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Posts from the ‘Traveling’ Category

The Friday Six: Catching Up.

Hi!  I still write here.  I write a blog about things here.  This is my things blog, with diabetes stuff and other times not so much diabetes stuff.  Welcome to it.  (My brain is not entirely tuned in this morning.  Working on it.)  Coffee is helping, but it may take a few days to kick in.

Yesterday was a long day of traveling and I can say with certainty that my five year old kid is managing her jet lag better than I am.  (And we, as a family, were all up at 5 am and confusingly chipper about it.)  Thankfully, I really love to fly.

The wifi access while we were traveling was majorly woofy, allowing me to connect for brief minutes to let emails load and then not letting me reply to them, so my inbox is a muddled mess of things I’ve read and spazzed out about but haven’t had a chance to reply to yet. I missed a lot of really excellent Diabetes Blog Week posts.

Like this one.

And this one (the photo, once you see it, is un-see-able)

This one as well.

And this, about the personification of Sugar.

Oh how I loved this one, tooAnd this.

But this one was my favorite of all.

A huge THANK YOU to Karen for bringing the DOC together for the sixth year running.  I love Diabetes Blog Week, and she works so hard to keep it fresh, engaging, organic, and inviting.  You rock, Karen.  (#meowmeowmeow)

And in non-Diabetes Blog Week linky sort of things, I wanted to make sure I share, and reshare, the PLAID Journal.  Martin will be contributing a little Q&A here about the inception and development of his journal in the coming weeks, but in lieu of that you can read his post about it here.  His work is amazing, and as a contributor and a member of his editorial board, I am really proud to be part of it.  You can view issue 1 here.

Here’s a great update on glucose-responsive insulin.

I learned quite a bit about the type 2 experience from Brian’s post.

And a big CONGRATULATIONS to the lovely Dayle and Chris!!!

Oh, some photos from our trip?  I have a ton.

I feel like I missed a lot of work in the last week, with spotty Internet access.  Woofy wifi is not my favorite, but I can’t complain too much because the distractions of traveling were worth it.  Happy to have gone, but very happy to be home.

 

Diabetes on the Red Carpet … Ish.

For Chris’s Sea of Trees premiere this past weekend at the Cannes Film Festival, diabetes was almost the furthest thing from my mind because we were so damn excited about the event.

Diabetes came into play for a brief moment when I was looking for a dress. I tried to adopt a “dress first, diabetes second” philosophy, picking a dress that felt comfortable and pretty without caring if my insulin pump fit into it. After spending some time looking for and trying on a bunch of dresses (a post I’ll never write, because I made the mistake of looking for formal ball gowns in the same week that girls were shopping for their prom dresses, leaving the ladies that worked at the dress shops very confused about why this older woman was coming in amongst the sea of teenyboppers and leaving me just as confused about my place in this world of women … not my best moments), I settled on a navy blue dress that hit the marks for fancy and comfortable without making me feel like I was trying to be someone I was not. Trouble was, my insulin pump did not fit into the dress easily. Or at all. Instead, it felt once again like I was clomping around with a toaster clipped to me. Which is why I decided to go on injections for the night and not wear my pump. Going MDI meant I needed my CGM data more than ever, though, so I kept my Dexcom sensor on my lower back, underneath some of the lace overlay for the dress, which perfectly masked the subtle bulge of the transmitter. (Hee hee … bulge.)

Thankfully, going back to injections and monitoring via Dexcom receiver wasn’t too tricky because my insulin pens fit easily into the glittery clutch I had for the night, as did a tube of Glucolift. I decided not to carry a glucose meter for the night because it was too bulky. Chris tucked my Dexcom receiver into the inside pocket of his tuxedo (“You turned it to vibrate, right?” “Yes, I promise you won’t go off during your own movie.”) I deliberately ran at the 160 – 180 range so I wouldn’t go so low as to need a snack or so high as to need to dash to the bathroom.

Aside from checking my Dexcom a few times before we arrived at the event, diabetes took a wicked back seat to the whole experience. Instead, we were able to focus on the surreal aspects of the event itself.

Cannes SEA OF TREES red carpet

A photo posted by Kerri Sparling (@sixuntilme) on


CSparl on the red carpet

A photo posted by Kerri Sparling (@sixuntilme) on

After party for SEA OF TREES at the Cannes Film Festival.

