Diabetes Advocacy

Do You Hate Diabetes?

Diabetes Advocacy, Diabetes and Emotions, Diabetes and Family, Diabetes Community, Diabetes Online Community, Mental Health, Psychosocial Support By October 11, 2017 Tags: , , , , , , 9 Comments

I asked some friends on Facebook if they hated diabetes, and the answers* were as varied as the folks responding: “I hate it, the hassle, and the complications but I do not hate the growth amd strength I’ve achieved or the family I’ve gained because of it.” “I don’t hate it as a thing but it does annoy me. At…

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Guest Post: Until Next Time, FFL.

Diabetes Advocacy, Diabetes and Family, Diabetes Community, Diabetes Online Community, Guest Diabetes Blogger, Psychosocial Support By October 9, 2017 Tags: , , 1 Comment

Leigh Fickling was at the Friends for Life event this past weekend in Falls Church, VA and this morning, she posted about the power of FFL and of the green or orange bracelets given out to attendees on her Facebook page.  I asked if I could share her post on SUM, and she was kind enough to say yes. Take…

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Guest Post: #Insulin4All Protest at Lilly

Diabetes Advocacy By September 20, 2017 Tags: , , , , 2 Comments

T1International founder Elizabeth Rowley guest posted before the #insulin4life rally in Indianapolis, and today her colleague Karyn Wofford is taking over SUM to share more about the protest itself, their goals, and how the diabetes community can continue to help.   *   *   * For nearly 18 years, I’ve had type one diabetes. I’ve been on “life support”…

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Guest Post: Mindy Bartleson on Chronic Illness, Mental Heath, and Removing the Rose Colored Glasses

Diabetes Advocacy, Diabetes and Emotions, Mental Health, Psychosocial Support, Real Life Diabetes By September 18, 2017 Tags: , , , No Comments

Mindy is self-publishing an honest book about growing up with chronic illness and mental health. She wrote the content before rose colored glasses impacted her experiences too much.  Today, she’s sharing the why behind her efforts on SixUntilMe. And if you’d like to help this book get published, you can visit the crowdfunding page to learn more, back her project,…

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Giving It Another Go

Diabetes Advocacy By September 1, 2017 2 Comments

I have been trying to write a post since this morning, but my website keeps eating the content and/or refusing to save.  It did let me post the technical difficulties picture earlier, but I think that was mostly out of pity. Hopefully this post works.  Let’s see … I’ve been quiet on the blog lately, not entirely because of technical…

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Diabetes on the North Coast Trail

Diabetes Advocacy, Diabetes Online Community By August 14, 2017 Tags: , , , , 3 Comments

Everyone involved with Connected in Motion impresses me; their sense of adventure coupled with their ability to jam diabetes into those adventures is something I draw inspiration from.  (Come on … go look at their social media feeds and tell me you don’t want to be part of something that explores this kind of landscape.)  Their community is centered around…

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Looking Back: Language and Diabetes.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Online Community By July 31, 2017 Tags: , , 2 Comments

In combing through some older posts, I found this one about language, and the words we use.  (Older post here)  How I talk about my diabetes influences how I feel about it, or how it can make me fee.  Which is why I wanted to revisit this post this afternoon, looking back to last year’s Diabetes Blog Week.   *…

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Voices Carry.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By July 25, 2017 Tags: , , , , , 13 Comments

There’s no generation assigned glibly to me – not a millenial, not a Gen X’er, but I seem to be an “xenial,” according to this new write-up.  I identify completely with “experienced an analogue childhood and a digital adulthood.” My journaling has gone from paper journals to blog posts, too.  I used to keep volumes of chaotic ramblings as a…

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Magic Kingdom, Magic Bathrooms.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Pumping Insulin, Real Life Diabetes, Robot Life By July 18, 2017 Tags: , , , , 7 Comments

“Is that an insulin pump?” I was standing outside of the stall in a bathroom in Tomorrowland, waiting for my daughter to wash her hands. “Yes, on my arm here?  Yes, it is.”  I pointed to the infusion set on my right arm, the tubing snaking back up my sleeve into my dress. “Oh!”  The lady smiled really big, relieved. …

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Recipe for FFL.

Diabetes Advocacy, Diabetes Community, Psychosocial Support, Real Life Diabetes By July 12, 2017 Tags: , , , , , , , , 9 Comments

Want to make Friends for Life?  Here’s how: Ingredients: 1 large Coronado Spring Millions of humidity molecules 3,000 family members who live with diabetes 1,000 (estimated) Mickey Mouse waffles 22 bowls of glucose tabs Dozens of supportive siblings Hundreds of orange bracelets Hundreds of green bracelets Several buffet tables of carb-counted food Add sports central, support sessions, and learning workshops to…

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Bright Spots & Landmines: An Interview with Adam Brown

Diabetes Advocacy, Diabetes Community, Psychosocial Support, Real Life Diabetes By May 23, 2017 Tags: , , , , , , , , 1 Comment

Adam Brown has written a new – TERRIFIC – book for the diabetes community, full of the same brilliant, actionable advice that we’ve come to happily expect from his diaTribe columns.  His book, Bright Spots & Landmines, is billed as “the diabetes guide I wish someone had handed me,” and that sentiment is absolutely correct.  This book is a powerful tool that people living…

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What I Did On My Bloggy Vacation.

Diabetes Advocacy, Real Life Diabetes By April 24, 2017 Tags: , 6 Comments

Whoa – this was the longest unintentional blog break I’ve taken in ages. Maybe ever. And it’s not like I didn’t have diabetes-related things to say or conversations I wanted to contribute to. I just didn’t feel like writing. Which is weird. I usually feel like writing. After the Target low, I was on break with my family for a…

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