Browsing Tag

type 1 diabetes

Talking with Patients and Purpose

SUM in Other Places By April 25, 2018 Tags: , , , , No Comments

My advice when it comes to patient advocacy? “Remember the voice that doesn’t have the chance to raise itself.” Talking about patients, storytelling, and our responsibility as “advocates” with the team at Patients and Purpose. You might also like: These Boots Were Made For Talking. Type 1 Origins: Talking Comic Books with Partha Kar. Talking About Diabetes Burnout. Talking About…

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Victoza for T1D: A Few Weeks In.

Blood Sugars, Diabetes Products, Psychosocial Support, Real Life Diabetes By April 24, 2018 Tags: , , , , 8 Comments

I’m on my fourth week of Victoza.  Here’s the good, the bad, and the reminder that none of this even remotely resembles medical advice for the love of Loopy. THE GOOD: My numbers have been excellent.  Truly excellent.  And I’m the last person who is going to post perfect CGM graphs all the live long day because I have always struggled…

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A Look at Body Posi Betes

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Complications, Diabetes Online Community, Psychosocial Support, Real Life Diabetes By April 23, 2018 Tags: , , , , 2 Comments

A few years ago, I had the pleasure of meeting Georgie Peters when I was visiting Australia.  This woman is a force – a combination of positivity and raw honesty, writing about her lived experience with type 1 diabetes.  She’s written here before and today she’s visiting SixUntilMe to talk about her latest social movement of combining body positivity and diabetes….

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Visualizing Diabetes

Diabetes and Emotions, Diabetes Complications, Healthcare, Mental Health, Psychosocial Support, Real Life Diabetes By April 19, 2018 Tags: , , , , 3 Comments

Last week, I had the pleasure of connecting with Katie McCurdy through my work at The Patient Revolution, and she and I talked about her health visualization tool, Pictal.  (That interview can be found on the Patient Revolution blog.) From the article: “Pictal is a set of worksheets that patients can use to create a health history timeline and show…

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CGM: Cat Glucose Monitor?

Blood Sugars, Dexcom, Real Life Diabetes By April 12, 2018 Tags: , , , , , , 5 Comments

This post is from 8 years ago, originally published in 2010 on dLife as part of my column at Generation D.  (Man, this post is old.  This is before Birdy.)  Abby was the best cat ever (sorry, Siah), and her ability to sniff out a low blood sugar is only bested by my Dexcom.  Because I totally had a CGM…

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I Can’t Feel My Face

Blood Sugars By April 10, 2018 Tags: , , , 26 Comments

BEEP BEEP BEEP!! Insistent noise, drowned out only slightly by the sound of two toddlers dunking basketballs on each other in the living room. “Do you have any juice?” My friend reaches into her fridge and pulls out a 1/4 full carton of lemonade.  “Would this work?” She and I know one another, but we’re fledgling friends.  Still in that…

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The One About Steel Magnolias

Diabetes and Emotions, Diabetes and Family, Diabetic Mommy, Infertility and Pregnancy, Real Life Diabetes By April 9, 2018 Tags: , , , , 11 Comments

I remember sitting down to watch this movie, not knowing how it ended. “How scary can it be?  Julia Roberts has such a big laugh.  Mom likes Sally Field.  Diabetes in it, too?  That’s cool.  Let’s make some popcorn.” record scratch Narrator’s voice:  Yeah, that was me, around the age of 10.  I didn’t know anything about the movie Steel…

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Ramble On

Diabetes Online Community, No Diabetes, Real Life Diabetes, Traveling By April 3, 2018 Tags: , , , , 7 Comments

Bullet points?  Yep. Easter came and went.  We colored a few dozen eggs and now everyone in my home will be eating hard boiled eggs until we’re all old and wrinkly. Which I am becoming.  My daughter asked me if I was mad, and I said no, and she said, “Oh good.  Your forehead looked angry so I wanted to…

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Great Job! Stellar! You’re a Star!

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Healthcare, Real Life Diabetes By March 16, 2018 Tags: , , , 11 Comments

Man, all of this.  The big mountain that is “the healthcare system?”  That thing seems gigantic. But small changes make a big difference.  I think about the stickers I used to get on my school papers back in grade school.  The happy, bright yellow star grinning its toothless grin at me, delighted by my spelling homework.  It seems goofy to…

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That’s Not My Pancreas!

Diabetes and Family, Diabetes Poetry, Psychosocial Support, Real Life Diabetes By February 27, 2018 Tags: , , , 4 Comments

My home is awash with children’s books, and I keep making the diabetes versions in my head. It’s a hard habit to break. Which brings me to today’s post, a parody of the “That’s Not My …” series of books that have taken over the little Guy’s bookshelf.   This one is called “That’s Not My Pancreas!!”      …

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