A photo posted by Kerri Sparling (@sixuntilme) on

After a grumbly critical review the day before, it was amazing to watch the filmmakers receive a two and a half minute standing ovation after the screening. I have always felt proud of Chris and I recognize his tremendous talent as a writer (insert all my bias here), but it was so nice to hear from people who felt the same way, both in his industry and in our diabetes community alike. We are very grateful for everyone’s support, and it means the world to me to know our DOC family supports one another in diabetes-related ventures and decidedly non-diabetes adventures.

Thanks for being there on this insanely odd, hard-earned, and exciting journey, you guys. I’m forever grateful.

Stress!!!! and Diabetes.

Do your blood sugars respond to food?  Of course.  How about to insulin?  And exercise?  A big “hell yes” to those, too.  Food, insulin, and exercise have tangible influence on my blood sugar levels.  But one influencer that I don’t often take into account is stress … which is a ridiculous variable for me to ignore because stress can make my blood sugars leap over tall basal rates in a single bound.

Oh look – a video!

How does stress change the mapping of your blood sugars?

McDave from the Plane.

“Were you saving these seats for us?”

I travel regularly for work, and because I’m usually on the road without my family, I end up in various discussions with strangers to fill the time.  Since my days as a breakfast waitress in college, I’ve always enjoyed those snippets of single-serving conversations.  Airplane travel can offer insight at 30,000 feet (sometimes from the pilot).

“Yes.  I’ve been waiting for you guys for hours,” I replied, standing up so that the couple could join me in row 9.

This was my introduction to Dave and his lovely wife.  Throughout the course of the flight from Orlando back up to Providence yesterday, I spent some quality time talking with these two and over-sharing to a frightening degree.

We talked about flying, and how none of us cared for it.  We talked about the Patriots and how mother  (and his wife) are hardcore fans.  We talked about how his daughter has been an extra in several films and TV shows.  And we talked a lot about food.  After a discussion about what I do for work and what brought me into the diabetes space (see also:  diagnosed 28 years ago, felt alone, founded a blog, found some friends), Dave admitted that his own diet could use a shift in priorities.

“We could eat better,” he said.

“We could eat a LOT better,” his wife said from the window seat, smiling ruefully.

“Everyone could eat better, but our fast-food society doesn’t exactly make it easy.  You have to go above and beyond to make sure you aren’t eating junk.  Junk is mainstream!  Think about how screwed up our perception of ‘breakfast’ is; we dump sugary syrup onto pastry-esque pancakes and call it a healthy meal.  That’s not a meal … it’s dessert!”  They nodded, and I realized I was on a mile-high soapbox.  “I’m so sorry.  Food stuff makes me ranty sometimes.  Like when I think about the kinds of foods marketed towards my daughter.  Chicken nuggets and french fries and sugar cererals.  Stuff is gross.”

“So she’s never had a Happy Meal from McDonald’s?” asked Dave, half mocking me, half actually asking.

“She’s had McDonald’s food two or three times in her life, but that’s it.  And no, she’s never had a Happy Meal.”

He laughed.  “You’re missing the chance to make her happy!  But not the food – I get that you don’t want to give her the food.  I used to make my own Happy Meals for my daughters.  I’d take a toy that they hadn’t played with in ages and pack it in with their lunch.  Instant Happy Meal!”

“That’s a good idea.  I like that.”

“Yeah.  Now you can write about it in your blog, right?  I want to be in there.  People would want to read more about me.”

His comments made me laugh.  “Sure.  I’ll write about you.  But the blog post has to have some kind of resolution, right?  Where we both promise to make changes and then we hold one another accountable?  Or is that taking it too far?” I asked him.

Dave thought for a minute.  “I can do that.  Listen, my wife and I will make a change.  We promise to eat something green with every meal.  A vegetable, like spinach or broccoli or squash.  Except that squash isn’t green, so we’ll have to be flexible with the color requirement.  But a vegetable with every meal.”  He made a fist and jabbed it towards the air with conviction.  “A vegetable with every meal!”

“And I promise to make my kid a happy meal, like the one you described.”

He handed me his business card and I promised to send him a link to the post once it was live.  (Hi, Dave!)  The plane landed and we all went our separate ways, resolute in our decision to make positive changes.

This morning, as I packed Birdy’s lunch for preschool, I put one of her small, forgotten toys in the lunch bag, alongside her healthy food options (and a crappy drawing of Loopy drinking a mug of steaming coffee).  I wondered what kind of vegetable Dave managed to work into his breakfast that morning, and smiled.

What’s the point of going through life without ever making eye contact, or making a connection?  Single-serving or not, I’m better for having sat next to Dave.

Missing Meter.

