Last Wednesday morning, Amy from DiabetesMine and I co-lead a focus group at the Friends for Life conference called "Finding Your Voice Online."  The group consisted of a bunch of d-moms, d-dads, and some kids with diabetes who sat in on the session, not to mention some terrific diabetes bloggers (Heidi, Scott, Chris, and Bernard).  And then there was Amy.  And me.  (And my enormous iced coffee - so necessary.  Apologies to everyone who realized I was way over-caffeinated by the end of the presentation.)

Amy opened with an introduction to her blog and her work in the diabetes community, and I finished with my story of how I ended up immersed in the blogosphere.  (Slides below.)  We shared how we 'got started' with blogging, and what kind of opportunities have come as a result of our efforts.

I've spoken at different conferences before, but the Children With Diabetes conference is different.  Its core audience isn't someone with a Pharma agenda or something to sell - the people who go to the Friends for Life conference are people with diabetes, and the people that love them.  They're the people who are affected every day by diabetes, and if this conference had existed when I was growing up, I would have had a completely different perspective on my diabetes.  The FFL audience cares not only about new research developments, but about the real life of a person with diabetes.  Their kids are more than their disease, and I hope they found some comfort in seeing two adults who were more than their diabetes, too.

As I clicked through my personal slides, I talked about my life and my marriage and my stupid cat.  And then I shared with them what I was most proud of:  my daughter.  "When I was first diagnosed, back in 1986, my doctors told us that my having children would be near impossible.  But I am so proud to say that I proved that you can have a healthy baby, even if you have diabetes."  And her little face, grinning out from the slidedeck, proved to me once again why people with diabetes need more exposure to others living with diabetes.  It feels so empowering to know that you can do anything - have a child, drive a race car, fall in love, climb up Everest! - even if you are living with diabetes.

Bernard, Amy, Kerri, and Scotty J!!

The parents in the audience had a lot of questions, and many concerns were about online privacy.  We talked about the decision to share or not share our child's name or photo with the online community.  "For me, I decided that a few photos here and there were fine, but I wasn't comfortable subjecting my kid's name to Google just yet.  I want her to make that decision for herself.  But I'm like any other parent, and it's hard not to share my little kid with everyone!"  

One parent talked about her decision to make a JDRF walk fundraiser video, and how she had mixed feelings about the level of exposure.  

"I think that we're all safe in this diabetes community, but I need to remember that there aren't just people with diabetes who are reading my blog."  I said.  "Sure, the patient and medical community might be reading our posts and watching our videos, but there are also some completely random people who might be logging on.  And while we're safe within the 'borders' of the diabetes blogosphere, the Internet as a whole isn't quite as safe."  

Some parents had questions about starting their own blogs and getting involved with the diabetes blogosphere.  Others had questions about how to raise the awareness of their existing online properties.  Amy and I walked them through different resources for developing their online voice.  

I have always been a huge supporter of the Children With Diabetes efforts, in particular the Friends for Life conference, and having the chance to speak at a focus group was more than an honor  - it was like coming home.  Thanks to Jeff and Laura for hosting us, and thanks to all of the discussion participants! 

Posted by Kerri Morrone Sparling at 10:41 AM | Permalink | Comments (10) | TrackBacks (0)

On Monday afternoon, BSparl, Chris, and I boarded a plane bound for Orlando, Florida.  (It was our first trip with the baby - more on that later, because I'm still processing all the stuff required to travel with an infant.)  My trip was dual-purposed:  to attend the Roche Social Media Summit and then co-lead a focus group on Wednesday morning at Friends for Life. 

Like everyone else, I have a disclosure with this:  Roche paid for my plane tickets to and from Florida, and they also covered my hotel room for Monday and Tuesday night.  But they didn't hold me over a shark tank to gain input from me, and I am also still using my brain on my own, so basically they can only claim travel, food during the conference, and lodging.  They also didn't ask us to blog about the event (even though they knew we would).

But like I said last year, Roche is smart because they know by bringing together a pile of bloggers, Roche will be discussed on a pile of blogs.  And also in step with last year, Roche treated us respectfully and worked hard to make sure we were happy, as a group.  But I can't lie:  I was excited to attend this event because it would put me in "real life" touch with my extended diabetes family.  The invitation coming from Roche makes it a "Roche" event, and I can't hide my bias when it comes to being grateful to them for having the opportunity to socialize with my social media friends.  So that's the full disclosure. 

The event took place as a bookend to the CWD "Friends for Life" conference, which seemed to dictate the timing and location.  I think there was a total of thirty-seven bloggers, representing the type 1 community heavily, but with voices from the type 2 and caregiver crew as well, and we were hanging out in a conference ballroom at the Orlando Marriott all day on Tuesday.  

The Roche representatives were very cool to us, and didn't seem to have an agenda of expectations - just an agenda of events.  They had us engaged in discussions about meter accuracy and they also invited in representatives from the American Diabetes Association and the American Association of Diabetes Educators to talk with us.  I felt a little quiet during these discussions (thanks to the utter lack of sleep the night before, with BSparl not adjusting to the travel schedule and deciding to stay up until about 4 am), but I kept an eye on the Roche reps during the chats, because I wanted to see what they were reacting to. (That, and there was this long table set up at the back of the room, where a few of the Roche team members sat, watching us.  So I went over to them and let them know I was watching THEM.  Now the student has become the teacher, grasshopper.  /Confucius rant)

Overall, discussions were interesting.  Meter accuracy has been a hot topic for a while now, with the FDA meetings and an explosion in the blogosphere, and it was a topic of utmost importance for me during the course of my pregnancy.  It amazes me still that meters are "allowed" to be 20% off, and that we almost have to choose accuracy over cost when it comes to test strips.  (More on that later.)  And while the ADA panel of guests answered questions, I still couldn't help but wonder how the ADA spoke for me, as a person with type 1 diabetes.  (More on that later, too.)  

But the Summit itself wasn't about the discussions or the agenda of our host Pharma company.  (Even though, and I'm being completely honest here - I'm impressed that Roche wants to sit in the same room with a bunch of bloggers.  We aren't known for being quiet or demure, that's for damn sure, and we don't have a penchant for butt-kissing.  So they get us and our opinions, raw and unadulterated.  Yet, this is the second year they've invited us to meet with them.  I remain impressed.)  The Summit is about bloggers getting to know one another offline, and whether or not Roche understands that aspect wins out over any Pharma agenda, it doesn't matter.  People power wins over scheduled discussions.

So thanks to the Pharma company that dared to play host to bloggers for the second year in a row.  And thanks to the diabetes blogging community, which plays a huge part in improving my emotional diabetes health. 

(Oh, and thanks to the Photobooth, which let Scott and I pretend to be lions in the first shot and let us see up George's nose in the last one.)

Posted by Kerri Morrone Sparling at 11:34 AM | Permalink | Comments (7) | TrackBacks (0)

Disclosure is the responsibility of the blogger, and we’re under more scrutiny these days than ever before.   But I’ve never had an issue with transparency here – actually, I think I tell you guys way more than you probably want to know.  You knew when I started and stopped working for dLife, you know what publications I’m contributing to regularly, and you know about my relationship with Dexcom.  This blog is about my life with diabetes, and even though I know this is my life that I’ve decided to share, it’s important to me that people know my professional relationships with diabetes companies.  I’d want to know that information if I were reading this blog, too.

So (long winded intro to this post, eh?), I wanted to continue to keep you guys in the loop.  I’ve decided to sign a sponsorship agreement with the Animas Corporation. This whole thing started a few months ago, when I was exploring the idea of a new insulin pump and was excited about the Animas/Dexcom integration (no, I don’t have a CLUE when that’s happening, but I’m mighty hopeful it does go through in 2010).  But I’m still under my current pump warranty, so my hands were tied.  Reps from Animas reached out, one thing lead to another, and now I’m working with Animas, not as an employee, but as part of their outreach program that includes country singer George Canyon, LPGA Golfers Kelli Kuehne and Michelle McGann, and former Miss America Nicole Johnson (to name a few).  The program tries to spread the Animas name by working with people who have diabetes who are doing cool things (pregnancy is cool, right?), can inspire others to consider pump therapy, and want to talk honestly about how diabetes impacts their lives.  Bless their hearts for daring to partner with a – gasp! - blogger.  As part of this program, I’ve switched insulin pumps from my Minimed 722 to an Animas OneTouch Ping and am receiving my pump and pump supplies from the company gratis.  (Don’t worry, my doctor is in the loop and my supplies and pump are still a prescribed item.  This agreement doesn’t replace my medical team – just my method of insulin delivery.)

My new insulin pump, showcasing my new mega-basal rates.  :)

Every blogger is biased, but not every blogger discloses their biases.  I’m trying to do right by you guys, as best I can.

So that’s the latest.  As always, if you have concerns about this, please let me know.  I’m happy to answer any questions (but, just like before, my answer might be “Honestly, I have no idea.”).  And, just like before, if Nikon calls, I’m answering without hesitation. 

