Diabetes Community

Finish Line Vision: An Interview with Jay Hewitt

Diabetes Advocacy, Diabetes Community, Diabetes Products, Exercise & Fitness, Guest Diabetes Blogger, Real Life Diabetes By December 4, 2017 Tags: , , , No Comments

I remember watching Jay Hewitt speak at a Children with Diabetes Friends for Life conference several years ago thinking, “Why do people do Ironman triathlons?  And also, if you do more than one, have they done Ironmans or Ironmen?”  Grammar quandary aside*, Jay is a physical force to be reckoned with and he’s done the whole Ironman journey with diabetes…

Share:

Do You Hate Diabetes?

Diabetes Advocacy, Diabetes and Emotions, Diabetes and Family, Diabetes Community, Diabetes Online Community, Mental Health, Psychosocial Support By October 11, 2017 Tags: , , , , , , 9 Comments

I asked some friends on Facebook if they hated diabetes, and the answers* were as varied as the folks responding: “I hate it, the hassle, and the complications but I do not hate the growth amd strength I’ve achieved or the family I’ve gained because of it.” “I don’t hate it as a thing but it does annoy me. At…

Share:

Guest Post: Until Next Time, FFL.

Diabetes Advocacy, Diabetes and Family, Diabetes Community, Diabetes Online Community, Guest Diabetes Blogger, Psychosocial Support By October 9, 2017 Tags: , , 1 Comment

Leigh Fickling was at the Friends for Life event this past weekend in Falls Church, VA and this morning, she posted about the power of FFL and of the green or orange bracelets given out to attendees on her Facebook page.  I asked if I could share her post on SUM, and she was kind enough to say yes. Take…

Share:

Thirty One Years with Diabetes.

Diabetes and Emotions, Diabetes and Family, Diabetes Community, Diabetes Complications, Diabetes Memories, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By September 11, 2017 Tags: , , , 8 Comments

When my diabetes marked it’s 25th birthday, I wrote a bulleted of stuff I’ve learned since diagnosis.  Another handful of years later, most of that list still holds up, with a few tweaks: Sometimes I can’t believe this is still A Thing.  That diabetes is still a thing that requires attention, work, and patience.  I used to believe in the…

Share:

Guest Post: People with Diabetes are Demonstrating for #insulin4all

Diabetes Community, Diabetes Online Community By August 10, 2017 Tags: , , , , , , 5 Comments

Today’s guest post comes from Elizabeth Rowley, director of T1International – an organization working towards sustainable access and affordability of insulin, diabetes supplies, medical care and education for all people living with type 1 diabetes.  They are planning a protest at Eli Lilly on September 9th, and Elizabeth is borrowing SUM today to share the who, what, where, and why of…

Share:

Looking Back: Language and Diabetes.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Online Community By July 31, 2017 Tags: , , 2 Comments

In combing through some older posts, I found this one about language, and the words we use.  (Older post here)  How I talk about my diabetes influences how I feel about it, or how it can make me fee.  Which is why I wanted to revisit this post this afternoon, looking back to last year’s Diabetes Blog Week.   *…

Share:

Voices Carry.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By July 25, 2017 Tags: , , , , , 12 Comments

There’s no generation assigned glibly to me – not a millenial, not a Gen X’er, but I seem to be an “xenial,” according to this new write-up.  I identify completely with “experienced an analogue childhood and a digital adulthood.” My journaling has gone from paper journals to blog posts, too.  I used to keep volumes of chaotic ramblings as a…

Share:

Magic Kingdom, Magic Bathrooms.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Pumping Insulin, Real Life Diabetes, Robot Life By July 18, 2017 Tags: , , , , 7 Comments

“Is that an insulin pump?” I was standing outside of the stall in a bathroom in Tomorrowland, waiting for my daughter to wash her hands. “Yes, on my arm here?  Yes, it is.”  I pointed to the infusion set on my right arm, the tubing snaking back up my sleeve into my dress. “Oh!”  The lady smiled really big, relieved. …

Share:

Recipe for FFL.

Diabetes Advocacy, Diabetes Community, Psychosocial Support, Real Life Diabetes By July 12, 2017 Tags: , , , , , , , , 9 Comments

Want to make Friends for Life?  Here’s how: Ingredients: 1 large Coronado Spring Millions of humidity molecules 3,000 family members who live with diabetes 1,000 (estimated) Mickey Mouse waffles 22 bowls of glucose tabs Dozens of supportive siblings Hundreds of orange bracelets Hundreds of green bracelets Several buffet tables of carb-counted food Add sports central, support sessions, and learning workshops to…

Share:

ONE Great Weekend.

Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By June 29, 2017 Tags: , , , , , 4 Comments

“So what made you want to do the TCOYD ONE conference?” I asked the TCOYD team. “We were sitting around one day having drinks and just said there is so much stuff coming out in the field of type 1 diabetes that we NEED to put on an event with the absolute best of the best speakers and invite every…

Share:

Look to the Edges.

Diabetes Community, Diabetes Online Community By June 12, 2017 Tags: , , , 5 Comments

People like me are not accounted for .I have no insurance , no dr .Who counts me and the others like us ? — AnaHelena (@karmasense) June 10, 2017 We must account for ALL people. For too long We have focused on T1D kids forgetting adults who are insulin dependent *every* *single* *day*😳 — Jake Kushner (@JakeKushnerMD) June 11, 2017…

Share: