Psychosocial Support

A Plethora of Pancreases.

Diabetes Products, Psychosocial Support By September 16, 2013 Tags: , , , , , , , 8 Comments

Etsy is great for finding pretty jewelry.  Or beautiful gifts for a baby.  But then you can find yourself deep down the rabbit hole of purchasable pancreases, and that’s where shit gets weird. Here are some of the search-return endocrine gems that popped up: Crochet Plush Pancreas from An Optimistic Cynic Anatomical Pancreas Cufflinks from Anatomy Art Gall Bladder, Spleen,…

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Filling Back Up.

Diabetes Advocacy, Diabetes and Emotions, Diabetes and Family, Diabetes Complications, Psychosocial Support, Real Life Diabetes By September 12, 2013 Tags: , , , , , , , 65 Comments

It whispered in my ear two January’s ago, when a low blood sugar came too close to becoming terrifying as I felt the whoosh of that bullet go by. I’d never felt anything like that before, that aftermath of fear and numbness.  Then I marked twenty six years with type 1 diabetes, and I just wanted to outrun this disease,…

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FFL: Social Media as Part of the Prescription.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By August 13, 2013 Tags: , , , , , , , 3 Comments

At Friends for Life this  year, there was a special panel discussing “Social Media & The Monster Under the Bed: The Latest Thinking on Fearing vs. Embracing Social Media,” focusing on efforts to validate the role of peer-to-peer support in diabetes management.  Moderated by members of the diabetes online community, the panelists included: Korey Hood, PhD – Associate Clinical Professor…

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The Revolution Will Be Blogged

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By August 17, 2011 Tags: , , , No Comments

Yesterday afternoon I was lucky enough to be back at Clara Barton Camp for Family Camp, speaking with some of the parents (and a good number of the kids) about using the Internet for diabetes information.  I’ve had similar discussions with other groups, but each time there’s something new to learn, and something cool to share. Oh wait.  But I’ve never done this…

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Being an Adult at Children With Diabetes

Diabetes Community, Diabetes Online Community, Psychosocial Support By August 3, 2011 Tags: , , , No Comments

In the years I’ve attended CWD’s Friends for Life conference, I always came away with this appreciation for what the conference provides for kids with diabetes, and their parents.  Kids – a whole bunch of them – running amuck and clad in green bracelets with pump tubing flapping from underneath their t-shirts … it’s a place where these families hopefully feel…

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CWD: Pregnancy and Diabetes

Diabetes Advocacy, Diabetes and Family, Diabetes Community, Diabetes Online Community, Diabetic Mommy, Infertility and Pregnancy, Psychosocial Support, Real Life Diabetes By July 26, 2011 Tags: , , No Comments

When Jeff Hitchcock approached me last year and asked if I would feel comfortable leading the Pregnancy and Diabetes session at Friends for Life, I was honored.  But also a little confused.  What on earth was I going to tell the session attendees?  I couldn’t spout off medical information.  I am not a licensed medical professional. “I’m just a person with diabetes who…

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CWD: Parenting With Type 1 Diabetes

Diabetes Advocacy, Diabetes and Emotions, Diabetes and Family, Diabetes Community, Diabetes Online Community, Diabetic Mommy, Infertility and Pregnancy, Psychosocial Support, Real Life Diabetes By July 19, 2011 Tags: , , No Comments

Lead by Korey Hood and Stefan Rubin, the Parenting with Type 1 Diabetes session at Friends for Life was aiming to touch upon the different challenges of being a parent with type 1 diabetes, instead of the concentration on parenting a child with type 1 diabetes that Children With Diabetes was once known for.  This was my first year attending this…

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Coco, Disney, Lilly, and Nick Jonas’s … Mom

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Diabetes Products, Psychosocial Support By July 14, 2011 Tags: , , No Comments

At Friends for Life, several members of the DOC had a chance to meet up with representatives from Lilly (one being the same guy who rode over on the Magical Disney Bus with me from the airport, and he had the most impossibly teeny carry-on bag.  Only a guy could pack business clothes for a week into one, single carry-on. …