Posted by Kerri Morrone Sparling at 10:37 AM | Permalink | Comments (48) | TrackBacks (0)

When I was preparing for our wedding last year, I spent a lot of time at the gym.  A.  Lot.  As in, too much.  If I wasn't at work at dLife or doing wedding-esque things like cake tastings, dress fittings, and bridal shower fun, I was working out and doing my best to keep the stress from fattening me up.

Fitness was my priority.  

But after the wedding, other stuff started to crop up.  Weekends home in RI.  Travel for work.  Writing projects that required lots of attention.  New focuses at dLife.  Every day was this whirlwind of chaos and while I've been having fun and being very productive, my days at the gym were harder to come by.  Before, I was working out faithfully Monday - Friday after work.  But "life stuff" kept cropping up, and suddenly I found myself at the gym only four days a week.

Then it all became a perfect storm of distraction.  I was working late on dLife initiatives.  I was answering emails from my Blackberry into the wee hours of the night and sleeping less.  My wrist exploded in a fit of tendinitis and low blood sugars returned to my life with a renewed sense of determination.  Piles of snow kept falling and the gym kept closing, and on other days, I worked too late to get to the gym before it closed.

My time at the gym went from frequent and intense to only four days a week and pretty remedial.

Not okay, because my body wants to be fluffy.  It may be a family gene pool thing and it might also be exacerbated by diabetes factors, but if I sit still and let nature take its course, my body wants to be a happy 15 lbs heavier.

I, however, do not agree.

But I was frustrated because between feeling stressed and having lows again, my caloric intake far exceeded my burn off.  Thus, I lost any semblance of abs.  (Shame, too, because I liked them while they were there.)  So, in effort to reclaim my abs before I get pregnant and become a happy beach ball swallower, I did my part to stimulate the economy:  I bought an elliptical machine.

Or, as I keep calling it by mistake, an "ellipmachine."

It was delivered and assembled last Monday morning, and I called Chris (who was on business in California last week) to tell him it had arrived safely.  

"It's here!  The ellipmachine!"

"The what?"  

"I mean the elliptical."

It's a nice machine - very smooth and not clunky as to annoy our downstairs neighbors (I do not want to become Shoes) - and I used it every day last week for an hour.  Now I'm able to go out with my coworkers after work for an hour or two and still manage to slide a workout in.  I am also hoping to use it in the mornings (provided I'm able to get to bed at a reasonable time and eek out a 20 minute workout in the am).  My main hope is to reclaim the level of fitness I worked so hard to achieve before the wedding but lost a bit due to that pesky "life stuff."  

Last week, while Chris was out of town, he called one night and I answered, panting.  

"Hey baby ... what are you doing?"

"Dude, I'm on the ellipmachine."

I could hear him laughing.  "The ellipmachine, eh?"

"Oh you know what I mean."

Here's hoping that the ellipmachine can help me get a workout in even when my schedule wants to thwart my good intentions.  I'm ready to battle.

(Take that, early gym closings!  En garde, late nights at work!  Pffffft, snow days!  Come back, sort-of-abs!) 

Posted by Kerri Morrone Sparling at 09:23 AM | Permalink | Comments (10) | TrackBacks (0)

This past Monday and Tuesday, another dLife coworker volunteered to be "diabetic for the day."  (We'll call him Johnny CoWorker for the purposes of this post.)  He wore an infusion set (sans needle), a "pump," and tested his blood sugar throughout the day.  But in addition to the physical hardware of diabetes, I spoke with Johnny CoWorker about the emotional aspects of diabetes, citing how vulnerable highs and lows can make us feel, what the feelings/food conundrum is like, and what it's like to manage a chronic condition not just for the day, but for a lifetime. 

He asked a lot of questions.  And he listened.  This is his feedback about his experience with diabetes for the day:

Kerri:  You wore a “pump” and tested your blood sugar throughout your day with diabetes.  How did you feel about these devices?

JC:  The pump was not an issue for me, it was slightly weird getting used to it and when I had to decide what to wear for work. Other than my kids asking me what the wire attached to me was, I didn’t notice it.

I got the hang of testing after a little bit, and was very interested in how working out or what I eat affected my numbers.  A couple of times I got a bleeder and it stung and then one time I had to prick my hand four times to get enough blood to get a reading (rookie!).  I felt in tune with my body and was intrigued to learn my numbers each time.

JC:  Luckily no, I exercised and ate well all day so my numbers where in a range of 83 – 121, which I was pleased with.
 
Kerri:  Do you feel as though you have a better idea of what life with diabetes is like?  What else would you want to know?  What are you grateful for not knowing?  