The initial search through my bag was kind of nonchalant.  “Where is my meter bag?”  Bright pink with a smiling bear on one side, it’s a hard bag to misplace, even in the seemingly unending abyss of my purse.

But the flurry of leaving the house that morning to catch an early flight left me mentally snowed-in.  I brought it with me, right?  I know I checked my blood sugar that morning, and I had a clear memory (didn’t I?) of pricking my finger on the plane after we had reached cruising altitude, so where the hell was my glucose meter?  I had it just a few hours ago?

“Where is my glucose meter?”

The search went from casual to frantic in a matter of minutes, when I realized that my meter bag was nowhere to be found.  Not in my suitcase, not in my book bag, not in the rental car.  No memory of where the hell it could be, and all the moments I’ve ever checked my blood sugar on a plane were melting together.  Did that happen today, or had I been working off info from my CGM graph all day long?

Just as Chris and I confirmed that my meter was, indeed, MIA, my Dexcom sensor alarm went off, warning me that my sensor was going to die in two hours.  And the “low battery” alarm went off a few minutes later on my pump, reminding me that it needed a new battery.

“Everything is breaking and I’m an idiot.  I’ve never, ever left my glucose meter behind before.  Ever!  On so many of my trips, I’ve packed an extra meter, but even on the trips where I didn’t, I still didn’t lose my meter!  I’ve never lost my glucose meter before, in like three decades with diabetes.”  I was rambling, but frustrated.  The device I needed most to properly dose the drug I needed most?  Missing.  Data crucial to my safe survival?  Inaccessible without purchasing a backup system.

(And, as luck would have it, I had just refilled my meter bag with a brand new bottle of 50 test strips and a fresh AA battery for my pump.  Reminded me of the time I replaced my car’s exhaust system, filed the tank up with gas, and then proceeded to total the car.)

Thankfully, finding a pharmacy that sold the brand of glucose meter I had strips at home for was easy enough.  (I didn’t want to have to replace the meter, again, when I got home.)  And thankfully, we have the means to purchase a meter and a bottle of test strips without insurance coverage.  But holy shit, I was shocked to see the sticker price for a bottle of 25 test strips.

“Forty five dollars?  For 25 test strips?  That’s bananas!”  I said the pharmacist.  “How do people afford these things without insurance coverage?”

She shrugged.  “They don’t.  They buy the CVS brand and the strips that go with that one.  Most people don’t pay for the top tier strips out of pocket.”

“But the accuracy is …”

“It’s what it is,” she said.  She finished ringing up the meter and strips (and AA batteries for the pump), bringing my grand total up over $100.  For a meter, 25 test strips, and batteries.

“This is the price for maintenance,” I said to Chris.  “For the stuff that keeps me healthy.  I can’t imagine what the cost would be to do more than “maintain.’”

After reuniting with a glucose meter, our trip continued on without issue.  But throughout the rest of the week, I thought about having access, and having the financial means to replace things I accidentally lose, and being grateful.  I thought about the Spare a Rose campaign and how far $5 goes.

This holiday season, I’m more grateful than ever for more things than I realized.

(And when we came home on Friday evening and I went into the bathroom, I saw my glucose meter sitting on the bathroom counter, halfway hidden underneath a hand towel.  Never again!)

 

Airport Connections.

The plane from Cincinnati to Washington, DC was a petite one, leaving little room for carry-on luggage and even less for calm.  After ferreting out my medication bag from my suitcase, I checked it at the gate and ended up second-to-last to board the plane.

“Smells like … something, doesn’t it?”  The gentleman behind me asked casually.  I wasn’t sure if he was addressing me, but I answered anyway.

“It does.  Like a ham sandwich.  Or Bad Thanksgiving,” I replied, noticing that the plane had a “stale cold cuts” smell to it.

We boarded the small plane and took our seats at the back of it.  Turns out the scent-sitive man who boarded behind me was also my seatmate.

We chatted briefly for a few moments about what we did for work – he worked for a surgical medical device company, I told him I was a writer – and then the discussion turned specifically to medical devices.

“I’m familiar, to a certain extent, with some medical devices.  I wear a few for diabetes management,” I said.  “Going through TSA is always interesting.”

He looked at me for a minute.  “Diabetes?  Type 1?”

“Yes.  Since I was seven years old.”

“My daughter is nine.  She also has type 1.”

And over the course of our flight to Washington, DC on the plane that smelled like spoiled lunch, this kind man and I compared notes on life with type 1 diabetes from our different perspectives.  It wasn’t a life-changing moment or a pivotal interaction, but served to confirm once again, how diabetes becomes a common thread that brings strangers together.

