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Everybody Beeps.

(With deep, deep apologies to R.E.M. and Everybody Hurts)

Everybody Beeps

When your day is long
And the night, the night is yours for sleep.
When you tuck yourself in bed
For some rest … well hang on

Don’t close your tired eyes
Cause you wear a device
And everybody beeps … sometimes.

Sometimes reservoirs are low
And need to be refilled.
So you get up out of bed (set off, prime on)
Remove the older site (prime on)
You fill with what you need
For three days … well hang on

Everybody beeps
Takes comfort in the tech
Everybody beeps
Don’t throw your pump, oh no
Don’t throw your CGM
You feel like you’re alone?
No, no, no … you’re not alone.

If your islets are a mess
And you’re doing the best you can
When you think you’ve had too much
Of the beeps, well hang on

Well everybody beeps, sometimes.
But you are not alone.
Community is here.
All the time.
We’re here all the time.
All the time.

So hold on, hold on
Hold on, hold on, hold on, hold on, hold on, hold on
Everybody beeps

Open the Door.

For several weeks, I was flipping open the charging port on my t:slim insulin pump and plugging it in while I was in the shower.  But then I noticed the charging port cover was looking a little worse for the wear, and I connected with a friend about best practices.  (“Best practices” standing in for “How the hell do you charge this thing without breaking the door off?”)

Turns out the door swivels.  And swiveling the door keeps it from ripping.

Swivel that door! #tslim

A photo posted by Kerri Sparling (@sixuntilme) on

Well I’ll be (… more careful, more aware, a swivel-er).

(Also, you tell me if “Open the door” as a post title immediately made you think “get on the floor … everybody walks the dinosaur.”

 

[Tandem disclosure]

 

Spare a Rose 2016: Final Totals.

In 2016 the diabetes community, both online and off, made a huge difference for children with type 1 diabetes in developing countries.  This year’s Spare a Rose campaign raised $25,331 from 537 donations, saving 422 children.

Read that again, please?

Four hundred and twenty-two children.

Through the endless generosity of people in this community, donating their time to share the message, their ability to rally support, and their willingness to give both emotionally and financially, we helped save the lives of 422 children.

Since the beginning of the Spare a Rose campaign back in 2013, we’ve directly influenced the lives of 1,422 children in 36 countries.  This is a big deal.  Each number in that 1,422 represents a single kid, no longer struggling for access.  Imagine if that were your kid.  Imagine if that were you.

Thank you to the companies who participated and matched donations, who shared it with their employees, and who threw their social media muscle behind the effort.  Thank you to the individual members of the DOC who, far and wide, shared the donation link and their reasons for believing.  Thank you to Life for a Child for providing a way for small change to make a big difference.

And thank YOU.  This campaign is effective because everyone owns it, and everyone benefits from it.  The lives of these children are improved because of you.  You shared the donation link.  You told your coworkers.  You reached into your own pocket and spared five dollars.  Every voice matters.

The difference we made as a community, for our community, is because of you.

My Tail.

Do you know the source of this image? Please let me know so I can link!

“Miss!  Your tail!” the lady behind me called out, touching my elbow.

I looked behind me and sure enough, my insulin pump tubing – my tail – had come loose from underneath my shirt and wrapped itself around the metal shelving at CVS.  I was two steps away from pulling out my site, three steps away from jacking up the shelf of Maybelline cosmetics.

“Thank you!”  I said, walking back quickly and disengaging my tubing from the shelf, not before knocking over a display of wide-eyed Beanie Boos.

Awkwardness.  Maybe she’s born with it.  Maybe it’s diabetes.

Patient Centricity.

This could not be more brilliant.  Or, sadly, more true.

Time to bust up the buzzwords and hold organizations accountable for their claims.

patient centricity

[the image says 2013 Copyright SocialMediaPearls but I couldn’t find a direct link to this cartoon on that website … if you know the source of this material, please let me know so I can properly credit]

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