JC:  I think I do, but I don’t know that I can truly appreciate what it would be like for others unless “I had” to do all of this.  I would be interested in learning more about if I had a heavy carb meal (like my favorites – pasta or pizza) and what that might of done to my numbers.  I am grateful that I don’t have to know how food, exercise, or stress effects how I feel on a daily basis.
 
Kerri:  Did this experiment make you appreciate your health any more?  Less?

Continue reading "Diabetes For The Day: Round Four" »

Posted by Kerri Morrone Sparling at 10:03 AM | Permalink | Comments (14) | TrackBacks (0)

My brain hasn't been attached this week.  I overslept one morning and was late to work.  I left my wallet at home another day.  I completely blanked out on a meeting I had at work.

And yesterday, I left my meter at home by accident. 

You would think that working in a diabetes media company, with another diabetic, would have me existing in a constant state of able-to-be-bailed-out.  But no!  I went foraging for my meter around 9:30 in the morning and couldn't find it.  I dumped out the contents of my work back on the floor (making a clattering sound against the concrete, but my coworkers have since learned that I'm a disaster and they anticipate the random noise), but couldn't find that blasted black zippered case.  

"Where are you?"  I said out loud.  (Coworkers are also used to me talking to myself.  Poor coworkers.)  My meter didn't answer.  Apparently it did not hear me because it was rested quite happily on top of the basket of folded laundry in my bedroom at home.

"Hey, Howard?  Do you have an extra meter hanging around?"  Nothing like paupering for diabetes supplies to the CEO.  While he didn't have an extra meter, he did have a strip I could use in my back up Freestyle meter. 

"Do you need more than one?"  

"Nah.  I'll go home at lunch and find my meter.  No problem - thanks!"

It was a weird feeling of relief to finally test.  Not having the option of knowing my numbers made me feel uneasy.  And it was an even weirder feeling of unpreparedness.  I felt like the diabetes anti-Boy Scout.

And then Real Life took hold.  A meeting that ran late prevented me from going home for lunch, and I had to instead pop out quickly to grab a bite from the deli down the street.  Howard (and his diabetes supply stash) had to leave the office for a meeting for the rest of the afternoon.  Diabetes took a big time backseat to the rest of the day, and all of a sudden, I realized it was 3:00 in the afternoon and I hadn't tested since 9:30 in the morning.

And the Dexcom sensor fell off on Monday evening and I've yet to stick the next one back on.

I felt like I was driving blindly - nervous about eating anything with more than few carbs because I didn't want to chance the spike, reluctant to bolus because I feared not feeling the low.  Yes, I should have gone home to get my meter.  Yes, I should have been more prepared.  Yes, yes, yes, I did the self-nagging and the guilt-tripping.  But NO, I wasn't prepared.  I wasn't even remotely ready.  It was the diabetes equivalent of that dream where you are naked in you 10th grade classroom.

I've talked about this before, but there's a LOT of packing that goes along with diabetes.  A weekend home in RI is never just a bag with clothes and my toothbrush - I bring a whole backup medical kit to account for everything from pump failures to yeast infections (thank you, stash of probiotics!).  And my work desk is more than dLife papers and columns - there's a rotation of meters, infusion sets, and other diabetes supplies kicking around.  I'm always preaching about being prepared, and for the most part, I am. 

Those moments of being caught with my meter down prove why being well-stocked is the best option.  But blah blah, it's not always that easy to get it right every time.  Yesterday sucked, and I felt like a fool, and I was rewarded with a blood sugar of 300 mg/dl when I came home.

I'm off my game this week.  I think it's because I forgot to call Larry on his birthday.

Posted by Kerri Morrone Sparling at 11:14 AM | Permalink | Comments (15) | TrackBacks (0)

I have to admit it:  I have a diabetes crush.  He is funny, upbeat, realistic, and is easy to identify with.  I've watched all his dLife segments and I think I speak for the entire dLife editorial team when i say, "Jim Turner ... sigh ... he's the best!"

And he came into the office on Friday, just in time to see us all decked out in our Halloween finest.  (Note:  I managed to ditch the red riding hood cape for the picture, but others weren't as quickly uncostumed.  The coworker on my left doesn't usually have this fluffy hairdo, for example.) 

Jim Turner has been living with type 1 diabetes for several decades now, but you wouldn't know by looking at him.  He looks healthy, seems happy, and has a wicked sense of humor that makes you giggle at things you didn't even realize were potentially funny.  If laughter is the best medicine, then Jim might be the ultimate endocrinologist. 

