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Posts tagged ‘diabetes poetry’

Looking Back: Everybody Beeps

Revisiting some diabetes poetry this week while traveling.  This one is a take on R.E.M.’s Everybody Hurts, only with an alarm fatigue component …

  *   *   *

(With deep, deep apologies to R.E.M. and Everybody Hurts)

Everybody Beeps

When your day is long
And the night, the night is yours for sleep.
When you tuck yourself in bed
For some rest … well hang on

Don’t close your tired eyes
Cause you wear a device
And everybody beeps … sometimes.

Sometimes reservoirs are low
And need to be refilled.
So you get up out of bed (set off, prime on)
Remove the older site (prime on)
You fill with what you need
For three days … well hang on

Everybody beeps
Takes comfort in the tech
Everybody beeps
Don’t throw your pump, oh no
Don’t throw your CGM
You feel like you’re alone?
No, no, no … you’re not alone.

If your islets are a mess
And you’re doing the best you can
When you think you’ve had too much
Of the beeps, well hang on

Well everybody beeps, sometimes.
But you are not alone.
Community is here.
All the time.
We’re here all the time.
All the time.

So hold on, hold on
Hold on, hold on, hold on, hold on, hold on, hold on
Everybody beeps

Diabetes Blog Week: The Other Half of Diabetes.

The Other Half of Diabetes:  We think a lot about the physical component of diabetes, but the mental component is just as significant. How does diabetes affect you or your loved one mentally or emotionally? How have you learned to deal with the mental aspect of the condition? Any tips, positive phrases, mantras, or ideas to share on getting out of a diabetes funk? (If you are a caregiver to a person with diabetes, write about yourself or your loved one or both!)

(And for more on the topics of Diabetes Blog Week 2016, click here.)

“Just don’t eat sugar.”  “Take your pills.”
“Count your carbs.”  “Avoid most thrills.
“Be prepared.” ” Plan ahead.”

But this disease
Is in my head.

I can’t split up the thoughts around
My mental health and body sound.
Impossible to draw a line
Between “I’m sick” and feeling fine.
Just take my shot?  And avoid stress?
Beware of cake?  Test, don’t guess?
The list of things disease requires
Realigns my needs around desires.

“I need juice.”
“It might cause strife.”
But sometimes juice can save my life.

It’s hard to share
How much I see.
In every test,
Mortality.

Was seven then, when it arrived.
And since that day, I’ve stayed alive.
But not because
I’ve not had pie.
Or “just took shots.”
I try.
And try.

The mental health
I have achieved,
I fight for – harder? –
Than A1C.

The demands put on a chronic life
Exceed “just take your shot.”
We live beyond, we live out loud.
Mental health not an afterthought.

It’s not a disease where you just “just.”
It’s more than simply “do.”
But how I manage mental health
Will help me make it through.

Kitchen Poetry Slam.

Revisiting an older poetry post, recorded in my kitchen with a healthy dose of a Rhode Island accent.

 

Because we are resilient, damn it.

 

 

Looking Back (and Forward): Diabetes Haiku.

During this week’s #DSMA chat, a sidebar discussion about diabetes haiku broke out, and in a matter of seventeen syllables, things took a poetic term.

I was reminded of a post from a few years ago about insulin haiku that still rings true because I’m clearly still hooked on the stuff:

Such a small bottle
with such a huge influence
on my whole damn life.

In a carefully orchestrated combination of syllables, what would your diabetes haiku say?

If I Were Ever …

If I were ever Gretel, finding home would be a snap
A trail of bloody test strips mark my way across a map.

If I were ever Batman and in need of a grappling hook,
The most-used lancet in my bag would do the trick to catch the crook.

If I were ever Superman, and lows my kryptonite,
A jar of cherry Glucolift would save me from my plight.

If I were ever Katniss, my District would go “Whoa,”
Because The Hunger Games have nothing on a meter reading “LOW.”

If I were ever Mario, I’d find all my 1 Ups
At the bottom of a juicebox or a kid’s juice sippy cup.

If I were ever Vader, I’d embrace the ol’ Dark Side
Because in robes like that it’s easy to make my Dexcom sensor hide.

If I were ever Walter White, I’d wear diabetic socks
So only my feet would have the ‘betes while I’d be the one who knocks.

If I were ever Pinkie Pie, there’d be lows and I’d be in it
Because that little tweaky pony can’t sit still for a hot minute.

If I were ever Legolas, and had a midnight hypo fright,
I’d wake up with food in my bed. “Crumbs have been spilled this night.”

If I were ever Aquaman, I’d still workout in ocean gyms
Because my insulin pump is waterproof, and still works while I swim.

If I were ever Dumbledore, I’d be at peace with D
Because it matters not my pancreas, but “what I grow to be.”

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