Diabetes Online Community

Stigmatized Secrets.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Complications, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By November 19, 2013 Tags: , , , , , , , 34 Comments

I’ve spent the last few weeks keeping watch on the My Diabetes Secrets Tumblr account (a version of Diabetes PostSecret – more here) and these two submissions keep leaping out at me: The submissions as stand-alone pieces make me feel like I’m trying to shove limitless emotions into a Ziploc bag, but what kills me is that these were submitted…

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Another #DayOfDiabetes, Twitter-Style.

Diabetes Advocacy, Diabetes Online Community, Psychosocial Support, Real Life Diabetes, Robot Life By November 15, 2013 Tags: , , , , , , , , 4 Comments

For World Diabetes Day yesterday, I attempted to participate in another round of #dayofdiabetes, using Twitter to log the different nuances of a day with type 1 diabetes.  It was a tougher day than normal, Internet-wise, because I spent the morning in the plane and the rest of the afternoon with very limited access to Wifi, but it was World…

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World Diabetes Day 2013.

Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By November 14, 2013 Tags: , , , , , , , , , 21 Comments

“You have diabetes  You seem fine.” “I am fine.” Diabetes makes me walk the precarious fine line Between “I’m sick” and “I’m not” and the whole in-between That makes diabetes invisible, and yet so seen. “Needles?  Every day?  I could never,” You could.  And you would, and you’d do it forever If that’s what kept you from good life or…

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Diabetes Advocacy Postcards.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Diabetic Mommy, Pumping Insulin, Robot Life By November 11, 2013 Tags: , , , , , , 7 Comments

I told Birdy I needed to make some postcards for a diabetes project.  She wanted (insisted) to help, so we spent much of last night drawing insulin pumps on index cards. My insulin pump has been part of her life since she was born, so it’s no wonder she knows the buttons and lines by heart, even though she had…

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Global Connections in the DOC.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Diabetes Videos By November 8, 2013 Tags: , , , , 1 Comment

In October, I was in Barcelona for the 2nd European Blogger Summit put on by Animas and had the opportunity to brainstorm with several diabetes bloggers from across the pond.  (And some from waaaay across the other pond there on the far left … I’m talking to you, Australia.) This video is a compilation of some of the things we…

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Hope vs. Fear: The Video Edition.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Diabetes Videos By November 4, 2013 Tags: , , , , , , , , , , , , , 9 Comments

A million years ago (in Internet time, I think that translates to about eleven months ago), I had the opportunity to work with the team at Novo Nordisk and a few hyper-local Rhode Island/Massachusetts diabetes advocates to create a series of videos.  Our focus was on how hope can be a more powerful motivator than fear, in terms of staying…

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Photo-A-Day: Check.

Blood Sugars, Dexcom, Diabetes Online Community, Real Life Diabetes, Robot Life By November 2, 2013 Tags: , , , , , , 4 Comments

Today’s Diabetes Month Photo-A-Day prompt is “check.”  And seeing how different my Dexcom result is from my meter proves why it’s still important for me to check my blood sugar instead of relying on the information from my CGM.  (Also, you can’t see the “blood drop” request for calibration because the overhead light flushed it out, but this Dexcom sensor…

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National Diabetes Awareness American Month Diabetes … Month?

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Real Life Diabetes By November 1, 2013 Tags: , , , , , , , , 61 Comments

It’s National Diabetes Month, according to the President.  And American Diabetes Month, according to the ADA.  It’s Press Release Inundation Month, according to people who work for companies looking to connect with the diabetes community.  But for people living with diabetes, November.  And it’s also our chance to raise more awareness for our health condition/disease/whatever you’d like to call it….

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Of Cocktails and Community

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes, Relationships By October 29, 2013 Tags: , , , , , , , , , 19 Comments

“So what you should do is see what people are searching for and then carefully tailor your posts to draw in those searches.  Pick the search engine terms that there isn’t a high competition for, giving you an advantage in Google’s search algorithm.” The example he used was pretty simple:  “10 Best Cocktails for People with Diabetes” In a discussion…

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So Fresh and So Clean. (Clean.)

Diabetes Community, Diabetes Online Community, Diabetes Products, Pumping Insulin, Real Life Diabetes, Robot Life By October 25, 2013 Tags: , , , , , 22 Comments

I rarely clean my pump.  I hope that doesn’t make me a complete dirtbag (though the more I think about it, the more I should regularly clean this device that is with me 24 hours a day, every single day, and is brought everywhere but in the shower, so it’s likely to be the most filthy thing I own). But…

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The People in the Computer.

Diabetes Advocacy, Diabetes and Emotions, Diabetes and Family, Diabetes Community, Diabetes Online Community, Diabetes Videos, Psychosocial Support, Real Life Diabetes, Relationships By October 23, 2013 Tags: , , , , 20 Comments

Who are the people in your computer?  (In your computer … in your com-puuuuuter …)  For me, a whole community of people with diabetes live just a click away. You might also like: Unraveling the UnConference. Guest Post: Someone Who Understands. If I Knew Then: Diabetes Blogging. An In-Depth Look at the Diabetes UnConference.

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One Size.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By October 16, 2013 Tags: , 7 Comments

“Just bolus fifteen minutes before you eat, and you won’t see that post-prandial spike.” “Just bolus thirty-five minutes before you eat, and you won’t see a post-prandial spike.” “Have you thought about Levemir?” “Have you tried Apridra?” “Have you seen any difference between Humalog and Novolog?” “If I use the Opsite tape, I can get a sensor to stay on…

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