Browsing Tag

advocacy

Advocacy: Do It with Flair.

Diabetes Advocacy, Diabetes Online Community, Real Life Diabetes By August 17, 2014 Tags: , , , 5 Comments

From @sixuntilme, after watching some of DarthSkeptic’s Tweets correcting diabetes misinformation fly by in my feed (thanks to @txtingmypancreas for highlighting):  “Why did you decide to take this wickedly funny high road?” From @darthskeptic:  “It was partially based on frustration and partially based on ‘TheoryFail’ and ‘TakeThatDarwin‘ addressing and mocking people ignorant about basic science.” Whatever the reason, I love…

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Unexpected Advocacy.

Dexcom, Diabetes Advocacy, Diabetic Mommy, Psychosocial Support, Pumping Insulin, Robot Life, Traveling By July 22, 2014 Tags: , , , , , , , , , , 126 Comments

The last thing I wanted to do was take my cover-up off. Chris and Birdy (and our friends and their daughter) were at a water park in New Hampshire where kids can run and play in safe-for-littles sprinklers, pools, and water slides, and as the adults, we were tasked with guarding the perimeter.  Pacing back and forth, the four of…

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What Do You Want to Talk About?

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By July 17, 2014 Tags: , , , , , 3 Comments

Last night’s #dsma chat was a particularly good one, because its intention was to generate discussion and feedback about what people in the diabetes online community (DOC) want to talk about. These questions will be about DSMA and how we can improve your experience and to discuss topics that are near and dear to you. #dsma — DiabetesSocMedAdvoca (@DiabetesSocMed) July…

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Masterlab: Tides are Rising.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community By June 20, 2014 Tags: , , , , , , , , , , , 3 Comments

In the last ten years, the DOC has evolved from a small pocket of voices to an entire choir that can’t be housed in one town, or state, or even country.  I love seeing more hands raised and more people saying, “Me, too!” and providing support and understanding for one another.  Patient stories matter.  Our stories matter. The DOC is…

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Friday Six: Masterlab, TypeOneNation, and Jim Turner!

Diabetes Advocacy, Diabetes Online Community, Psychosocial Support, Real Life Diabetes, SUM in Other Places, The Friday Six By May 23, 2014 Tags: , , , , , , , , , , No Comments

There used to be only six links, but I’ve made a mockery of that and now it’s a pig-pile of resources.  All clickable and informative, though, so dive right in!  –> Jim Turner has always been on my list of “awwww, isn’t he charming?” and the fact that he has type 1 diabetes didn’t hurt that sentiment.  This week, Christopher…

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D-Blog Week: Change One Life, Change the World.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By May 12, 2014 Tags: , , , , , , 15 Comments

My reasons for sharing my story of a life with type 1 diabetes were few, but definitive:  I felt alone.  I wanted to feel less alone, because the whole “feeling alone” thing was wrecking some havoc on my emotional health.  I didn’t have many peers, in my life, who were living with diabetes, and the Internet offered very little in…

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What is a Diabetes Advocate?

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Real Life Diabetes, Uncategorized By January 16, 2014 Tags: , , , , 6 Comments

Last night’s #dsma chat was a terrific one, focusing on how people in the diabetes community define “advocacy.” I wanted to summarize it here (at least the parts that resonated for me) because it could serve as a catalyst to inspire. [For information on what the #dsma chat is, click here. And to learn more about connecting with people with…

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Medtronic Diabetes Advocate Forum: Meaning Trumped Marketing.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support By January 14, 2014 Tags: , , , , , , , 6 Comments

A few weeks ago, I was invited to join some of my advocacy colleagues for a meeting in Los Angeles, CA at the Medtronic Diabetes headquarters.  This event was put on by the teams at Medtronic and Bayer, and they covered travel, lodging, and expenses for attendees.  (Disclosure out of the way.)  The agenda included “interactive sessions on the latest…

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So Much of the Thanks.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community By November 27, 2013 Tags: , , , , , , , , , , 7 Comments

On the eve of Thanksgiving, I’m thankful. Thankful for two, daft gray cats who rotate around this house instigating trouble, but who happily curl up on the couch with us at night.   For job opportunities that fill my life with meaning.  For family and family.  For the husband who tolerates, with amazing patience, all of me.  For the all-in hugs…

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Strip Safely: Taking to Twitter.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community By August 21, 2013 Tags: , , , , , , , , 4 Comments

(Note that the banner looks like a test strip.  Clever, eh?) Wednesdays are usually a diabetes-heavy night on Twitter, since it’s the night that the #DSMA conversation takes place (at 9 pm EST – check out the #DSMA webpage for info, and for tips on joining the conversation, click through to this post on Diabetes and Twitter).  Lots of #diabetes…

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