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Posts tagged ‘patient power’

Verio Sync: Unanticipated Glitch.

The Verio Sync meter and I have been happy friends for a few years now, starting back in late 2013.  (Here’s that first post, with disclosures aplenty. Second impressions are here.)  

I honestly can’t figure out why more people aren’t using this meter.  It’s fast, it’s accurate, and the Reveal app is awesome.  This meter has been the best fit for me in the last few years, which is a big statement because I historically revolt against excessive change when it comes to diabetes tech.

Bottom line:  I like this meter.  Quite a bit.

Footnote on bottom line:  Until last week, when I tried to upload my information to the app, which had been recently  updated on my phone, which meant the app needed all of my information again, only to realize that the PIN had worn off my meter and I couldn’t enter it into the app.

Holy run-on sentence, but the end result is no PIN?  No upload.  No upload?  No data access.

Pain in the ass, that is.  Had I known, I would not have updated the app on my phone.  Had I known, I would have written the PIN down on a piece of paper.

But wait a second … I was just at Joslin with my endocrinologist, and she was able to plug my meter into her computer and upload my data.  No PIN, no hassle.  She had some magical data system that siphoned my health data into their files.  How come my doctor can access my data but I can’t?

The guy who talked to me for ages on the One Touch customer service line was very nice, and very helpful, only ultimately couldn’t do anything other than offer to send me a new meter (which still has not arrived).

“You’ll receive a shipping label to return the old meter,”  he mentioned.

“Can I wait a few weeks to return it?  I want to see if my doctor can get the data off that meter before I send it back.  I want those numbers, if I can get them,” I asked.

“Sure thing.  Not a problem.”

So he was very nice.  But the underlying problem here is that the data on that meter is mine.  My glucose data, generated every morning, every time I eat, and every night before bed.  It’s the specifics of my diabetes day, dictating the content of my dinner plate and influencing the integrity of my CGM sensor.  That information is mine.  And yet my doctor has the key to open access but I do not.  She has a “pro” account but I’m managing my disease daily, and yet I can’t access my own data from my own machine.

This doesn’t make sense. It’s my data! This problem can be fixed once patients are given the tools to manage their condition, instead of information being held behind a wall of medical privilege. You know … once we’re viewed as “pros,” too.

UPDATE: Lifescan called me a few minutes ago. Here’s the rundown:

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