Diabetes and Emotions

Diabetes Food Lies.

Blood Sugars, Diabetes and Emotions, Diet and Food, Psychosocial Support, Real Life Diabetes By February 25, 2014 Tags: , , , , , , , , 41 Comments

So many rules were slapped into place immediately upon diagnosis, with diabetes feeling like a disease of “don’ts.”  Don’t eat cookies, don’t forget to measure your food, don’t leave the house without your meter or insulin or glucose tabs, don’t go to bed without checking your blood sugar, don’t eat too much sugar-free candy or else you will take up…

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Diabetes Art Day: PWD Paper Dolls.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Online Community, Diabetic Mommy, Psychosocial Support, Pumping Insulin, Real Life Diabetes By February 3, 2014 Tags: , , , 10 Comments

A few weeks, ago, I stumbled upon some really excellent paper dolls created by Hannah at LightBulbBooks.  Her aim was to create something that encouraged interests in science and engineering for young girls, and I loved her creations.  Birdy and I printed them out, colored them, and played for hours, talking about how she could be a scientist, if she…

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How Real Do You Want It?

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Complications, Psychosocial Support, Real Life Diabetes By January 23, 2014 Tags: , , , , , , , , , , , , , 17 Comments

Over the last few weeks, I’ve been watching the articles about Lisa Bonchek Adams circle, ranging from the New York Times opinion piece by Bill Keller to the one written by Emma Keller (his wife) for The Guardian (which has been removed from The Guardian site but lives on in the archives), to the response piece written by Brian Loew…

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If I Knew Then: Insulin Pumps.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Memories, Pumping Insulin, Real Life Diabetes, Robot Life By January 13, 2014 38 Comments

At the Medtronic diabetes advocacy forum this past weekend [disclosure], there was a brand-agnostic discussion about the things we wish we had known before starting on an insulin pump.  I’ve been pumping since 2004, and switching from injections to the pump was a big hurdle for me, for physical and emotional reasons: I wish I had known that wearing a…

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Half a Juice Box.

Blood Sugars, Diabetes and Emotions, Diabetes Complications, Diet and Food, Real Life Diabetes By January 3, 2014 Tags: , , , , 31 Comments

Turn on the light. Fall back asleep. Press the button on the CGM to make it stop BEEP!ing. Fall back asleep. Unzip the meter case and take out my glucose meter. Lapse back into sleep again; was it sleep or was I passed out and what’s the difference when it’s 4 am and your blood sugar is under 40 mg/dL?…

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Macular Edema and Pac-Man.

Diabetes and Emotions, Diabetes Complications, Healthcare, Real Life Diabetes By December 30, 2013 Tags: , , , , , , 27 Comments

I had been sitting in the darkened waiting room where people sit patiently, waiting for the dilation drops to take effect on their eyeballs.  The room is quiet and dim, with a television set at the front and chairs for people to ease into and watch the DVD menu screen (it was for a Discovery channel documentary about deep sea…

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Looking Back: Santabetes.

Diabetes and Emotions, Psychosocial Support, Real Life Diabetes By December 18, 2013 Tags: , , , , , , , , 2 Comments

‘Tis the season for giving Santa too much of the credit.  This morning, I’m looking back at a post from 2010 about my mental Santabetes. *   *   * [Note:  This post contains spoilers.  If  you believe happily in the story of Santa, skip down to where it says “Diabetes is like Santa Claus.”] My husband and I share a philosophy…

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Power of Patient Communities.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Online Community, Healthcare, Psychosocial Support, Real Life Diabetes By December 16, 2013 Tags: , , , , , 1 Comment

At the end of November, I had the opportunity to contribute an article to Pharmaphorum, which is a UK-based publication with the mission to “connect healthcare thought leaders to support the pharma industry in delivering innovation.”  Thanks to the thoughtful responses from Bob Pederson, Shannon Marengo, Laura Gibson, and Melanie Bunda, I was able to highlight some of the benefits…

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Slackertown Jones.

Diabetes and Emotions, Exercise & Fitness, Psychosocial Support, Real Life Diabetes By December 12, 2013 Tags: , , , , , , , 6 Comments

In just over a week’s time, I let everything go to shit. Meter average is up 40 points.  (Note:  Do you call the mg/dL units “points,” too?)  I haven’t exercised since before the IDF Congress.  For much of the last two weeks, I’ve spent way too much time in the car, on a plane, on a train, or sitting in…

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Talking About Diabetes Burnout.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Complications, Diabetes Online Community, Diabetes Videos, Psychosocial Support, Real Life Diabetes By November 26, 2013 Tags: , , , , , , , 11 Comments

Diabetes is every day, but burnout doesn’t have to be.   You might also like: Diabetes Blog Week: Message Monday. Rewind: These Boots Were Made for Talking Type 1 Origins: Talking Comic Books with Partha Kar. Perspectives on Diabetes: Why Children with Diabetes Matters.

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Stigmatized Secrets.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Complications, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By November 19, 2013 Tags: , , , , , , , 34 Comments

I’ve spent the last few weeks keeping watch on the My Diabetes Secrets Tumblr account (a version of Diabetes PostSecret – more here) and these two submissions keep leaping out at me: The submissions as stand-alone pieces make me feel like I’m trying to shove limitless emotions into a Ziploc bag, but what kills me is that these were submitted…

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Of Cocktails and Community

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes, Relationships By October 29, 2013 Tags: , , , , , , , , , 19 Comments

“So what you should do is see what people are searching for and then carefully tailor your posts to draw in those searches.  Pick the search engine terms that there isn’t a high competition for, giving you an advantage in Google’s search algorithm.” The example he used was pretty simple:  “10 Best Cocktails for People with Diabetes” In a discussion…

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