Psychosocial Support

Lies.

Diabetes and Emotions, Diabetes Memories, Healthcare, Psychosocial Support, Real Life Diabetes By May 8, 2014 Tags: , , , , , 15 Comments

I used to lie to my pediatric endocrinologist.  (Not proud of this.) She’d sit at her desk and look through the logbook with all my blood sugars mapped out (this was back in the day when my mom and I collaborated on logging my blood sugars, which meant that they were often accounted for), sometimes with a furrowed brow. “So…

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Learning from my Peers.

Diabetes Advocacy, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By April 30, 2014 Tags: , , , , , 8 Comments

“All those stereotypes about type 2 diabetes?  I used to believe them, and I worked to distance myself from them,” I said. Cue my blush of shame and embarrassment. “I’m sorry I thought those things.  And the main reason I don’t feel that way anymore is thanks to the advocacy work of my peers with type 2 diabetes.  People who…

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Looking Back: Kitty.

Diabetes and Emotions, Diabetes Community, Diabetes Memories, Psychosocial Support, Real Life Diabetes By April 25, 2014 Tags: , , , 6 Comments

I don’t know if I have a spirit animal, but my diabetes does, and it’s Kitty.  Kitty is a ragged and rumpled stuffed animal who kept me company as I navigated my first few weeks of life with type 1 diabetes … and he still lives in the laundry room of my house now (safe, warm, and occasionally snuggled).  He’s…

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If I Knew Then: Diabetes Blogging.

Diabetes Advocacy, Diabetes and Emotions, Diabetes and Family, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By April 9, 2014 Tags: , , , , , 11 Comments

I wish I had known, at the outset, what a “blog” was.  When Chris suggested I start one back in 2005, the face I made was as though he had shoved a lemon into my mouth.  “A blaaaaahgg?” I wish I had known that things like SEO would matter – not on the “I need more page views” sort of…

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Even Small Medical Advances Can Mean Big Jumps in Quality of Life.

Diabetes Advocacy, Diabetes Online Community, Diabetes Products, Psychosocial Support By April 7, 2014 18 Comments

I came home after two days away to a flurry of discussion about Sunday’s New York Times article, “Even Small Medical Advances Can Mean Big Jumps in Bills.” My knee-jerk response was to be thrilled that type 1 diabetes received above-the-fold coverage in the New York Times.  Reading the profile of and quotes from Catherine Hayley felt like a fair…

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The Art of Compliance.

Diabetes Online Community, Psychosocial Support, SUM in Other Places By April 3, 2014 Tags: , , , , , 14 Comments

Is the word “compliance” frightfully out-dated? Or misunderstood? This month, “compliance” is the word under investigation over at diaTribe, with some crowd-sourced input from fellow people with diabetes, stemming from the Facebook question, “As people with diabetes, how does the word ‘compliance’ strike you? (Positively? Negatively? Apathetically?)” “As with everything related to diabetes, your mileage may vary, and the concept…

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What’s Your Itch?

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support By April 2, 2014 Tags: , , , , , 16 Comments

My “diabetes advocacy itch” has always been emotional health.  I’m not a doctor and I don’t know everything about type 1 diabetes, but I do know that I pay more attention to my diabetes when my head is in a healthy space, and being tuned in to diabetes improves outcomes, for me.  Feeling stressed, overwhelmed, upset … any kind of…

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YCDT: Encouraging Independence.

Diabetes Online Community, Diabetes Videos, Psychosocial Support By April 1, 2014 Tags: , , , No Comments

There’s an excellent, and inspiring, new You Can Do This video centered on parents helping their children with diabetes gain independence. From the YCDT site:  “Independence in any aspect of a teen’s life can be a double-edged sword for parents – while parents want their children to be capable, that same capability is the gateway to their separation and evolution…

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All the Pieces.

Diabetes Advocacy, Diabetes and Emotions, Psychosocial Support By March 31, 2014 Tags: , , , 5 Comments

We took a brief break at the Boston Museum of Science to marvel at the “Archimedean Excogitation,’’ an audiokinetic sculpture by George Rhoads. Birdy stood and stared at it for ages, and I found myself doing the same. The sculpture is 27 feet tall, made up of a xylophone, wind chimes, and so many chutes and pulleys and moving parts…

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Plastic Apples and Measuring Cups.

Diabetes and Emotions, Diabetes and Family, Diabetes Memories, Diabetic Mommy, Diet and Food, Psychosocial Support, Real Life Diabetes By March 18, 2014 Tags: , , , , , , 6 Comments

Her desk was anchored on either side by tall bookshelves crammed with pretend food.  Plastic fruit – apples, bananas, oranges, kiwis that looked like fuzzy dumplings – and the cardboard shell of cereal boxes.  Plastic slabs of steak with edging to make it look like it had a pat of butter melting on top, and the entire plastic carcass of…

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