Diabetes Complications

D-Blog Week: What Brings Me Down … and Then Back Up.

Diabetes and Emotions, Diabetes Complications, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By May 14, 2014 Tags: , , , , , , , 20 Comments

Diabetes has made my body broken in ways I don’t readily admit, but I am sometimes forced to acknowledged.  People talk about my daughter’s chances of developing the disease and they always give me what they think is a comforting comment – “At least it would be the devil you know,” – but that doesn’t ease my boxed-away fears and…

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Spare a Rose.

Diabetes Advocacy, Diabetes Complications, Diabetes Online Community, Real Life Diabetes By January 31, 2014 Tags: , , , , , , 5 Comments

They’re so often a symbol of love and romantic relationships, but lovely as they are, roses wilt within a week or two, and eventually end up discarded. Five dollars per rose, sixty dollars for a dozen. But the cost of those roses can provide life-sustaining insulin for a child with diabetes for an entire year. Through the Spare a Rose,…

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How Real Do You Want It?

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Complications, Psychosocial Support, Real Life Diabetes By January 23, 2014 Tags: , , , , , , , , , , , , , 17 Comments

Over the last few weeks, I’ve been watching the articles about Lisa Bonchek Adams circle, ranging from the New York Times opinion piece by Bill Keller to the one written by Emma Keller (his wife) for The Guardian (which has been removed from The Guardian site but lives on in the archives), to the response piece written by Brian Loew…

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Half a Juice Box.

Blood Sugars, Diabetes and Emotions, Diabetes Complications, Diet and Food, Real Life Diabetes By January 3, 2014 Tags: , , , , 31 Comments

Turn on the light. Fall back asleep. Press the button on the CGM to make it stop BEEP!ing. Fall back asleep. Unzip the meter case and take out my glucose meter. Lapse back into sleep again; was it sleep or was I passed out and what’s the difference when it’s 4 am and your blood sugar is under 40 mg/dL?…

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Macular Edema and Pac-Man.

Diabetes and Emotions, Diabetes Complications, Healthcare, Real Life Diabetes By December 30, 2013 Tags: , , , , , , 27 Comments

I had been sitting in the darkened waiting room where people sit patiently, waiting for the dilation drops to take effect on their eyeballs.  The room is quiet and dim, with a television set at the front and chairs for people to ease into and watch the DVD menu screen (it was for a Discovery channel documentary about deep sea…

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Talking About Diabetes Burnout.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Complications, Diabetes Online Community, Diabetes Videos, Psychosocial Support, Real Life Diabetes By November 26, 2013 Tags: , , , , , , , 11 Comments

Diabetes is every day, but burnout doesn’t have to be.   You might also like: Diabetes Blog Week: Message Monday. Rewind: These Boots Were Made for Talking Type 1 Origins: Talking Comic Books with Partha Kar. Perspectives on Diabetes: Why Children with Diabetes Matters.

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Stigmatized Secrets.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Complications, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By November 19, 2013 Tags: , , , , , , , 34 Comments

I’ve spent the last few weeks keeping watch on the My Diabetes Secrets Tumblr account (a version of Diabetes PostSecret – more here) and these two submissions keep leaping out at me: The submissions as stand-alone pieces make me feel like I’m trying to shove limitless emotions into a Ziploc bag, but what kills me is that these were submitted…

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Filling Back Up.

Diabetes Advocacy, Diabetes and Emotions, Diabetes and Family, Diabetes Complications, Psychosocial Support, Real Life Diabetes By September 12, 2013 Tags: , , , , , , , 65 Comments

It whispered in my ear two January’s ago, when a low blood sugar came too close to becoming terrifying as I felt the whoosh of that bullet go by. I’d never felt anything like that before, that aftermath of fear and numbness.  Then I marked twenty six years with type 1 diabetes, and I just wanted to outrun this disease,…

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Diaries of a Diabetic Girl.

Diabetes and Emotions, Diabetes and Family, Diabetes Complications, Diabetes Memories, Diabetic Mommy, Real Life Diabetes By July 3, 2013 Tags: , , , , , , , 16 Comments

The last time I cracked the binding on these journals was back in 2009, when I was cleaning out the apartment I was living in at the time.  I happened upon them again last night, while searching for something in the attic.  (I never found what I was looking for up there, but I did come down with a bunch…

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You Want to Try Again?

Diabetes Community, Diabetes Complications, Diabetic Mommy, Real Life Diabetes By July 2, 2013 Tags: , , , 4 Comments

“You want to try again?” “Yep.” http://youtu.be/KxRadetesYU   (Thanks for your comments and emails yesterday.  The support found in these kinds of patient communities help so many of us to keep trying … again and again and again.  Thanks for what you’ve done for me, and what you do for so many.  Now go outside and roll down a hill,…

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Complicated.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Complications, Real Life Diabetes By July 1, 2013 Tags: , , , , , , , , 109 Comments

A few weeks ago, I was diagnosed with macular edema. It’s a complication you can’t see, one that I can’t see until I can’t see.  Sophisticated computer equipment and  camera technology have afforded me the opportunity to find out early, giving me the chance to track this issue closely and opt for aggressive treatment options (laser surgery, medicated eye drops,…

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