Even on a stinky plane.

 

Pros and Cons of Going Gluten-Free. (and a brief lament about the smooshed banana)

It’s been about seven weeks on this “no way, gluten!” lifestyle, and I’m starting to find my footing.  But there are still many pros and cons to balance, so I’m listing them here.  That way, I can look back at this post in a few months and be all, “Pfffft.  Whiner.  You’re in the zone now.”

Here we go – PROS and CONS of Going Gluten-Free in ALL CAPS at times because that’s the only way my brain can operate this morning.

CON:  It’s a pain in the ass, doing this.  Reading food labels for carbohydrate content and grams of sugar in pursuit of better blood sugar control is second nature to me by this point.  After 28 years with type 1 diabetes, I’m comfortable with the carbs.  But trolling labels for that bright, shiny GF logo, or reading through each ingredient to ensure that I’m not inadvertently eating gluten is a new adventure, and one that I find very intrusive.

PRO:  As a result, weight management has been easier lately.  Which I guess is a plus but at the same time, I’m hungry, so I can’t call this a total pro.

CON:  I’m hungry.  (See above.)  All the time.  Mostly because I’m unsure of what to eat, and that insecurity leads me to eat the same things all the time.  Staples like hard boiled eggs, grilled chicken, spinach salad, yogurt, almonds, and every fruit I can get my paws on dominate my days.  Menu items like gluten-free pizza, butternut squash (done with GF ingredients), and chicken soup are being explored, but my natural inclination to be a lazy chef makes this sort of exploration tougher.

PRO:  Eating the same things all the time makes me very familiar with how they map out, blood sugar wise.  So I’m best able to pre-bolus with precision and my post-prandials aren’t gross.  This is boring as eff, but effective for diabetes management.

CON:  Low blood sugars have been really weird lately, especially the ones that follow a visit to the gym.  Before going gluten-free, I’d eat froast or some other glutened up snack to keep my blood sugar steady through cardio (yes, there are other options, but I can’t pretend to have chomped on kale during a run – that would be a big, fat lie and kale hates lies).  Now, I’m erring on the side of fruit and sometimes those sugars get in and out of my system too quickly to hold me for an entire workout.  I’m still figuring out what foods work best to deal with during- and post-exercise hypoglycemia.

PRO:  Glucolift Wildberry tabs are gluten-free.

CON:  Traveling is weird now, too, keeping gluten off my plate.  Airports are not designed for people with dietary needs or preferences, especially little airports like the one I frequent here in Providence.  Finding foods that are gluten-free while on the road is tough, with little exception.  Once I land somewhere, I’m fine, but while in transit, I keep my bag stashed with snacks.

PRO:  I’m learning a lot about what foods travel well.  These gf bars are among my favorites to toss in a backpack, and while they are not as healthy as something fresh, they can stand up to traveling with me and they are more filling than the Southwest pretzels that I can’t eat.

CON:  Bananas do not keep well in backpacks.  They turn brown quickly and often end up smeared on … oh, let’s say the lid of a laptop.

PRO:  I wash my backpack more often than I ever have before, and now it permanently smells like dryer sheets.  Which is a nice contrast to my computer, which smells permanently like bananas now.

CON:  I hate being “that girl.”  The one who asks waitstaff if certain menu options can be made without gluten.  The one who reads labels before taking a bite of anything.  The one who might be mistakenly marked as someone following a “trend diet” instead of someone who is unhappily-but-smartly following through on feedback from her body.  As good as I feel off gluten, I wish I could still eat the stuff and not make waves.

PRO:  I’m learning not to care about feeling slightly embarrassed because DUDE I feel so much better.

“You’re more … you.  The change between then and now is significant,” Chris said the other day.

He’s right.  My mood/disposition/health/everything since kicking gluten out of my diet has been ten steps in the best direction.  All of the non-celiac gluten sensitivity symptoms are gone.  The “head fog” where I would forget what I was doing or what I was about to say has receded.  The numbness and tingling in my hands and wrists is gone.  The ache in my hip joints after running is gone.  I don’t want to spend the afternoon taking a nap on the couch.  My energy is back.  My face is less puffy.  I can chase Birdy without feeling like my feet are in lead boots.  It took months to tune in to how poorly I felt, but now that I’m feeling better, the change is undeniable.

As much as I miss being more carefree about food, a gluten-free diet is the best fit for me.  And after almost three decades of type 1 diabetes, what’s one more food constraint?  So long as coffee and wine remain in the mix, I’m good.

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