Diabetes Community

The Friday Six: Hope Conference, No Scrubs, and Grocery Store Lows.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, The Friday Six By April 18, 2014 2 Comments

Lots on tap this morning: While there is no known cure for diabetes, that doesn’t mean the diagnosis is hopeless.  Check out the 2nd Diabetes Hope Conference and register for your free ticket! A guest post from Hope Warshaw about asking Congress to Access to Quality Diabetes Education on the Strip Safely website. Grocery store lows are the worst. These stick…

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If I Knew Then: Diabetes Blogging.

Diabetes Advocacy, Diabetes and Emotions, Diabetes and Family, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By April 9, 2014 Tags: , , , , , 11 Comments

I wish I had known, at the outset, what a “blog” was.  When Chris suggested I start one back in 2005, the face I made was as though he had shoved a lemon into my mouth.  “A blaaaaahgg?” I wish I had known that things like SEO would matter – not on the “I need more page views” sort of…

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What’s Your Itch?

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support By April 2, 2014 Tags: , , , , , 16 Comments

My “diabetes advocacy itch” has always been emotional health.  I’m not a doctor and I don’t know everything about type 1 diabetes, but I do know that I pay more attention to my diabetes when my head is in a healthy space, and being tuned in to diabetes improves outcomes, for me.  Feeling stressed, overwhelmed, upset … any kind of…

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Excited About Exercise … Again?

Diabetes Community, Diabetes Online Community, Diabetes Products, Exercise & Fitness By April 1, 2014 Tags: , , , , , , 10 Comments

I’m climbing up on a new bandwagon. Oh hell yes I am, and I needed one.  Over the last few weeks, I’ve completely fallen off in terms of exercise.  I could blame the endless winter weather, or work, or the endless fuzzy hairballs that are Loopy and Siah, but the truth is, I just got lazy.  Laziness turned into apathy,…

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The Friday Six: FDA, Competitive Bidding, and Double-Dutch.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, The Friday Six By March 28, 2014 5 Comments

The weekend is SO CLOSE.  I’m wearing a path through this busy Friday with a Friday Six: The FDA is listening, and if you want them to hear from you, you can join the discussion on Monday.  “Whether you want to just listen to the interview to get informed, ask relevant questions to better understand the medical device regulatory process…

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Learning from Mistakes.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Online Community, Diabetes Videos, Psychosocial Support, Real Life Diabetes By March 14, 2014 14 Comments

I make so many mistakes, but I’m grateful for a supportive community that inspires me to learn … both from mistakes, and from their collective experiences. (Holy crap am I sorry I talked so fast in that clip.  It was like NaNoWriMo hosted by one breath.) You might also like: To A Crisp. Learning from my Peers. The People in…

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The One About Balancing Diabetes

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes, SUM in Other Places By March 4, 2014 Tags: , , , , , 7 Comments

Life with diabetes isn’t about the diabetes itself, but about the life it’s a part of.  There is a life to be found after diagnosis, and it’s a good one.  Being able to take a blood sugar and remove the blame and guilt from that result, focusing only on the actions needed to correct that number or duplicate it?  Viewing…

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Official Spare a Rose Totals.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community By February 24, 2014 Tags: , , , , , 4 Comments

Official totals for the Spare a Rose, Save a Child campaign came in at $27,265.17, from 832 donations.  Below is a second letter from Dr. Graham Ogle, thanking our community for our participation:   [Link to full-size PDF file] I love how community efforts gave rise to a beautiful message from the DOC to our friends, globally.  And I also…

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Guest Post: Crusading for CGM Coverage.

Dexcom, Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Guest Diabetes Blogger, Healthcare, Robot Life By February 19, 2014 Tags: , , , , , , , , , 30 Comments

I’ve used a Dexcom continuous glucose monitor (from the 3-day STS system to the G4 Platinum) since 2006, and the positive influence it has had on my diabetes management and overall quality of life is undeniable.  But as it stands now, when I reach the Medicare age, my coverage for CGM use will be denied.  Susan Berger, an advocate and…

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Happy Flowerless Valentine’s Day: Spare a Rose.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community By February 14, 2014 Tags: , , , 2 Comments

Today is the last day of the Spare A Rose campaign, and as of this morning, the diabetes community has raised $19821.34 from 604 donations. Our original goal was to raise $10,000, and we’ve almost met that goal twice over in the course of two weeks.  And it’s still early this Valentine’s Day – final totals will be compiled over…

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How Real Do You Want It?

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Complications, Psychosocial Support, Real Life Diabetes By January 23, 2014 Tags: , , , , , , , , , , , , , 17 Comments

Over the last few weeks, I’ve been watching the articles about Lisa Bonchek Adams circle, ranging from the New York Times opinion piece by Bill Keller to the one written by Emma Keller (his wife) for The Guardian (which has been removed from The Guardian site but lives on in the archives), to the response piece written by Brian Loew…

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