Healthcare

Not in a Vacuum.

Healthcare, Real Life Diabetes By May 6, 2016 8 Comments

It seems like the full assessment of my diabetes is only found in my paperwork, in my lab work.  But diabetes is more than that.  This video is a quick and dirty buzzword-laden rantish type moment about whole person care and how it’s not yet a “thing” in the land of chronic illness … but it will be. You might…

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Guest Post: Diabetes Isn’t Easy, But Acting on Policy Can Be.

Diabetes Advocacy, Healthcare By April 5, 2016 Tags: , , , , No Comments

This morning, Bennet Dunlap is taking over SUM because he has something to say.  Changing health policy has become a project of Bennet’s for personal reasons, and with the help of the diabetes community, he and others are aiming to make a difference.  Today he’s writing about the Diabetes Patient Advocacy Coalition and how it’s aiming to be the “easy…

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Healthcare Hamster Wheel.

Healthcare, Infertility and Pregnancy, Psychosocial Support, Real Life Diabetes By March 28, 2016 Tags: , , , 48 Comments

For the last few years, doctor’s appointments have felt like an exercise in “checking the boxes.”  Yeah, I called and made an appointment with my endocrinologist.  Yeah, I had my A1C drawn and the result was either given to me that day or a week later by way of calling the clinic.  Sure, I get weighed and we download my…

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Phone Call Shuffle.

Healthcare, Infertility and Pregnancy, Real Life Diabetes By March 24, 2016 Tags: , , , , 13 Comments

The appointment scheduling protocol sheet was long, but had all the right information and phone numbers for the different hospitals and specialists.  The hospitals are all part of the same group, so my information should be on file, in theory.  Should be easy enough to jump right in and start making phone calls. Lots of shoulds. “Hi, I’m a patient…

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Differences So Far.

Diabetic Mommy, Healthcare, Infertility and Pregnancy By March 17, 2016 5 Comments

The differences between Kid 1 and Kid 2 will be stark, I’m sure, and it’s starting with their respective pregnancies.  This attempt is very different from my first in some ways, but refreshingly similar in others. There was morning sickness.  Not actively throwing up, but a moderate-to-high level of nausea that kicked in first thing in the morning and stayed…

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Silent Infertility.

Diabetic Mommy, Healthcare, Infertility and Pregnancy, No Diabetes By March 10, 2016 Tags: , , , , 39 Comments

(You get a special prize if the title of this blog post made you think of this song.) For two years, we wanted a baby. When I first started lurking on infertility websites and forums, the acronyms were confusing.  I knew that TTC was “trying to conceive” but all of the other bits seemed as if someone poured out a…

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Verio Sync: Unanticipated Glitch.

Diabetes Advocacy, Diabetes Products, Healthcare, Real Life Diabetes By February 11, 2016 Tags: , , , , , , 17 Comments

The Verio Sync meter and I have been happy friends for a few years now, starting back in late 2013.  (Here’s that first post, with disclosures aplenty. Second impressions are here.)   I honestly can’t figure out why more people aren’t using this meter.  It’s fast, it’s accurate, and the Reveal app is awesome.  This meter has been the best…

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What Improves My Healthcare Experience.

Healthcare By January 26, 2016 Tags: , , , , , , , , 15 Comments

What would improve the healthcare experience for me, as a patient with multiple health conditions?  I’m glad you asked.  (You did actually ask, right?)  A few things would help move things forward.  Here’s a thought-purging because I happened to have coffee: Billing processes that make sense.  For example, I received a refund for mail order pharmacy overpayment in the same…

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Guest Post: E-Patient Dave Takes on T2D.

Blood Sugars, Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Guest Diabetes Blogger, Healthcare, Real Life Diabetes By November 23, 2015 Tags: , , , , 10 Comments

Dave deBronkart and I met several years ago through patient advocacy and online connection points, and I’ve followed his health story as he has simultaneously followed mine.  Dave comes from the perspective of a cancer survivor who almost died and has turned his “free replay in life” into a crusade to open healthcare’s minds to the idea of partnering with…

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Diabetes Research: My Evolution Toward a Patient Revolution.

Guest Diabetes Blogger, Healthcare By November 10, 2015 Tags: , , , , , 5 Comments

I like Dr. Victor Montori.  He’s a Mayo Clinic diabetes doctor and researcher who is working for a patient revolution – versus healthcare corruption – and for treatments that fit patients properly.  He and I are part of a PCORI team looking at user-centered design and the development of patient decision aids, and I had the chance to meet with…

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Good / Bad.

Diabetes Videos, Healthcare By June 11, 2015 Tags: , , , , , , , 4 Comments

At the TCOYD / diaTribe forum at ADA last week, Dr. Edelman showed a video that he and Dr. Pettus had put together about the doctor and patient relationship, highlighting the good, the bad, and the ugly.  It kicked up some serious laughs from the audience because it’s uncomfortably true in many ways. (My favorite line is at 2:38 –…

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