Psychosocial Support

Medtronic Diabetes Advocate Forum: Meaning Trumped Marketing.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support By January 14, 2014 Tags: , , , , , , , 6 Comments

A few weeks ago, I was invited to join some of my advocacy colleagues for a meeting in Los Angeles, CA at the Medtronic Diabetes headquarters.  This event was put on by the teams at Medtronic and Bayer, and they covered travel, lodging, and expenses for attendees.  (Disclosure out of the way.)  The agenda included “interactive sessions on the latest…

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Looking Back: Santabetes.

Diabetes and Emotions, Psychosocial Support, Real Life Diabetes By December 18, 2013 Tags: , , , , , , , , 2 Comments

‘Tis the season for giving Santa too much of the credit.  This morning, I’m looking back at a post from 2010 about my mental Santabetes. *   *   * [Note:  This post contains spoilers.  If  you believe happily in the story of Santa, skip down to where it says “Diabetes is like Santa Claus.”] My husband and I share a philosophy…

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Guest Post: Someone Who Understands.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes, Relationships By December 17, 2013 Tags: , , , , , , , , , 21 Comments

Part of what drew me to the idea of creating a diabetes blog was the search for, and the hope of finding, people who understood.  Google was a dark abyss of bad news and depressing statistics; what I needed was to connect with others who were living life, with diabetes along for the ride.  That same connection still feels necessary,…

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Power of Patient Communities.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Online Community, Healthcare, Psychosocial Support, Real Life Diabetes By December 16, 2013 Tags: , , , , , 1 Comment

At the end of November, I had the opportunity to contribute an article to Pharmaphorum, which is a UK-based publication with the mission to “connect healthcare thought leaders to support the pharma industry in delivering innovation.”  Thanks to the thoughtful responses from Bob Pederson, Shannon Marengo, Laura Gibson, and Melanie Bunda, I was able to highlight some of the benefits…

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Slackertown Jones.

Diabetes and Emotions, Exercise & Fitness, Psychosocial Support, Real Life Diabetes By December 12, 2013 Tags: , , , , , , , 6 Comments

In just over a week’s time, I let everything go to shit. Meter average is up 40 points.  (Note:  Do you call the mg/dL units “points,” too?)  I haven’t exercised since before the IDF Congress.  For much of the last two weeks, I’ve spent way too much time in the car, on a plane, on a train, or sitting in…

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Organized Diabetes, Now With More Tips!

Diabetes Advocacy, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By December 11, 2013 Tags: , , , , 1 Comment

Just before the close of November, Susan Weiner was kind enough to guest post about tips and tricks on getting diabetes organized – and keeping it that way – throughout the hectic holiday season.*  In the comments section of that post, there were some awesome tricks, tips, and suggestions on keeping diabetes from tipping over your Christmas tree, spilling eggnog…

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Hacking Diabetes.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support, Pumping Insulin, Real Life Diabetes, Robot Life By December 10, 2013 Tags: , , , , , , , 5 Comments

(Seems like that post title should end with “to bits!!” including a defiant shout and then the popping open of a can of Diet Pepsi.  Or something less specific.) Last week I traveled to Melbourne, Victoria to present at the International Diabetes Federation World Congress.  Long, Inception-esque flight.  Excellent flight attendant.* My presentation was anchored in the “Living Well With…

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Talking About Diabetes Burnout.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Complications, Diabetes Online Community, Diabetes Videos, Psychosocial Support, Real Life Diabetes By November 26, 2013 Tags: , , , , , , , 11 Comments

Diabetes is every day, but burnout doesn’t have to be.   You might also like: Diabetes Blog Week: Message Monday. Rewind: These Boots Were Made for Talking Type 1 Origins: Talking Comic Books with Partha Kar. Perspectives on Diabetes: Why Children with Diabetes Matters.

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Stigmatized Secrets.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Complications, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By November 19, 2013 Tags: , , , , , , , 34 Comments

I’ve spent the last few weeks keeping watch on the My Diabetes Secrets Tumblr account (a version of Diabetes PostSecret – more here) and these two submissions keep leaping out at me: The submissions as stand-alone pieces make me feel like I’m trying to shove limitless emotions into a Ziploc bag, but what kills me is that these were submitted…

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On Paper.

Diabetes Advocacy, Diabetes and Family, Psychosocial Support, Real Life Diabetes By November 18, 2013 Tags: , , , , , , 10 Comments

“So you write a blog about diabetes?  Don’t you run out of things to write about?” A really nice lady at the JDRF event past weekend posed this question to me. There’s always something, some bit of minutiae to choose to chronicle.  Maybe the blood sugar of 70 mg/dL coupled with a southeasterly Dexcom arrow that woke me up at…

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Another #DayOfDiabetes, Twitter-Style.

Diabetes Advocacy, Diabetes Online Community, Psychosocial Support, Real Life Diabetes, Robot Life By November 15, 2013 Tags: , , , , , , , , 4 Comments

For World Diabetes Day yesterday, I attempted to participate in another round of #dayofdiabetes, using Twitter to log the different nuances of a day with type 1 diabetes.  It was a tougher day than normal, Internet-wise, because I spent the morning in the plane and the rest of the afternoon with very limited access to Wifi, but it was World…

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World Diabetes Day 2013.

Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By November 14, 2013 Tags: , , , , , , , , , 21 Comments

“You have diabetes  You seem fine.” “I am fine.” Diabetes makes me walk the precarious fine line Between “I’m sick” and “I’m not” and the whole in-between That makes diabetes invisible, and yet so seen. “Needles?  Every day?  I could never,” You could.  And you would, and you’d do it forever If that’s what kept you from good life or…

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