And of course he comes in on a day when we're all dressed up like goof balls.  

Thanks for entertaining us for the afternoon, Jim.  We remain your loyal fans!!  

Swoon again. 

Posted by Kerri Morrone Sparling at 11:03 AM | Permalink | Comments (13) | TrackBacks (0)

The weekend was a good one.  I gave up my old car ("gave up" makes it sound like it was a struggle to part with ... I "tossed out" my old car) and picked up my new Honda Civic, which I love, love, love and it is such an upgrade from my fickle Jetta GLS.

After nabbing the new ride, I went to Boston and attended the BlogHer Out Reach conference, along with several hundred other bloggers.  This was my first adventure at a BlogHer conference, and I definitely learned a ton.  It was an interesting experience, having "What's your blog about?" as a socially acceptable "getting to know you" query.  Even more interesting was breaking outside of my normal comfort zone, as a patient blogger.   I met women who wrote food blogs.  Marketing blogs.  Book blogs.  Political blogs.  Mommy blogs.  Blogs about the environment.  And blogs about ... well, blogging.

The first session I attended was about how Social Media Can Save Media.  Moderated by Lisa Stone, the panel of Lisa Williams, Sarah Corbitt, Theresa Hanafin, and Colleen Kaman hit on hot topics like online communities, using social media to distribute knowledge, and the power of connecting through networks like HARO and Twitter.  The main reiteration was "content is queen" (it was BlogHer, after all), and how the best blogs are those with original and engaging content.  I agree - nothing stinks more than a recycled idea. 

Lunch was brought to BlogHers by Shine, Yahoo's new community, and the session focused on building web traffic, optimizing search engine queries, building a loyal community base, and CONTENT.  Again, content being the most important aspect of blogging was the focus of this discussion.  On my Flickr site, I have shots of all the powerpoint slides, if you want to poke through and get some tips.

The first afternoon session I attended was about how Social Media Can Save Your Business.  Susan Getgood, Laura Fitton, and Laura Tomasetti anchored this panel and the hot topic was definitely Twitter.  Everyone in the damn room was Twittering, from the girl behind me to the woman on my left.  Lisa Stone, who was in attendance at this session, was tweeting updates as we went along.  We talked about the usual suspects - Facebook, Twitter, blogs - and how businesses can make use of these new media outlets.  Bottom line appeared to be that good content goes the farthest.  Theme of the day for sure.  "Be genuine.  Post frequently.  Be original!"

The last session was about (this title made me laugh) How Social Media Can Save Dinner.  This lively discussion was hosted by foodbloggers Sarah Caron, Kalyn Denny, Nika Boyce, and Lydia Walshin.  As the only diabetes blogger in the room, I made sure I asked about where people can find nutritional information for online recipes - Lydia recommended SparkRecipes.  (dLife also has a database with full nutritional information, FYI.)  We also talked about food photography, which I thought was awesome.  Those foodbloggers work hard - they cook, photograph, consume, and then blog it.  One blog post can be a four or five hour adventure! 

Closing keynote was with Elisa Camahort Page and included Dana Rudolph, Beth Kanter, and Isabel Walcott Hillborn.  They talked about blogging success stories and unique experiences, and I offered up my story of how blogging brought me from a crappy job to a great job in new media marketing.  After the keynote, there was an open bar (brave, brave BlogHer), where I had a chance to talk with Lisa at length about medical bloggers and our special place in the blogging community. 

Blogging - it's the great uniter.  (Hondas also appear to be a great uniter, but that's another digression I don't have time to make.)  If you haven't attended a BlogHer event, see if there's one coming your way soon!

Posted by Kerri Morrone Sparling at 01:51 PM | Permalink | Comments (13) | TrackBacks (0)

Tmana wrote a post on TuDiabetes today that hit home and hit hard. An excerpt:

"I am concerned that these different outlooks and interests could, rather than unite us in the common cause of improved quality of life and life expectancy for people with diabetes, cause public conflicts that could rob all of our communities of the resources needed to assist diabetics, both within our online communities and outside of them."

I agree with this whole-heartedly.  While I'm an in-house editor at dLife, a member of several online communities like TuDiabetes, Diabetes Daily, a diabetes blogger here at SUM, and an active supporter of organizations like the JDRF, ADA, CWD, and DRI, these things all come second to why I'm doing this in the first place:  I am a person with diabetes, a diabetic, a type 1, pancreatically-challenged ... whatever you want to call me, I have diabetes, first and foremost.

