Browsing Tag

children with diabetes

An Inkling

Diabetes and Emotions, Diabetes and Family By August 8, 2018 Tags: , , , , 9 Comments

For several weeks this summer, my daughter played in a competitive softball league. The whole tournament had my concern levels amped a little bit.  Was she getting enough sleep?  If not, was that why she was impossible to drag out of bed for 9 am games?  It was so hot.  She had to wear a lot of sunscreen.  When they…

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Recipe for FFL.

Diabetes Advocacy, Diabetes Community, Psychosocial Support, Real Life Diabetes By July 12, 2017 Tags: , , , , , , , , 9 Comments

Want to make Friends for Life?  Here’s how: Ingredients: 1 large Coronado Spring Millions of humidity molecules 3,000 family members who live with diabetes 1,000 (estimated) Mickey Mouse waffles 22 bowls of glucose tabs Dozens of supportive siblings Hundreds of orange bracelets Hundreds of green bracelets Several buffet tables of carb-counted food Add sports central, support sessions, and learning workshops to…

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Guest Post: What FFL Was Like as a First Timer.

Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes, Relationships By May 26, 2017 Tags: , , , , , 2 Comments

Wondering what it’s like to be surrounded by thousands of people affected by diabetes?  Today, my fellow Friends for Life faculty member and longtime family friend, Scott Johnson, takes over SUM to share his experience as a first-timer at FFL back in 2010.   Scott was diagnosed with type 1 diabetes back in 1980 and has been blogging about his…

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Guest Post: My Magical Disney Moment.

Diabetes and Emotions, Diabetes Community, Diabetes Online Community, Psychosocial Support By March 31, 2017 Tags: , , , , , , , , , 4 Comments

The power of peer-to-peer connections is not lost on the diabetes community.  While insulin remains our strongest medication tool, our mental and emotional health is nourished by connecting with like-pancreased people, making any diabetes burden that much lighter. One of the most amazing peer support cultures in the diabetes community is found at Children with Diabetes’ Friends for Life conference….

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Perspectives on Diabetes: Why Children with Diabetes Matters.

Diabetes Advocacy, Diabetes and Emotions, Diabetes and Family, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes, Relationships By May 12, 2016 Tags: , , , , , , , 5 Comments

People ask me why this conference matters, why the organization matters, and it’s sometimes hard to sum up.  What’s so great about sitting in a room full of people with diabetes?  Isn’t it like surrounding yourself with a reminder of something that is a pain in the butt (diabetes)?  Doesn’t it suck to talk about diabetes all the time? DUDE….

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Flick of the Wrist.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes, Traveling, Uncategorized By July 13, 2015 Tags: , , , , , , , 15 Comments

In the interests of getting through TSA in Orlando as quickly as possible and making my way over to my gate so I could find some iced coffee and a banana, I disconnected my insulin pump and put it through the x-ray machine, caring very little if it melted in the transaction because I was melting in the transaction. The…

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So Many Things!

Diabetes Advocacy, Diabetes Community, Diabetes Memories, Diabetes Online Community, Diabetes Videos, Psychosocial Support, Real Life Diabetes, The Friday Six By September 10, 2014 Tags: , , , , , , , , , No Comments

A Friday Six on a Wednesday!  Because why the hell not. The FitBit obsession. Renza talks about the messaging of diabetes, and what we can do to get it right. Here is some damn sneaky research. Seb is still running. And I’m still supporting the hell out of him, because he’s incredibly dedicated. You can still support him, too. I…

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YCDT: Encouraging Independence.

Diabetes Online Community, Diabetes Videos, Psychosocial Support By April 1, 2014 Tags: , , , No Comments

There’s an excellent, and inspiring, new You Can Do This video centered on parents helping their children with diabetes gain independence. From the YCDT site:  “Independence in any aspect of a teen’s life can be a double-edged sword for parents – while parents want their children to be capable, that same capability is the gateway to their separation and evolution…

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Hope vs. Fear: The Video Edition.

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Diabetes Videos By November 4, 2013 Tags: , , , , , , , , , , , , , 9 Comments

A million years ago (in Internet time, I think that translates to about eleven months ago), I had the opportunity to work with the team at Novo Nordisk and a few hyper-local Rhode Island/Massachusetts diabetes advocates to create a series of videos.  Our focus was on how hope can be a more powerful motivator than fear, in terms of staying…

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