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Clouding on the Road.

The CGM in the Cloud concept matters most to me when I’m traveling alone.  While I was in Orlando last week, my bedside table looked like this at night:

A Moto G hooked up to my Dexcom G4, sending CGM data to the cloud.

And that data being routed to my family back in Rhode Island and to my wristwatch.

A few questions I heard from people throughout the conference:

“What peace of mind does it give you that the CGM itself doesn’t?”

I slept better with this thing rigged up.  It’s a clumsy set-up (all those cables and wires and plugged-in-ports) but the ends justify the means.  Chris could see my data while I was sleeping, and his system would alert him to any wicked overnight hypos, should they occur.  That’s some good peace of mind for me when I’m a plane ride away from my support system.  While my overnights are usually unnervingly spot-on (nailing down my overnight basal has been the luckiest break ever, and I blame my in-range A1C on spending those 6+ sleeping hours in-target), low blood sugars still creep in and can cause chaos.  I liked being hooked up while I was sleeping.

“Why wear it connected throughout the day?”

It was more convenient than I thought to have the graph running on a watch.  I didn’t realize how often I go digging through my bag for my Dexcom receiver until I spent a few days not doing that.  I like the seamless flick of the wrist and the “Hey, that’s my number,” and moving one sentiment.  But, to be honest, I think I kept it hooked up during the day partly because I knew people would have questions/want to see the rig and I wanted to be able to show them. Nothing answers questions better than seeing the system “in the wild.”

“Why don’t you wear it all the time?”

What made it less convenient to keep the system “clouding” on this trip is that I haven’t purchased a data plan for the Android phone yet, and have been running it off of open wifi signals (the hotel, convention center, restaurants, etc).  That’s a definite hurdle, and since the system is most important for me to run while I’m sleeping during travel (or home while Chris is traveling), using wifi seems to work best for my needs.  It’s simple to connect/disconnect from the cloud system as I need to.  I’m also hesitant to tax the USB port on my Dexcom receiver because I don’t have a spare receiver and I also don’t want to break the device I have come to rely on.

“Do you really want your family seeing your numbers all the time?  What about your privacy?”

Really good question.  This is why I’m looking forward to the Dexcom Share application, because that app will allow me to revoke access to my data if I choose.  As it stands now, my CGM data is clouded to a site that I have shared with my husband and my mother, and if I’m hooked up to the CGM in the Cloud system, they have access to my data.  It’s not a password-protected application.  I would love to see the data protected by some kind of password system.  I appreciate the option to share the data for my safety, but not for their scrutiny.  However, when it comes to the overnights while I’m traveling, I don’t care who sees those numbers.  Their having access makes me feel less vulnerable, and I’m willing to sacrifice my data privacy for those 6+ hours.

Clouding CGM data is a work-in-progress.  Much like life with diabetes.

#wearenotwaiting

 

 

6 Comments Post a comment
  1. Dan Patrick #

    Hi Kerri,
    Thanks for an excellent review. It is the real time experiences that really assist users and the company for improvements to their product line. I know that you swim. Are you able to take the “watch” into the pool? As always have a great day.

    The stability of “normal” bloods glucose ranges during a the 6 – 8 hour sleep period has a marked impact on our A1C values. Now, we need to improve the exercise, or energy usage during the day for better stability for our blood glucose levels.
    Dan

    08/11/14; 9:53 am
  2. Love it. Please keep writing about this.

    08/11/14; 9:56 am
  3. Thank you for sharing your thoughts:-)

    I love the pebble as the main view for BG data – though I do find the need to explain it to folks that (understandably) get a little bothered when I check the time while they’re speaking.

    Password protection/timed access is pretty straighforward to implement in Nightscout, though I have avoided adding it to our site simply because I don’t want to slow myself or another caregiver down when trying to access the data. It is certainly an area that will get addressed.

    Please keep sharing your thoughts, ideas – whatever you think will make it better, we can make it happen – from kit assembly to individual settings and features…
    work-in-progress, always!

    08/11/14; 10:37 am
  4. Liz #

    Thanks for keeping us informed about the Nightscout! It’s truly amazing what can be done when a community works together with the same goal in mind.

    I dream of the day when my pump, cgm and glucose meter all send info to the same place where I can actually see what’s going in real time, on one device! Hey, a girl can dream, right?

    Just another question, in your picture you have a case for your Dexcom receiver, where can I find one?

    08/12/14; 1:33 pm
  5. Super cool technology. I wonder if MDT will use it eventually?? Surely so. In the meantime, I’ll live vicariously through those of my friends getting to use it. :) #highfive on the review.

    08/13/14; 4:00 pm

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