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Joslin Clinic

Body Wars.

Blood Sugars, Healthcare, Real Life Diabetes By May 2, 2017 Tags: , , , , , , , 8 Comments

The Good:  Birdy’s seventh birthday party went off without a hitch.  The cake was made, the guests were fed, the bouncy castle was a source of glee for kids and adults alike, and my daughter spent the day red-faced from jumping, laughing with her friends, and covered in cake frosting.  Cannot ask for more than that. The Bad:  On Friday…

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Just a Job.

Diabetes Advocacy, Healthcare, Real Life Diabetes By July 25, 2016 Tags: , , , , 2 Comments

“I’m just a medical assistant, so my job isn’t as important,” she said as she took my blood pressure and entered the data into my digital file. “Seriously?  How can you say that?  You probably have more face-to-face moments with patients than the doctors do.  You set the tone for the appointment.  What you do matters.”  I paused.  “Take my…

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Reimbursements.

Healthcare By June 9, 2016 Tags: , , , , , , , , 8 Comments

“I’m not positive I can make it in for that appointment, since I’m traveling for work for the majority of those weeks.  Would it be possible for me to send my device data by email and have you review it for any issues?” Without pausing, my endo said, “Yes, we can do that.” We’ve seen a lot of one another…

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Diabetes Blog Week: The Healthcare Experience.

Healthcare By May 19, 2016 Tags: , , , , 5 Comments

The Healthcare Experience:  Most people who live with a chronic illness end up with a lot of experience when it comes to dealing with healthcare. How would you improve or change your healthcare experience? What would you like to see happening during medical visits with your healthcare team? How about when dealing with your health insurance companies? What’s your Healthcare…

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Healthcare Hamster Wheel.

Healthcare, Infertility and Pregnancy, Psychosocial Support, Real Life Diabetes By March 28, 2016 Tags: , , , 48 Comments

For the last few years, doctor’s appointments have felt like an exercise in “checking the boxes.”  Yeah, I called and made an appointment with my endocrinologist.  Yeah, I had my A1C drawn and the result was either given to me that day or a week later by way of calling the clinic.  Sure, I get weighed and we download my…

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What Improves My Healthcare Experience.

Healthcare By January 26, 2016 Tags: , , , , , , , , 15 Comments

What would improve the healthcare experience for me, as a patient with multiple health conditions?  I’m glad you asked.  (You did actually ask, right?)  A few things would help move things forward.  Here’s a thought-purging because I happened to have coffee: Billing processes that make sense.  For example, I received a refund for mail order pharmacy overpayment in the same…

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Pre-Bolusing for Snacks.

Blood Sugars, Diet and Food, Insulin, Pumping Insulin By September 3, 2014 Tags: , , , , , , , , , , 9 Comments

“Do you pre-bolus for your meals?” “I do.”  (I was happy to answer this question because I actually do pre-bolus.  Pre-bolusing is my A1C’s saving grace.) “Okay, that’s great.”  She made a few notes in my chart.  “How about for snacks?  Do you pre-bolus for those?” “I … um, nope.  I am horrible at pre-bolusing for snacks.” Unfortunately, hat is…

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Looking in the Windows.

Diabetes and Emotions, Diabetes Complications, Healthcare, Real Life Diabetes By May 21, 2014 Tags: , , , , 14 Comments

Following through on these eye doctor appointments at Joslin’s eye clinic usually means carving out 5+ hours in the day. Even though Rhode Island is assumed to have a short commute to Boston proper, with traffic it can take two hours to get into the city.  Which means that for a 1.30 pm appointment, we had to leave the house…

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Lies.

Diabetes and Emotions, Diabetes Memories, Healthcare, Psychosocial Support, Real Life Diabetes By May 8, 2014 Tags: , , , , , 14 Comments

I used to lie to my pediatric endocrinologist.  (Not proud of this.) She’d sit at her desk and look through the logbook with all my blood sugars mapped out (this was back in the day when my mom and I collaborated on logging my blood sugars, which meant that they were often accounted for), sometimes with a furrowed brow. “So…

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