Diabetes Advocacy

Rewind: Voicemail for my Pancreas

Blood Sugars, Diabetes Advocacy, Diabetes and Emotions, Diabetes Memories, Relationships By September 25, 2018 Tags: , , 1 Comment

(I’m traveling this week, with limited access and desire to visit the Internet, but while I’m on an adventure, I’m rewinding the blog to showcase some older posts.  So don’t freak out if you see some older post about being pregnant or whatever because giiiiiiirl I am not pregnant.) “Hey, you.  This is awkward.  Voicemail.  I hate voicemail.  But I…

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Rewind: Diabetes Food Lies

Blood Sugars, Diabetes Advocacy, Diabetes Complications, Diabetes Online Community, Diet and Food, Exercise & Fitness, Mental Health, Psychosocial Support, Real Life Diabetes By September 24, 2018 Tags: , , , 1 Comment

(I’m traveling this week, with limited access and desire to visit the Internet, but while I’m on an adventure, I’m rewinding the blog to showcase some older posts.  So don’t freak out if you see some older post about being pregnant or whatever because giiiiiiirl I am not pregnant.) So many rules were slapped into place immediately upon diagnosis, with…

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Rewind: Ordinary but Extraordinary

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Online Community, Exercise & Fitness, Psychosocial Support, Real Life Diabetes By September 21, 2018 Tags: , , , , , 5 Comments

(I’m traveling this week, with limited access and desire to visit the Internet, but while I’m on an adventure, I’m rewinding the blog to showcase some older posts.  So don’t freak out if you see some older post about being pregnant or whatever because giiiiiiirl I am not pregnant.) I will admit right here, right now that I admire people…

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Rewind: These Boots Were Made for Talking

Diabetes Advocacy, Diabetes and Emotions, Diabetes and Family, Diabetes Community, Psychosocial Support By September 20, 2018 Tags: , , , , , 1 Comment

(I’m traveling this week, with limited access and desire to visit the Internet, but while I’m on an adventure, I’m rewinding the blog to showcase some older posts.  So don’t freak out if you see some older post about being pregnant or whatever because giiiiiiirl I am not pregnant.) At the airport two weeks ago, I was coming home from…

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Friendo

Diabetes Advocacy, Healthcare, Mental Health, Real Life Diabetes By September 10, 2018 Tags: , , , , , 5 Comments

friendo (n.) – An endocrinologist who brings expertise, experience, and engages with a high level of empathy.  ex.  “My endocrinologist is kind of my friend.  And my endo.  They’re my friendo.” Last week, I had my quarterly visit with my endocrinologist. Our clinician/patient relationship is still in its fledgling stage, and we’re definitely still getting to know the pros and…

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Diabetes Club

Diabetes Advocacy, Diabetes and Emotions, Diabetes Community, Diabetes Online Community By July 24, 2018 Tags: , , 5 Comments

1st Rule: You do NOT  talk about diabetes. 2nd Rule: … just kidding, of course you can talk about diabetes. 3rd Rule: If someone says “I’m low” or goes limp, grab some Glucolift. 4th Rule: Only two CGM transmitters to an order. 5th Rule: One snack at a time. 6th Rule: No insulin, no bolus. 7th Rule: Diabetes will go on…

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Not Advocacy

Diabetes Advocacy, No Diabetes By July 20, 2018 9 Comments

“What is that, on your arm?” Attempting to embrace the bathroom advocacy, I told the lady I have type 1 diabetes.  “And this is an insulin pump.  This part of the device holds the insulin,” – point to the black pump clipped to my bathing suit strap – “and the insulin goes into my body here.  It’s a nice change…

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Catching Up

Diabetes Advocacy, Diabetes Community, Diabetes Online Community, Uncategorized By July 16, 2018 Tags: , , , , , , , 2 Comments

Accidental blog hiatus.  You know what that means … mmm hmmm.  Bullet points. Children with Diabetes* Friends for Life conference took place in Orlando last week, concluding on Sunday.  It was exactly the diabetes emotional and educational refresher I needed, and I’ll have more in terms of stories to share this week.  But for the time being, you can check…

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It’s Complicated.

Diabetes Advocacy, Diabetes and Emotions, Diabetes Complications, SUM in Other Places By July 2, 2018 Tags: , , , , , 3 Comments

This month, in the most recent edition of The PLAID Journal, I contributed a piece about the complicated questions we get about diabetes, and how our answers are just as complicated. “Is diabetes hard? Yes. And no. There are times when I get mired in some of the tougher moments of diabetes, blowing up balloons by the dozen for a…

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Certainty

Diabetes Advocacy, Diabetes and Emotions, Diabetes and Family By May 29, 2018 Tags: , , 7 Comments

This was part of my daughter’s school work* last week: What about the thing that I am certain will happen today? I will have a rough blood sugar roller coaster.  – nope. That’s not a certainty.  Today’s been pretty mellow, to be honest. The temperature will be exactly 72 degrees and sunny today – nope. I live in New England….

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Dino Days

Diabetes Advocacy, Diabetes and Emotions, Diabetes and Family, Diabetes Community, Diabetes Online Community, Psychosocial Support, Real Life Diabetes, Relationships By May 22, 2018 Tags: , , , , , , 2 Comments

Being diagnosed with diabetes as a child twists time, making me feel like I’m not terribly old but that my diabetes is ancient and withered.  Looking back at an online journal that chronicles almost half my life with diabetes paints me as a digital dinosaur, one whose story and community has evolved in response to time, technology, and ability. The…

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