Diabetes Complications

Does Not Compute.

Blood Sugars, Diabetes Complications, Diabetic Mommy, Real Life Diabetes By June 10, 2015 Tags: , , , , , 13 Comments

“Do you guys have any fun plans for the summer?” The question was simple enough, but not even close to a level my hypoglycemia-addled brain could handle.  I had trouble formulating a response, and the lag time was embarrassing.  We’ve only moved to the neighborhood a few months ago and haven’t solidified relationships with our neighbors yet, so being wickedly…

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Diabetes Blog Week: The Quiet Parts.

Diabetes and Emotions, Diabetes Complications, Diabetes Online Community, Psychosocial Support, Real Life Diabetes, Relationships, Robot Life By May 12, 2015 Tags: , , , , , 13 Comments

Feels weird, and slightly ironic, starting a blog post about the diabetes-related things I don’t share here on the diabetes blog I’ve written here on the open Internet about my personal experiences with the disease.  It’s been ten years of this – the idea that there’s crap I don’t talk about might seem like a big fat lie. But there…

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Potent Potion.

Dexcom, Diabetes Complications, Robot Life By April 8, 2015 11 Comments

Turns out I’m not unique in experiencing the dreaded “Dexcom rash.”  (Which sucks for anyone else who gets the major sensor scratchies, but at the same time, the diabetes community is innovative as eff.  We work around the workarounds.) When it comes to dealing with my own Dexcom rash, wearing the Toughpad underneath my sensor helps a ton, but it…

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Video: Diabetes Complications.

Diabetes Complications, Diabetes Videos, Psychosocial Support, Real Life Diabetes By June 11, 2014 Tags: , , , , , 21 Comments

I feel like when people are diagnosed with diabetes-related complications, all of a sudden they feel like they have to hide somewhere and they aren’t allowed to talk about it, so they’re not able to get the support that they need to deal with this new diagnosis. My macular edema diagnosis didn’t mark the end of my life as a…

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Looking in the Windows.

Diabetes and Emotions, Diabetes Complications, Healthcare, Real Life Diabetes By May 21, 2014 Tags: , , , , 14 Comments

Following through on these eye doctor appointments at Joslin’s eye clinic usually means carving out 5+ hours in the day. Even though Rhode Island is assumed to have a short commute to Boston proper, with traffic it can take two hours to get into the city.  Which means that for a 1.30 pm appointment, we had to leave the house…

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D-Blog Week: What Brings Me Down … and Then Back Up.

Diabetes and Emotions, Diabetes Complications, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By May 14, 2014 Tags: , , , , , , , 20 Comments

Diabetes has made my body broken in ways I don’t readily admit, but I am sometimes forced to acknowledged.  People talk about my daughter’s chances of developing the disease and they always give me what they think is a comforting comment – “At least it would be the devil you know,” – but that doesn’t ease my boxed-away fears and…

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Spare a Rose.

Diabetes Advocacy, Diabetes Complications, Diabetes Online Community, Real Life Diabetes By January 31, 2014 Tags: , , , , , , 5 Comments

They’re so often a symbol of love and romantic relationships, but lovely as they are, roses wilt within a week or two, and eventually end up discarded. Five dollars per rose, sixty dollars for a dozen. But the cost of those roses can provide life-sustaining insulin for a child with diabetes for an entire year. Through the Spare a Rose,…

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How Real Do You Want It?

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Complications, Psychosocial Support, Real Life Diabetes By January 23, 2014 Tags: , , , , , , , , , , , , , 17 Comments

Over the last few weeks, I’ve been watching the articles about Lisa Bonchek Adams circle, ranging from the New York Times opinion piece by Bill Keller to the one written by Emma Keller (his wife) for The Guardian (which has been removed from The Guardian site but lives on in the archives), to the response piece written by Brian Loew…

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Half a Juice Box.

Blood Sugars, Diabetes and Emotions, Diabetes Complications, Diet and Food, Real Life Diabetes By January 3, 2014 Tags: , , , , 31 Comments

Turn on the light. Fall back asleep. Press the button on the CGM to make it stop BEEP!ing. Fall back asleep. Unzip the meter case and take out my glucose meter. Lapse back into sleep again; was it sleep or was I passed out and what’s the difference when it’s 4 am and your blood sugar is under 40 mg/dL?…

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Macular Edema and Pac-Man.

Diabetes and Emotions, Diabetes Complications, Healthcare, Real Life Diabetes By December 30, 2013 Tags: , , , , , , 27 Comments

I had been sitting in the darkened waiting room where people sit patiently, waiting for the dilation drops to take effect on their eyeballs.  The room is quiet and dim, with a television set at the front and chairs for people to ease into and watch the DVD menu screen (it was for a Discovery channel documentary about deep sea…

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Talking About Diabetes Burnout.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Complications, Diabetes Online Community, Diabetes Videos, Psychosocial Support, Real Life Diabetes By November 26, 2013 Tags: , , , , , , , 11 Comments

Diabetes is every day, but burnout doesn’t have to be.   You might also like: Diabetes Blog Week: Message Monday. Rewind: These Boots Were Made for Talking Type 1 Origins: Talking Comic Books with Partha Kar. Perspectives on Diabetes: Why Children with Diabetes Matters.

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Stigmatized Secrets.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Complications, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By November 19, 2013 Tags: , , , , , , , 34 Comments

I’ve spent the last few weeks keeping watch on the My Diabetes Secrets Tumblr account (a version of Diabetes PostSecret – more here) and these two submissions keep leaping out at me: The submissions as stand-alone pieces make me feel like I’m trying to shove limitless emotions into a Ziploc bag, but what kills me is that these were submitted…

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Filling Back Up.

Diabetes Advocacy, Diabetes and Emotions, Diabetes and Family, Diabetes Complications, Psychosocial Support, Real Life Diabetes By September 12, 2013 Tags: , , , , , , , 65 Comments

It whispered in my ear two January’s ago, when a low blood sugar came too close to becoming terrifying as I felt the whoosh of that bullet go by. I’d never felt anything like that before, that aftermath of fear and numbness.  Then I marked twenty six years with type 1 diabetes, and I just wanted to outrun this disease,…

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Diaries of a Diabetic Girl.

Diabetes and Emotions, Diabetes and Family, Diabetes Complications, Diabetes Memories, Diabetic Mommy, Real Life Diabetes By July 3, 2013 Tags: , , , , , , , 16 Comments

The last time I cracked the binding on these journals was back in 2009, when I was cleaning out the apartment I was living in at the time.  I happened upon them again last night, while searching for something in the attic.  (I never found what I was looking for up there, but I did come down with a bunch…

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