Browsing Tag

Clara Barton Camp

Go Bionic: Ed Damiano, Clara Barton Camp, and How the Bionic Pancreas “Really Works.”

Blood Sugars, Dexcom, Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Diabetes Products, Pumping Insulin, Real Life Diabetes, Robot Life By July 30, 2014 Tags: , , , , , , , , , , 38 Comments

During my visit to Clara Barton Camp yesterday, I heard the same sentiment over and over again from the kids wearing the bionic pancreas:  “It works.” “It was weird not to touch the buttons when it beeped,” Addy said, an 11 year old camper at Clara Barton Camp who has been living with type 1 diabetes since she was two. …

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Food Reminders.

Diet and Food, Real Life Diabetes, Uncategorized By January 27, 2014 Tags: , , , , , , , 24 Comments

“Half a cup?  Let me get the measuring cups,” my mom would say, foraging around in her purse for the ubiquitous set of measuring cups she toted around. She always knew what  “half a cup” looked like because she didn’t guess.  Her management of my diabetes was precise when she was in charge, back in the day. I am admittedly…

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How Real Do You Want It?

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Complications, Psychosocial Support, Real Life Diabetes By January 23, 2014 Tags: , , , , , , , , , , , , , 17 Comments

Over the last few weeks, I’ve been watching the articles about Lisa Bonchek Adams circle, ranging from the New York Times opinion piece by Bill Keller to the one written by Emma Keller (his wife) for The Guardian (which has been removed from The Guardian site but lives on in the archives), to the response piece written by Brian Loew…

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Diaries of a Diabetic Girl.

Diabetes and Emotions, Diabetes and Family, Diabetes Complications, Diabetes Memories, Diabetic Mommy, Real Life Diabetes By July 3, 2013 Tags: , , , , , , , 16 Comments

The last time I cracked the binding on these journals was back in 2009, when I was cleaning out the apartment I was living in at the time.  I happened upon them again last night, while searching for something in the attic.  (I never found what I was looking for up there, but I did come down with a bunch…

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From Abby: Dexy Pictures

Uncategorized By August 24, 2011 Tags: , , , , No Comments

Abby‘s been rocking the Dexcom for the last three months, and she’s fully immersed in both the data mining and the photographing of said data mining.  Here’s her “PWD photojournalist” take on Dexcom’ing and documenting.(Also, welcome back, Abby!  We missed you while you were at camp!) *   *   * I’ve had my Dexcom for almost three months now. While most of the…

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The Revolution Will Be Blogged

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By August 17, 2011 Tags: , , , No Comments

Yesterday afternoon I was lucky enough to be back at Clara Barton Camp for Family Camp, speaking with some of the parents (and a good number of the kids) about using the Internet for diabetes information.  I’ve had similar discussions with other groups, but each time there’s something new to learn, and something cool to share. Oh wait.  But I’ve never done this…

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Different People With a Common Pain

Diabetes and Emotions, Diabetes Community, Diabetes Online Community By August 8, 2011 Tags: , , No Comments

Over the weekend, in the ridiculous downpour, I headed up to Clara Barton Camp to hear Dar Williams sing.  Dar is on a summer camp tour, and she ended her stint by singing to a group of girls whose pancreases (pancrei) have gone on hiatus. Dar doesn’t have diabetes.  And when I spoke with her after she performed, she told me that she was moved…

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