What I care about is improving my life, and our collective lives, as we live with diabetes.  I want to see support communities do just that - SUPPORT.  The very concept of different online groups pitting against one another is ridiculous.  Aren't we all working towards the same common goal?  To live long, healthy, and well-supported lives with diabetes?  To see technological improvements?  To see a cure, maybe in our lifetimes? 

Everyone has different agendas and different goals - I understand that.  But I also understand that diabetes is not a business to me.  It's my life - our lives.  And anything that can improve that life should be supported and encouraged, despite whether or not I'm a member or if I participate in a fundraising walk. 

And while I understand the business aspect of different companies and organizations, I don't like the idea of division.  I don't like the idea that three different places are working their tails off to cure this disease, but not sharing the data.  I am not sure who crosses what communication lines, but I want to know that the JDRF, DRI, and other research hubs are sharing their theories on curing this disease.  That is happening, right?  We're all working together to cure this, right?  There are so many different diabetes organizations, but where is our unified front? 

In her post, tmana said that she didn't want different communities to assimilate in efforts to "merely to present a united front to the high-priced resources and partners," and I agree with that completely.  This disease is unique to each diabetic and their loved ones, and the various communities and organizations reflect that.  But I want the diabetes communities to mature and embrace one another instead of ostracizing and battling.  It sounds altruistic, but we're not talking about t-shirts here.  This is about a disease, a serious one, that we live with every day.  And while we rally behind all these different organizations, we need to remember - never, ever forget this - that we are really rallying behind one another as a community of diabetics, regardless of whose newsletter we receive or whose network we have a username in.

The "industry" of diabetes continues to grow, especially as more and more people are diagnosed every day.  But we can't lose sight of the most important aspect of these communities and organizations:  Support.   And I value the support I get from you guys here on the blog, outside in your blogs, in-person at dinners and events, and all over the internet and the Real World as a whole.

We are all living with diabetes.  Standing together does far more than walking alone. 

Posted by Kerri Morrone Sparling at 01:40 PM | Permalink | Comments (10) | TrackBacks (0)

Sunday morning, bright and much earlier than I was ready for, I found myself at Cranbury Park in Fairfield County for Connecticut's JDRF Walk to Cure Diabetes.  Despite the rain and the extremely muggy conditions, Team dLife represented and made me proud to be a part of the crew.

The walk, for some reason, wasn't along a track but instead was along a mild hiking trail.  This was fine for people who were able to traverse the rocky terrain, but for some parents piloting strollers, it was tricky indeed. (Note to CT JDRF:  Maybe you should have called it the JDRF Hike for a Cure?)

I had the pleasure of being escorted by my co-worker's daughter, who is four years old but wise well beyond her years.

"Let's go in the wood!  We can camp in the woods.  I saw a movie about bears.  And snakes.  I saw a snakes movie.   Hey, there's a path - let's go that way and we can camp in the woods overnight!"

"No way!  Your mom would be mad if we went camping without telling her.  And why do you have so much energy?  Did you drink a whole pot of coffee this morning?"

"I drank ten pots of coffee." She turned to be and gave me a 1,000 watt grin.

I believed her. 

Working at dLife, as a person with diabetes myself, is a unique experience because I walk the walk and talk the talk.  But at the JDRF event on Sunday, it was nice to see everyone walking the walk, right alongside me.

Thanks to everyone who came out to the walk, and onward to the RI JDRF walk on October 26th!

Posted by Kerri Morrone Sparling at 11:52 AM | Permalink | Comments (10) | TrackBacks (0)

I've said it before, but I must say it again:  my co-workers are a rare breed.  They are funny, brilliant, and they actually care about making a difference in the lives of people with diabetes.  Another co-worker took the Diabetes For The Day challenge, and wrote about what it was like to test all day and wear the newest version of the "faux pump."  (This one was a definite upgrade from the Kool-aid box of yester-post.  We used a Freestyle flash meter as "the pump" and taped an infusion set, sans needle, to the back of it.)  Here's her take on a day with diabetes.

Kerri:  You wore a “pump” and tested your blood sugar throughout your day with diabetes.  How did you feel about these devices?

Co-Worker:  At first I thought it was kind of fun to know what my blood sugar was, but after maybe the second prick, the novelty wore off. It hurt and seeing my numbers go up and down freaked me out. The pump was a huge pain. At work it wasn’t embarrassing but outside of the office, I felt like everyone saw it and wondered about me.

