Psychosocial Support

Not A Single Decent Number.

Blood Sugars, Dexcom, Psychosocial Support, Real Life Diabetes, Robot Life, Traveling By September 2, 2014 Tags: , , , , , 14 Comments

“Huh.  223 mg/dL.  Still.” This was the mumbled mantra of our vacation to Maine. Aside from the long drive to Bar Harbor (six hours, plus coffee stops and bathroom stops and “Hey, look at that lobster!” stops), the time we spend in Maine is usually very active.  As a family, we did the hike around Jordan Pond (about 3.5 miles),…

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Drafting Off #DSMA: Diabetes Job Description.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By August 28, 2014 Tags: , , , , , , , 1 Comment

I love tuning in to the diabetes discussions on Twitter – they are always insightful and make me see things through a different (insulin-colored?) lens. The final question of last night’s #dsma chat really brought out some interesting responses: Q4 At the time of diagnosis, would it have been helpful to be offered a Position Description for life with diabetes?…

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A Human’s Resilient, One Hundred Percent!

Diabetes and Emotions, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By August 25, 2014 Tags: , 18 Comments

Sighed Panky, a lazy panc deep in the gut “I’m tired and I’m bored And I’m stuck in a rut From making, just making insulin every day. It’s work! How I hate it! I’d much rather play! I’d take a vacation, or a long nap If I could find someone to do all this crap! If I could find someone,…

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Clouding on the Road.

Blood Sugars, Dexcom, Diabetes Online Community, Diabetes Products, Psychosocial Support, Robot Life By August 11, 2014 Tags: , , , , 7 Comments

The CGM in the Cloud concept matters most to me when I’m traveling alone.  While I was in Orlando last week, my bedside table looked like this at night: A Moto G hooked up to my Dexcom G4, sending CGM data to the cloud. And that data being routed to my family back in Rhode Island and to my wristwatch….

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Unexpected Advocacy.

Dexcom, Diabetes Advocacy, Diabetic Mommy, Psychosocial Support, Pumping Insulin, Robot Life, Traveling By July 22, 2014 Tags: , , , , , , , , , , 126 Comments

The last thing I wanted to do was take my cover-up off. Chris and Birdy (and our friends and their daughter) were at a water park in New Hampshire where kids can run and play in safe-for-littles sprinklers, pools, and water slides, and as the adults, we were tasked with guarding the perimeter.  Pacing back and forth, the four of…

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Tallygear Winners!

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By July 18, 2014 Tags: , , , , , , , 3 Comments

The Tallygear giveaway was fun to run because it helped contribute to a discussion about how people in the diabetes online community are tackling diabetes-related stigma.  The comments section had some great points about erasing diabetes stigma, and I wanted to highlight a few: “Today I had a good discussion with my sister about the different challenges I face (35…

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What Do You Want to Talk About?

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By July 17, 2014 Tags: , , , , , 3 Comments

Last night’s #dsma chat was a particularly good one, because its intention was to generate discussion and feedback about what people in the diabetes online community (DOC) want to talk about. These questions will be about DSMA and how we can improve your experience and to discuss topics that are near and dear to you. #dsma — DiabetesSocMedAdvoca (@DiabetesSocMed) July…

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CGM in the Cloud: Personal Preferences.

Blood Sugars, Diabetes Advocacy, Diabetes and Family, Diabetes Online Community, Diabetes Products, Diabetic Mommy, Psychosocial Support, Real Life Diabetes, Robot Life, Traveling By July 16, 2014 Tags: , , , , 21 Comments

“Why would you want your continuous glucose monitor information in the cloud?” Fair question, especially coming from folks in the CGM in the Cloud Facebook group, which is heavily dominated by parents of children with diabetes. I didn’t want to answer, at first, because I didn’t want to say the wrong thing.  When I meet with parents of kids with…

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We Are Not Waiting: CGM in the Cloud (Part 2).

Blood Sugars, Dexcom, Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Diabetes Products, Guest Diabetes Blogger, Psychosocial Support, Real Life Diabetes, Robot Life By July 14, 2014 Tags: , , , , , , , , 5 Comments

Continuing from last week, I’m picking up this morning with Laurie Schwartz, mom to Adam (T1D) and an active and supportive voice in the CGM in the Cloud group.  In the last week, I’ve had many interactions with people from the CGM in the Cloud group and every single person has been happy to share their experiences, eager to share…

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The One About Broken Windows.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Videos, Psychosocial Support, Real Life Diabetes By July 11, 2014 Tags: , , , , , , , 5 Comments

Tackling diabetes, one window at a time. (See also:  caulk) (And the second part of the CGM in the Cloud write-up will be up on Monday. A long night with a cranky Bird didn’t make for any decent writing. Thanks for your patience!) You might also like: Looking in the Windows. D-Blog Week: Change One Life, Change the World. Guest…

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