Clouding on the Road.
The CGM in the Cloud concept matters most to me when I’m traveling alone. While I was in Orlando last week, my bedside table looked like this at night:
A Moto G hooked up to my Dexcom G4, sending CGM data to the cloud.
And that data being routed to my family back in Rhode Island and to my wristwatch.
A few questions I heard from people throughout the conference:
“What peace of mind does it give you that the CGM itself doesn’t?”
I slept better with this thing rigged up. It’s a clumsy set-up (all those cables and wires and plugged-in-ports) but the ends justify the means. Chris could see my data while I was sleeping, and his system would alert him to any wicked overnight hypos, should they occur. That’s some good peace of mind for me when I’m a plane ride away from my support system. While my overnights are usually unnervingly spot-on (nailing down my overnight basal has been the luckiest break ever, and I blame my in-range A1C on spending those 6+ sleeping hours in-target), low blood sugars still creep in and can cause chaos. I liked being hooked up while I was sleeping.
“Why wear it connected throughout the day?”
It was more convenient than I thought to have the graph running on a watch. I didn’t realize how often I go digging through my bag for my Dexcom receiver until I spent a few days not doing that. I like the seamless flick of the wrist and the “Hey, that’s my number,” and moving one sentiment. But, to be honest, I think I kept it hooked up during the day partly because I knew people would have questions/want to see the rig and I wanted to be able to show them. Nothing answers questions better than seeing the system “in the wild.”
“Why don’t you wear it all the time?”
What made it less convenient to keep the system “clouding” on this trip is that I haven’t purchased a data plan for the Android phone yet, and have been running it off of open wifi signals (the hotel, convention center, restaurants, etc). That’s a definite hurdle, and since the system is most important for me to run while I’m sleeping during travel (or home while Chris is traveling), using wifi seems to work best for my needs. It’s simple to connect/disconnect from the cloud system as I need to. I’m also hesitant to tax the USB port on my Dexcom receiver because I don’t have a spare receiver and I also don’t want to break the device I have come to rely on.
“Do you really want your family seeing your numbers all the time? What about your privacy?”
Really good question. This is why I’m looking forward to the Dexcom Share application, because that app will allow me to revoke access to my data if I choose. As it stands now, my CGM data is clouded to a site that I have shared with my husband and my mother, and if I’m hooked up to the CGM in the Cloud system, they have access to my data. It’s not a password-protected application. I would love to see the data protected by some kind of password system. I appreciate the option to share the data for my safety, but not for their scrutiny. However, when it comes to the overnights while I’m traveling, I don’t care who sees those numbers. Their having access makes me feel less vulnerable, and I’m willing to sacrifice my data privacy for those 6+ hours.
Clouding CGM data is a work-in-progress. Much like life with diabetes.