Kerri:  You wore the pump all day and overnight.  Was it comfortable?  How was sleeping with something attached?  Showering?  Was it difficult to dress for?  Did you almost drop it into the toilet at any point?  ;)  

CW:  It was relatively comfortable, comfortable enough that I would forget about it until I caught the tube on something and felt the yank on my “infusion point”. I was nervous about sleeping with it since I don’t own pajama bottoms with pockets but I was able to tuck it under my pillow. I slept fine but woke up with the pump halfway across the bed. I wore pants with pockets the day I had my pump so I didn’t have to worry about where I would stick it. However, I wear a lot of dresses and I could see that being a big pain. I didn’t drop it in the toilet but only because I was paranoid that I would.

Kerri:  Did physical evidence of diabetes (i.e. wearing the pump) make you feel self-conscious?

CW:  At work, I felt normal, even proud of what I was doing. However, the second I left, I felt awkward, especially when a friend nearly pulled it out and I had to explain what it was and what I was doing. 

Kerri:  How did testing your blood sugar affect the way you thought about food?

CW:  It made me aware of how many carbs I eat and that it is probably contributing to the fact that my blood sugar was all over the place. It also made me less likely to snack because I wanted to avoid testing.  I remember thinking, "A piece of candy is already in my mouth before I think about testing. Did I just mess up? Man, this is annoying. Diabetes sucks."

Kerri:  Did you find the blood sugar testing to be painful?  How comfortable were you with the process?

CW:  After the first or second time, I started to really wince every time I had to test. The sharp pain only lasts a moment but it made my fingers sensitive and bruised. I felt pretty comfortable with the process because I’ve tested before and I’m not afraid of blood or needles.

Kerri:  How did the blood glucose numbers make you feel? Did any of your results make you raise an eyebrow?

CW:  My blood glucose numbers made me feel anxious. I was like a roller coaster, relatively high and then a few hours later, relatively low. If I hadn’t had Kerri around to reassure me, I would have freaked out.  After a bagel with cream cheese and an iced coffee with Splenda, two hours later I was at 141. I panicked. 141, that’s bad! (Right, except you have a pancreas, give it a second woman). Kerri assured me that I was fine. 

(Editor's note:  Her blood sugars hit highs of 140 mg/dl after a high carb lunch.  So "high" by her standards was a little different than my highs.)

Kerri:  Do you feel as though you have a better idea of what life with diabetes is like?  What else would you want to know?  What are you grateful for not knowing?

CW:  I still don’t think I have a clue what it must be like. I did it for one day. I didn’t change my diet, I didn’t have to take action when my numbers went out of their normal range. I can’t imagine having to test every day. Given that experience, I would rather not know any more.

Kerri:  Did this experiment make you appreciate your health any more?  Less?

CW:  It made me appreciate my health tremendously. That my body functions and regulates things on its own is a blessing most people don’t take notice of.

Kerri:  Do you think other people who are close to diabetes, but aren’t diabetic themselves, should spend a day as a diabetic?

CW:  I think everyone should.

Kerri:  Anything else you want to add?

CW:  Kerri is pretty awesome. (Editor's note:  YAY!)  And diabetes sucks.  (Editor again:  Word.)

Posted by Kerri Morrone Sparling at 10:43 AM | Permalink | Comments (14) | TrackBacks (0)

Working in a diabetes company means understanding the culture and responsibilities of a person with diabetes.  This is easy for me, because I'm a person with diabetes.  But not everyone at work is living with diabetes.  My fellow employees work with diabetes every, but they don't live with it. 

People at work have taken a very active interest in becoming more familiar with the diabetes lifestyle - more than just understanding the "facts" of this disease.  They ask questions about the pump, or different insulins, or what a CGM does.  They ask how things "feel."  One of my co-workers decided to have "diabetes for the day," which included him testing his blood sugar several times and wearing a pump infusion set (minus the cannula - just stuck to his abdomen for "the feel" of it) attached to a makeshift "pump."  He spent the day thinking about carbohydrate intake, blood sugar results, and the constant presence of a device, in efforts to better understand the community he's trying to help.  Here's his feedback:

Kerri:  How did testing your blood sugar affect the way you thought about food?

Co-Worker:  I'd love to say that I'm a changed person and that I look at the world through different eyes having worn the shoes of someone with diabetes for a day.  Truthfully I think it was the inconvenience pain of testing that caused the greatest hesitation and re-jigging  for me.   The event that caught me most off guard was when I returned home from work and passed up having a cookie before dinner.  My inner dialog went something like,  "Mmm cookies.  Wait, I'd have to test first.  Kerri said I had to test before eating anything.  Hmm.  I'm going to be eating dinner in an hour so I'd probably have to test twice.  BUT.  If I have it with dinner, I can test just once ... I think I'll wait."

