Healthcare

A (Hair)brush with Disaster

Healthcare, Traveling By January 2, 2018 10 Comments

I always assumed it would diabetes that took my eyeballs out.  Never thought it would be a thumbnail and a hairbrush. Seven years ago, my sweet little Bird accidentally stuck her thumb into my right eye and tore off a sliver of my cornea.  The injury has resurfaced a bunch of annoying times and has been a hindrance since.  But…

Share:

Why We Revolt: An Interview with Dr. Victor Montori

Diabetes Advocacy, Guest Diabetes Blogger, Healthcare, Real Life Diabetes By November 7, 2017 Tags: , , , , , , 4 Comments

The founder of the Patient Revolution is Dr. Victor Montori, a leader in the Knowledge and Evaluation Research Unit at Mayo Clinic and an endocrinologist at Mayo. Dr. Montori is interested in how knowledge is produced, disseminated and taken up in practice — and how this leads to optimal health care delivery and patient outcomes.  His book, Why We Revolt,…

Share:

Building a Healthcare Team

Healthcare, No Diabetes, Real Life Diabetes By September 8, 2017 Tags: , , 12 Comments

Since deciding that our family of four was the maximum number of people to be in our family (read: no more babies), I’ve been working to transition as much of my healthcare team from Boston to Rhode Island.  After almost 30 years at the Joslin Clinic, this has been a tough transition, because I’m so used to their style and…

Share:

Hips Don’t Lie.

Blood Sugars, Healthcare, Pumping Insulin, Real Life Diabetes, Robot Life By June 1, 2017 Tags: , , , 11 Comments

“You’re early for your appointment!”  The receptionist looked at me hopefully.  “Less nervous this time?” (My track record as a nervous dental patient follows me everywhere.) “Yep.  I’m early.  And I have a babysitter this morning for my kid.  I have to follow through now!” Over the last seven years or so, I’ve finally hit stride with my dentist visits.  Very sensitive…

Share:

The Eyeball Situation Becomes Diabetes-Related.

Healthcare By May 3, 2017 Tags: , , , , , , 7 Comments

The initial cause:  a rogue fingernail attached to a cute baby The recurring issue:  repeated corneal tearing The reason for the repeats:  diabetes The original eyeball issue came up seven years ago, when Birdy was about nine months old and she unwittingly scraped her thumbnail against my right eye, ripping off a small shred of my epithelium layer.  This was pretty…

Share:

Body Wars.

Blood Sugars, Healthcare, Real Life Diabetes By May 2, 2017 Tags: , , , , , , , 10 Comments

The Good:  Birdy’s seventh birthday party went off without a hitch.  The cake was made, the guests were fed, the bouncy castle was a source of glee for kids and adults alike, and my daughter spent the day red-faced from jumping, laughing with her friends, and covered in cake frosting.  Cannot ask for more than that. The Bad:  On Friday…

Share:

Mystery Date.

Healthcare, Psychosocial Support, Real Life Diabetes By September 20, 2016 Tags: , , , 4 Comments

There was a board game marketed to girls back in the 60’s that resurfaced again in the 90’s, and that’s when I met Mystery Date.  It was a silly game where you tried to assemble an outfit for a date and then you opened the little plastic door to see if your outfit matched that of the Mystery Date guy.  (For example:…

Share:

Being a Rotten Patient.

Healthcare, Infertility and Pregnancy By August 10, 2016 Tags: , , , , , , , 15 Comments

Yesterday, I was a rotten patient. At this point in my previous pregnancy, I had already been in hospital on bedrest for two weeks, so this whole rolling around on the “outside” while a few days shy of 37 weeks pregnant is new to me.  The emotions I felt on bedrest were really volatile and I cried a lot and…

Share:

Just a Job.

Diabetes Advocacy, Healthcare, Real Life Diabetes By July 25, 2016 Tags: , , , , 2 Comments

“I’m just a medical assistant, so my job isn’t as important,” she said as she took my blood pressure and entered the data into my digital file. “Seriously?  How can you say that?  You probably have more face-to-face moments with patients than the doctors do.  You set the tone for the appointment.  What you do matters.”  I paused.  “Take my…

Share:

Reimbursements.

Healthcare By June 9, 2016 Tags: , , , , , , , , 8 Comments

“I’m not positive I can make it in for that appointment, since I’m traveling for work for the majority of those weeks.  Would it be possible for me to send my device data by email and have you review it for any issues?” Without pausing, my endo said, “Yes, we can do that.” We’ve seen a lot of one another…

Share:

Diabetes Blog Week: The Healthcare Experience.

Healthcare By May 19, 2016 Tags: , , , , 5 Comments

The Healthcare Experience:  Most people who live with a chronic illness end up with a lot of experience when it comes to dealing with healthcare. How would you improve or change your healthcare experience? What would you like to see happening during medical visits with your healthcare team? How about when dealing with your health insurance companies? What’s your Healthcare…

Share:

Diabetes Access Matters.

Healthcare By May 11, 2016 Tags: , , , , , , , 6 Comments

A running list of medications/devices I currently use throughout the day to attempt to manage my type 1 diabetes: insulin pump (t:slim) insulin pump supplies (cartridges, tubing, cannula) glucose meter (Verio Sync) glucose test strips (One Touch) Humalog insulin vials continuous glucose monitor (Dexcom G4 at the moment) Toughpads (to prevent Dexcom adhesive reactions) prenatal vitamin And then there are…

Share: