Psychosocial Support

Guest Post: Until Next Time, FFL.

Diabetes Advocacy, Diabetes and Family, Diabetes Community, Diabetes Online Community, Guest Diabetes Blogger, Psychosocial Support By October 9, 2017 Tags: , , 1 Comment

Leigh Fickling was at the Friends for Life event this past weekend in Falls Church, VA and this morning, she posted about the power of FFL and of the green or orange bracelets given out to attendees on her Facebook page.  I asked if I could share her post on SUM, and she was kind enough to say yes. Take…

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Guest Post: Mindy Bartleson on Chronic Illness, Mental Heath, and Removing the Rose Colored Glasses

Diabetes Advocacy, Diabetes and Emotions, Mental Health, Psychosocial Support, Real Life Diabetes By September 18, 2017 Tags: , , , No Comments

Mindy is self-publishing an honest book about growing up with chronic illness and mental health. She wrote the content before rose colored glasses impacted her experiences too much.  Today, she’s sharing the why behind her efforts on SixUntilMe. And if you’d like to help this book get published, you can visit the crowdfunding page to learn more, back her project,…

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Thirty One Years with Diabetes.

Diabetes and Emotions, Diabetes and Family, Diabetes Community, Diabetes Complications, Diabetes Memories, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By September 11, 2017 Tags: , , , 8 Comments

When my diabetes marked it’s 25th birthday, I wrote a bulleted of stuff I’ve learned since diagnosis.  Another handful of years later, most of that list still holds up, with a few tweaks: Sometimes I can’t believe this is still A Thing.  That diabetes is still a thing that requires attention, work, and patience.  I used to believe in the…

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In Sickness and in Health: My Partner Has Diabetes.

Diabetes and Emotions, Diabetes and Family, Diabetes Online Community, Psychosocial Support, Real Life Diabetes, Relationships By August 9, 2017 Tags: , , , 2 Comments

A week or two ago, I received a message from a reader asking about the influence diabetes has on my marriage.  I took to Facebook to get some broader feedback, but the question forced me to drop into the weeds to see how my diabetes touches my marriage.  This will be part one of a two part post, with today’s…

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In Sickness and in Health: I Have Diabetes.

Diabetes and Emotions, Diabetes and Family, Psychosocial Support, Real Life Diabetes, Relationships By August 8, 2017 Tags: , , , , , 6 Comments

A week or two ago, I received a message from a reader asking about the influence diabetes has on my marriage.  I took to Facebook to get some broader feedback, but the question forced me to drop into the weeds to see how my diabetes touches my marriage.  This will be part one of a two part post, with today’s…

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Voices Carry.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By July 25, 2017 Tags: , , , , , 13 Comments

There’s no generation assigned glibly to me – not a millenial, not a Gen X’er, but I seem to be an “xenial,” according to this new write-up.  I identify completely with “experienced an analogue childhood and a digital adulthood.” My journaling has gone from paper journals to blog posts, too.  I used to keep volumes of chaotic ramblings as a…

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Recipe for FFL.

Diabetes Advocacy, Diabetes Community, Psychosocial Support, Real Life Diabetes By July 12, 2017 Tags: , , , , , , , , 9 Comments

Want to make Friends for Life?  Here’s how: Ingredients: 1 large Coronado Spring Millions of humidity molecules 3,000 family members who live with diabetes 1,000 (estimated) Mickey Mouse waffles 22 bowls of glucose tabs Dozens of supportive siblings Hundreds of orange bracelets Hundreds of green bracelets Several buffet tables of carb-counted food Add sports central, support sessions, and learning workshops to…

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ONE Great Weekend.

Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By June 29, 2017 Tags: , , , , , 4 Comments

“So what made you want to do the TCOYD ONE conference?” I asked the TCOYD team. “We were sitting around one day having drinks and just said there is so much stuff coming out in the field of type 1 diabetes that we NEED to put on an event with the absolute best of the best speakers and invite every…

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Guest Post: What FFL Was Like as a First Timer.

Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes, Relationships By May 26, 2017 Tags: , , , , , 2 Comments

Wondering what it’s like to be surrounded by thousands of people affected by diabetes?  Today, my fellow Friends for Life faculty member and longtime family friend, Scott Johnson, takes over SUM to share his experience as a first-timer at FFL back in 2010.   Scott was diagnosed with type 1 diabetes back in 1980 and has been blogging about his…

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Bright Spots & Landmines: An Interview with Adam Brown

Diabetes Advocacy, Diabetes Community, Psychosocial Support, Real Life Diabetes By May 23, 2017 Tags: , , , , , , , , 1 Comment

Adam Brown has written a new – TERRIFIC – book for the diabetes community, full of the same brilliant, actionable advice that we’ve come to happily expect from his diaTribe columns.  His book, Bright Spots & Landmines, is billed as “the diabetes guide I wish someone had handed me,” and that sentiment is absolutely correct.  This book is a powerful tool that people living…

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What to Work On.

Blood Sugars, Dexcom, Diabetes and Emotions, Exercise & Fitness, Psychosocial Support, Real Life Diabetes By May 9, 2017 Tags: , , , , 6 Comments

I’ve gotten lazy in my diabetes management.  And I’m not proud of it.  My recent A1C result was still in my goal range but not where it was a few months ago, and I’d love to return to that level of control.  Thing is, I’ve gone soft when it comes to following through on my daily diabetes duties. Yeah.  I’m…

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Guest Post: My Magical Disney Moment.

Diabetes and Emotions, Diabetes Community, Diabetes Online Community, Psychosocial Support By March 31, 2017 Tags: , , , , , , , , , 4 Comments

The power of peer-to-peer connections is not lost on the diabetes community.  While insulin remains our strongest medication tool, our mental and emotional health is nourished by connecting with like-pancreased people, making any diabetes burden that much lighter. One of the most amazing peer support cultures in the diabetes community is found at Children with Diabetes’ Friends for Life conference….

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The NEW Jerry the Bear.

Diabetes Advocacy, Diabetes and Family, Diabetes Tech, Psychosocial Support By March 16, 2017 Tags: , , , , , 40 Comments

Since they’re local to me here in Rhode Island, I drove up to the Jerry the Bear office to meet with my friends Aaron Horowitz and Hannah Chung, creators of Jerry the Bear. “It’s awesome to see you guys! Where have you been the last few years?” After hugs and hellos, I realized my question was unfair. Because they haven’t…

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ConnecT1D Retreat: Sign Up NOW!

Psychosocial Support, Real Life Diabetes By March 7, 2017 Tags: , , , , , No Comments

Last summer, when I was 17 1/3 months pregnant, I traveled to Seattle to take part in the ConnecT1D Retreat.  Despite being a round mound of hormones, I had an awesome time connecting with other PWD adults and sharing experiences.  It was put together by an amazing team of PWD leaders, and today, the Board President of ConnecT1D is sharing details…

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#amadiabetes: Preparing for College.

Diabetes Online Community, Psychosocial Support, Real Life Diabetes By November 3, 2016 Tags: , , 5 Comments

“In your senior year [of high school], what did you do to prepare for being away from caregivers?” This question came in from someone through the #amadiabetes form, and I have some ideas.  Thing is, I only have one version of the answer, so I’m hoping others from the community can chime in either here in the comments section or…

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Mystery Date.

Healthcare, Psychosocial Support, Real Life Diabetes By September 20, 2016 Tags: , , , 4 Comments

There was a board game marketed to girls back in the 60’s that resurfaced again in the 90’s, and that’s when I met Mystery Date.  It was a silly game where you tried to assemble an outfit for a date and then you opened the little plastic door to see if your outfit matched that of the Mystery Date guy.  (For example:…

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