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Denise Jonas Talks About Diabetes Support

Diabetes Advocacy, Diabetes and Family, Psychosocial Support, Real Life Diabetes By July 14, 2011 Tags: , , , No Comments

Denise Jonas is the mother of a kid with diabetes, only her kid with diabetes happens to be Nick Jonas (known in the teen circles as “OMG Nick Jonas,” first name “OMG”).  Denise recently stepped in as celebrity spokesmom for the Disney Online and Lilly Diabetes collaboration I (and lots of others) blogged about this morning, and she was able to take…

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CWD: Catching Up

Diabetes Advocacy, Diabetes and Emotions, Diabetes and Family, Diabetes Community, Diabetes Online Community, Psychosocial Support By July 11, 2011 Tags: , , No Comments

With early morning “fun runs” (note: fun never equals run, as far as I’m concerned), non-stop Friends for Life sessions, business meetings, excessive drinking of both the Diet Coke and perhaps a shot of Patron or two (don’t judge – humans attend Friends for Life, too, you know), and a severe lack of WiFi in the Coronado Springs Resort down…

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Roche Summit 2011: SUM Thoughts

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes, Relationships By June 27, 2011 Tags: , , No Comments

What should have been a fun business trip ended up being a big ol’ mess.  Here’s my attempted recap: On Wednesday, I flew out to San Diego for the Roche Social Media Summit and then the ADA Scientific Sessions Conference.  On Thursday, I attended the first day of the Roche Summit.  On Friday, my cornea tore again (almost as fiercely…

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You Can Do THIS: My Video

Diabetes Advocacy, Diabetes Online Community, Diabetes Poetry, Psychosocial Support By June 15, 2011 Tags: , , No Comments

When you’re dealing with something relentless each day,It can feel like frustrations are seconds away.There’s the burnout, depression of chronic diseaseThe chaos that comes with attempts to appease. We do blood sugar testing, precision carb counting,We’re wearing devices to aid in surmountingThe pressure of acting as panceri stand-ins.This whole diabetes can sure be demanding! We lean on our doctors, we…

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Diabetes Goal Bingo

Diabetes and Emotions, Diabetes Community, Diabetes Online Community, Mental Health, Psychosocial Support, Pumping Insulin, Real Life Diabetes, Robot Life By January 28, 2011 Tags: , No Comments

Recently, I reconnected with a long-lost local PWD named Ryan.  Last time Ryan and I saw one another, we were talking about diabetes goal-setting and dealing with wicked bouts of burnout.  And this week I received an email from him with a freaking brilliant idea about how to stay motivated towards setting – and reaching –  diabetes-related goals. “I’ve had this…

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Hawkey Playah

Blood Sugars, Dexcom, Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support, Pumping Insulin, Real Life Diabetes By January 24, 2011 Tags: , No Comments

I clicked the button on my Dexcom receiver and saw a “212 mg/dl” with two arrows pointed straight on up.  This was the third effortless high in as many hours, and I was convinced my pump site had crapped out. “I am going to run to the bathroom.  I need to switch out my site,” I said to Chris, moving…

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From Abby: Forgetting

Diabetes Advocacy, Guest Diabetes Blogger, Psychosocial Support, Real Life Diabetes By January 21, 2011 Tags: , , No Comments

While the snow piles up outside, I’m busy aiming to hit a writing deadline this morning.  So I talked with Abby the other day and it seems like she’s hit a patch of burnout, much like the one I’m going through.  She’s offered to post today about “forgetting,” and how, even though it seems impossible, it’s sometimes too easy to forget about…

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Disco Boobs

Diabetes Products, Diabetes Tech, Psychosocial Support, Pumping Insulin, Real Life Diabetes, Robot Life By January 6, 2011 Tags: , , No Comments

Over the holidays, my husband and I had the opportunity to join his agent (who happened to be in town) for dinner.  Grown-up time, sans BSparl.  (I wore tights.  It was a fancier than our average Tuesday night.) So we all sat down to dinner and while everyone was talking, I reached into my purse to do a quick blood…

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