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Posts tagged ‘FDA’

Friday Six: But Not On Friday.

SUM stuff from around the Internet:

“The latest in this trend is the meme showing a fat little girl titled ‘Lil Diabeetus snacks’ as a take-off to Little Debbie Snacks.  It’s being bandied about on FaceBook as ‘cute’ and ‘funny’; an appropriate name change.  Is it funny?  I don’t think so.”  Kate weighs in on the Facebook meme.

Tuesday’s #dblogcheck was a community success, and seems to have woken up many of the sleeping bears (if you want to picture blog commenters as sleeping bears, which I do, because that’s adorable).  Check out Chris Snider’s excellet Storify recap of many of the blog posts and be sure to say hello on some new and old blog favorites.

Wendy’s daughter has gone to Clara Barton Camp … and she’s also gone BIONIC.

Athletes inspire kids with diabetes at Friends for Life Conference” is the title of this video, but I’m going to assert that adults are pretty inspired by Charlie and Jay, too.

An eighth grader took She Still Smiles and made it into something really, really cool.  Read about Talia’s project here.

“Her former team dismissed her for having diabetes. Her coach and teammates stood by her and struck out on their own.”  Read more about Rebecca Young here, and consider supporting her!

I sent emails to my representatives.  Now it’s your turn.

The “Fakeabetes” Challenge – pretending to be a PWD for the day!  Read more from Kim and Whitney on this day with diabetes.

This post from Meri is a call-to-arms, and I’m ready.  “The Movement Has Begun.”

JDRF appoints Derek Rapp as new President & CEO – here’s more information on this change in leadership from the mothership itself, and a post about the changing leadership of ADA and JDRF on Diabetes Mine.

Why Should Diabetes Advocates Enter This Food Fight?”  Hope Warshaw explains.

“ADA and others have sent in their comments, but the FDA needs to hear our individual voices as advocates.”  You can give the FDA your thoughts on the proposed Nutrition Fact Label, and you have until August 1st to do so.  More on the how, and why, at Diabetes Advocates.

The FDA will host an online conversation (“A Virtual Town Hall”) for people with diabetes on November 3.  And, according to the crew at diaTribe, they want to hear from you!  Click this link for more information and the link to email diaTribe, and you can also join the conversation on Twitter using the #DOCasksFDA hashtag.

My favorite part of this video?  “I can read.”  Love, love, love.

5,000 Names Needed.

There’s a petition circulating to add diabetes as a disease topic to be discussed over the next five years.  Diabetes, despite the number of people touched by it, isn’t on the list.

Yet. 

If we can gain 5,000 signatures on this petition, we have a better chance of adding diabetes to the discussion docket, helping improve the lives of those we love.  It takes about fifteen seconds to sign the petition.  Do you have fifteen seconds to spare to help raise the voice of the diabetes community?

Yeah you do.

“The Food and Drug Administration has begun to hold a series of patient meetings to gain a better understanding of specific diseases. Over the next five years, the agency plans to conduct at least 20 such meetings on conditions ranging from Chronic Fatigue Syndrome to Narcolepsy to Irritable Bowel Syndrome.

But not diabetes.

That is unacceptable.

Four “slots” remain open (view the current list), and we want the FDA to add diabetes to its meeting docket for 2013.

According to the American Diabetes Association, nearly 26 million Americans have either type 1 or type 2 diabetes,and an additional 79 million have prediabetes. Those numbers are also increasing each year – the CDC estimates that if current trends continue, one in three US adults will have diabetes by 2050.

No one disputes that diabetes is one of America’s – and the world’s – most serious health epidemics. In 2012, more than one in five total US healthcare dollars was spent on diabetes, totaling $245 billion, and the government covered 62% of those costs, meaning everyone is paying for this epidemic. Despite growing needs, research dollars have also leveled off.

New therapies need to be investigated, tested, and brought to market, and as part of that process, the FDA must understand the daily challenges that patients face.

We need to tell our story to the FDA: about the need for accurate strips, more physiologic insulin, a broader range of drugs, and the Artificial Pancreas.

Our voices need to be heard.

Please sign this petition to urge the FDA to sponsor a patient meeting focused on diabetes – and the sooner, the better.

Thank you very much.”

Roulette.

I test my blood sugars between 8 – 15 times per day, depending on trends, travel, exercise, food, and other variables.  I correct highs.  I treat lows.  I make a lot of decisions based on these numbers, and it scares the hell out of me to think that they might not be right.

Food for thought.

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