Opportunities to Participate in Research Studies.
The best way to change diabetes is to participate in diabetes. Research is important because it shapes and informs how the medical community takes care of people touched by diabetes. So when there is an opportunity to participate in a research study – especially one that doesn’t require any travel or a huge time commitment – the “Yes, I’ll help!” is hopefully easy to offer.
I wanted to share two diabetes research studies that are currently recruiting participants. There are gift cards as payment, so there’s extra incentive. Even though I know helping the diabetes community is incentive enough [insert group hug emoticon here].
And please share this information with others who might be interested. Thanks!!
Opportunity No. 1
This explanation is short and sweet, and comes from my friend Sean Oser (and his research team). They are look to find out more about the challenges and success you might have as a person with diabetes. This study is for people living with diabetes and will take about 30 minutes to complete. (You’ll be given a $20 Amazon gift card for participating.) Take a look at the information below, and please take the survey to see if you are eligible to participate.
The survey can be found here: https://redcap.ctsi.psu.edu/redcap/surveys/?s=HJEKP9MAD3
Opportunity No. 2
There’s a lot of talk in the diabetes community about artificial pancreases and bionic pancreases, but usually about the device functionality. There haven’t been a lot of conversations about the potential emotional influence of these devices, and one research study is trying to change that. Jill Weissberg-Benchell, psychologist and CDE out of Chicago, is hoping to have a focus group dedicated to that topic … which I think is very important because tech is terrific but you have to actually use it, and what it emotional factors keep you from using it?
I asked Jill to provide a little background on the study and what she’s hoping to accomplish, so that I could share that information with you guys. Here’s what she said:
“Whether you have had experience with insulin pumps or continuous glucose monitors (CGMs) or not, whether you have participated in artificial pancreas trials or not, we would love to hear how you and your loved ones feel about the potential impact that automated insulin delivery systems (also called artificial pancreas or closed loop systems) could have on your daily lives.
The INSPIRE study team hopes to identify both the potential benefits and the possible difficulties or barriers people may face in using such technology so that we can develop ways to support people when these systems are available to use. Your feedback will also be shared with teams around the world who are developing these systems so that they can integrate the feedback into their products before they are commercialized.
These focus groups, to be held at your convenience, using an internet-based video conferencing system, will involve one group for PWD and a separate group for their loved ones. In both groups, members of the INSPIRE team will help lead the discussions. These two hour meetings will give you the opportunity to share your thoughts about automated insulin systems in a casual environment and in a confidential manner. We will mail each family a $50 Target gift card for their participation.
If you would like to learn more about the focus groups, please e-mail Jill and her team at: INSPIREstudy@luriechildrens.org or call at (312) 227-0330.”