballs, You Balls, We All Balls for Eyeballs!

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Diabetes Products, Real Life Diabetes, SUM in Other Places, The Friday Six By January 17, 2014 Tags: , , , , , , 6 Comments

Last night, my computer started to twitch because there were so many people sharing the link about Google developing a contact lens that monitors blood sugar levels through tears. Yep. “We’re now testing a smart contact lens that’s built to measure glucose levels in tears using a tiny wireless chip and miniaturized glucose sensor that are embedded between two layers…

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