Diabetes Advocacy

Non-Billable Hours: The Diabetes Stuff That Doesn’t Have Copays

Blood Sugars, Diabetes Advocacy, Diabetes Products, Diabetes Videos, Real Life Diabetes, Robot Life By November 5, 2018 Tags: , , , , 5 Comments

At first glance, I manage my diabetes using an insulin pump from Tandem Diabetes Care, a continuous glucose monitor from Dexcom, Humalog insulin, and either the mySugr meter kit or a Freestyle one.  All of these items require prescriptions and $$$ and involvement from my clinicians. But there’s a number of items that are used regularly to manage my diabetes,…

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Non-Billable Hours: Lost Sleep

Blood Sugars, Diabetes Advocacy, Real Life Diabetes By November 2, 2018 Tags: , , , , , 7 Comments

Last night looked like this: And today I feel like this: Which translates into a low blood sugar that Basal IQ couldn’t fully pull me out of, most likely the result of … I have no idea because I didn’t exercise more than normal, didn’t eat anything that required a shit ton of insulin, wasn’t feeling extra stressed, wasn’t possessed…

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Non-Billable Hours: Purse Party

Blood Sugars, Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Relationships By November 1, 2018 Tags: , , , , 3 Comments

It’s Diabetes Month – have you heard?  There will be a ton of diabetes-related news circulating; you’ll see diabetes in the headlines and on the news.  Diabetes is, dare I say? so fetch this month. Discussions about diabetes often seem limited, at least in the broader public forum, about blood sugars, weight gain or loss, and diet.  Admittedly, a lot…

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Non-Medical Switching

Diabetes Advocacy, Diabetes Online Community, Diabetes Tech, Diabetes Videos, Pumping Insulin, Real Life Diabetes By October 18, 2018 Tags: , , , , , 6 Comments

“From the Alliance for Patient Access YouTube page:  People with diabetes describe non-medical switching, where an insurer has pushed them to change insulin, pumps, meters or other medical necessities.” Being told to switch medications because the insurance company says so, not because the medical team recommends the switch, is a messed up situation.  Clinicians and patients should be making those…

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Rewind: Voicemail for my Pancreas

Blood Sugars, Diabetes Advocacy, Diabetes and Emotions, Diabetes Memories, Relationships By September 25, 2018 Tags: , , 1 Comment

(I’m traveling this week, with limited access and desire to visit the Internet, but while I’m on an adventure, I’m rewinding the blog to showcase some older posts.  So don’t freak out if you see some older post about being pregnant or whatever because giiiiiiirl I am not pregnant.) “Hey, you.  This is awkward.  Voicemail.  I hate voicemail.  But I…

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Rewind: Diabetes Food Lies

Blood Sugars, Diabetes Advocacy, Diabetes Complications, Diabetes Online Community, Diet and Food, Exercise & Fitness, Mental Health, Psychosocial Support, Real Life Diabetes By September 24, 2018 Tags: , , , 1 Comment

(I’m traveling this week, with limited access and desire to visit the Internet, but while I’m on an adventure, I’m rewinding the blog to showcase some older posts.  So don’t freak out if you see some older post about being pregnant or whatever because giiiiiiirl I am not pregnant.) So many rules were slapped into place immediately upon diagnosis, with…

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Rewind: Ordinary but Extraordinary

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Online Community, Exercise & Fitness, Psychosocial Support, Real Life Diabetes By September 21, 2018 Tags: , , , , , 5 Comments

(I’m traveling this week, with limited access and desire to visit the Internet, but while I’m on an adventure, I’m rewinding the blog to showcase some older posts.  So don’t freak out if you see some older post about being pregnant or whatever because giiiiiiirl I am not pregnant.) I will admit right here, right now that I admire people…

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Rewind: These Boots Were Made for Talking

Diabetes Advocacy, Diabetes and Emotions, Diabetes and Family, Diabetes Community, Psychosocial Support By September 20, 2018 Tags: , , , , , 1 Comment

(I’m traveling this week, with limited access and desire to visit the Internet, but while I’m on an adventure, I’m rewinding the blog to showcase some older posts.  So don’t freak out if you see some older post about being pregnant or whatever because giiiiiiirl I am not pregnant.) At the airport two weeks ago, I was coming home from…

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Friendo

Diabetes Advocacy, Healthcare, Mental Health, Real Life Diabetes By September 10, 2018 Tags: , , , , , 5 Comments

friendo (n.) – An endocrinologist who brings expertise, experience, and engages with a high level of empathy.  ex.  “My endocrinologist is kind of my friend.  And my endo.  They’re my friendo.” Last week, I had my quarterly visit with my endocrinologist. Our clinician/patient relationship is still in its fledgling stage, and we’re definitely still getting to know the pros and…

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Diabetes Club

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Online Community By July 24, 2018 Tags: , , 5 Comments

1st Rule: You do NOT  talk about diabetes. 2nd Rule: … just kidding, of course you can talk about diabetes. 3rd Rule: If someone says “I’m low” or goes limp, grab some Glucolift. 4th Rule: Only two CGM transmitters to an order. 5th Rule: One snack at a time. 6th Rule: No insulin, no bolus. 7th Rule: Diabetes will go on…

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Not Advocacy

Diabetes Advocacy, No Diabetes By July 20, 2018 9 Comments

“What is that, on your arm?” Attempting to embrace the bathroom advocacy, I told the lady I have type 1 diabetes.  “And this is an insulin pump.  This part of the device holds the insulin,” – point to the black pump clipped to my bathing suit strap – “and the insulin goes into my body here.  It’s a nice change…

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