Healthcare

Visualizing Diabetes

Diabetes and Emotions, Diabetes Complications, Healthcare, Mental Health, Psychosocial Support, Real Life Diabetes By April 19, 2018 Tags: , , , , 3 Comments

Last week, I had the pleasure of connecting with Katie McCurdy through my work at The Patient Revolution, and she and I talked about her health visualization tool, Pictal.  (That interview can be found on the Patient Revolution blog.) From the article: “Pictal is a set of worksheets that patients can use to create a health history timeline and show…

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Great Job! Stellar! You’re a Star!

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Healthcare, Real Life Diabetes By March 16, 2018 Tags: , , , 11 Comments

Man, all of this.  The big mountain that is “the healthcare system?”  That thing seems gigantic. But small changes make a big difference.  I think about the stickers I used to get on my school papers back in grade school.  The happy, bright yellow star grinning its toothless grin at me, delighted by my spelling homework.  It seems goofy to…

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Not the Flu

Healthcare, Real Life Diabetes By February 21, 2018 Tags: , , , , 7 Comments

A wicked little tickle in the back of my throat. Some nausea. No fever, but checking it ten times a day to make sure still no fever. A massive headache. Blood sugars stuck around 130 – 180 mg/dL but not too spikey. No ketones. My anxiety is pretty damn peaky these days, and the aggressive flu season isn’t helping take…

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A Billing Code for Empathy

Healthcare, No Diabetes, Psychosocial Support, Real Life Diabetes By January 11, 2018 Tags: , , , 10 Comments

“You have a nice bedside manner.  I don’t feel stupid being honest about the health concerns I have. And I don’t feel like you’re judging me when I tell you my A1C went up; that makes it easier to be honest with you about where I struggle.” “I really appreciate that,” she said. I’m in the process of switching to…

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Goal Flurry

Healthcare, Mental Health, Psychosocial Support, Real Life Diabetes By January 5, 2018 Tags: , , , , 5 Comments

(Seems appropriate to write about the flurry of resolution and organizational ideas in my head as a frigging blizzard mows through the Northeast.  There’s over 14 inches of snow outside.  The cats remain a combination of unsettled and putting on their cat snow gear to go sledding.) The new year turned while I was dealing with a freak eyeball injury,…

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A (Hair)brush with Disaster

Healthcare, Traveling By January 2, 2018 10 Comments

I always assumed it would diabetes that took my eyeballs out.  Never thought it would be a thumbnail and a hairbrush. Seven years ago, my sweet little Bird accidentally stuck her thumb into my right eye and tore off a sliver of my cornea.  The injury has resurfaced a bunch of annoying times and has been a hindrance since.  But…

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Why We Revolt: An Interview with Dr. Victor Montori

Diabetes Advocacy, Guest Diabetes Blogger, Healthcare, Real Life Diabetes By November 7, 2017 Tags: , , , , , , 4 Comments

The founder of the Patient Revolution is Dr. Victor Montori, a leader in the Knowledge and Evaluation Research Unit at Mayo Clinic and an endocrinologist at Mayo. Dr. Montori is interested in how knowledge is produced, disseminated and taken up in practice — and how this leads to optimal health care delivery and patient outcomes.  His book, Why We Revolt,…

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Building a Healthcare Team

Healthcare, No Diabetes, Real Life Diabetes By September 8, 2017 Tags: , , 12 Comments

Since deciding that our family of four was the maximum number of people to be in our family (read: no more babies), I’ve been working to transition as much of my healthcare team from Boston to Rhode Island.  After almost 30 years at the Joslin Clinic, this has been a tough transition, because I’m so used to their style and…

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Hips Don’t Lie.

Blood Sugars, Healthcare, Pumping Insulin, Real Life Diabetes, Robot Life By June 1, 2017 Tags: , , , 11 Comments

“You’re early for your appointment!”  The receptionist looked at me hopefully.  “Less nervous this time?” (My track record as a nervous dental patient follows me everywhere.) “Yep.  I’m early.  And I have a babysitter this morning for my kid.  I have to follow through now!” Over the last seven years or so, I’ve finally hit stride with my dentist visits.  Very sensitive…

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The Eyeball Situation Becomes Diabetes-Related.

Healthcare By May 3, 2017 Tags: , , , , , , 5 Comments

The initial cause:  a rogue fingernail attached to a cute baby The recurring issue:  repeated corneal tearing The reason for the repeats:  diabetes The original eyeball issue came up seven years ago, when Birdy was about nine months old and she unwittingly scraped her thumbnail against my right eye, ripping off a small shred of my epithelium layer.  This was pretty…

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Body Wars.

Blood Sugars, Healthcare, Real Life Diabetes By May 2, 2017 Tags: , , , , , , , 9 Comments

The Good:  Birdy’s seventh birthday party went off without a hitch.  The cake was made, the guests were fed, the bouncy castle was a source of glee for kids and adults alike, and my daughter spent the day red-faced from jumping, laughing with her friends, and covered in cake frosting.  Cannot ask for more than that. The Bad:  On Friday…

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