I have to say, all those fake sugars [note from Kerri - he's talking about artificial sweeteners] are really yucky and drinking mostly plain water is no fun.   Give me my plain sugar in my coffee.  If I had to inject insulin (saline) I think it might have really changed the way I thought about food because it would have forced me to do more calculations and understand what I was putting into my body (both the food and the insulin).  With just testing, I only had to make simple yes/no decisions.  Maybe next time I'll get wired up for a pump.  Shooting actual syringes saline ... am I getting paid to do this?

Kerri:  Did you ever feel inconvenienced by the presence of the meter or the "pump?"  How so?

CW:  Having the meter/pump on my belt wasn't too conspicuous as I think it looked a lot like a geeky cell phone belt clip.  (And I'm pretty geeky.)  However, I did almost drop it into the toilet once.  Unlike a cellphone, it's wired/tubed to me which created a bit of a juggling act and not one you're likely to see at the circus.  Thankfully all my years of playing frisbee came in handy and I was able to prevent a very embarrassing accident.  (Since it was just a meter it wouldn't have been too costly.)

I also think that if I wasn't at a place where we talk about diabetes everyday, I might have been a bit more self-conscious.

Kerri:  How did the blood glucose numbers make you feel?  Did you associate any "guilt" to a higher number?  Did any of your results make you raise an eyebrow?

CW:  Since I knew that my body could "handle" the swings I wasn't too worried and thus not too guilty.  (I had pizza for lunch and pasta for dinner ... and two cookies.  Something that I don't think would be part of a typical menu for someone who was managing their BG.)  I did have some pretty high swings and it did make me realize that keeping your BG within an acceptable range is not a passive act that can be programmed like a thermostat and left on auto-pilot.  There's a constant feedback loop that occurs and I don't think a CGM talking to a pump would be able to easily and reliably handle the delicate balance.  (And that's coming from a programmer.)

Kerri:  Do you feel as though  you have a better idea of what life with diabetes is like?  What else would you want to know?  What are you grateful for not knowing?

CW:  I think what I experienced is just the tip of the proverbial iceberg.  I was forced to stop and think a few times, but I didn't have to pay the "penalty" of being careless and I knew in the morning it would all be over.  Sort of like playing with tasers without the batteries.  "Don't fake taser me, Bro!" 

I am a bit curious as to what a high and low are like.  Is it similar to being hungover?  Like having a bad flu?  Is it worse than a papercut between the fingers?  (I really hate paper cuts.  How can something so small hurt so much?  I'll inject saline before getting a papercut.)  The insulin pump is still very intriguing to me.  Can you feel the insulin going in?  Can you "feel" your BSL/energy change?

No amount of simulation will ever help me understand what it's like to not be able to just disconnect.  There is no vacation from diabetes.  It doesn't sleep when you sleep.  I can't even imagine that.  Even as I type this, the concept is so foreign to me.

Kerri:  Did this experiment make you appreciate your health any more?  Less?

CW:  I've been very fortunate and have been very healthy all my life.  I have my scars and stories, but overall I can't complain.  I don't think the experiment changed how I thought of my own health.  I think I appreciate how amazing the human body is to keep everything working properly, but I don't think I'll change any of my habits as a result of the experiment.  Don't get me wrong.  I'll continue to watch my weight and try to eat healthy food.  (I haven't been to a fast food joint, except to use the bathroom, in over 15 years.)   But it's about my general health and well being, and not specifically as a way to prevent type 2 diabetes.

The experience will stay with me longer than the lancet marks on my fingers, but I would not classify it as life-altering.  Something well worth the time and I'd recommend that other participate in the experiment.

Posted by Kerri Morrone Sparling at 10:45 AM | Permalink | Comments (11) | TrackBacks (0)

A few months ago, we circulated a blog post around my office about office pranks.  There were some great ones, like covering someone's cube in post-it notes, wrapping all office supplies in tin foil, and the best one - filling someone's office space with balloons.  Funny, right?  Oh the fun of the internet.

Months passed.  And then I went away for my wedding.  The fine folks of dLife were spared of my silly jokes and incessant babbling for a full two weeks while I was off gettin' hitched and whatnot.  Then I returned to the office yesterday, complete with my new wedding ring and working off about four hours of sleep.

I walked in ... to this:

I couldn't believe it.  They actually pulled off the balloon prank!  I was very impressed.  And also very surprised:

They even incorporated the damn frog in on the fun:

Well played, dLife.  Well played, indeed.

Posted by Kerri Morrone Sparling at 03:05 PM | Permalink | Comments (13) | TrackBacks (0)

No intro.

1.  Last night I attended the premiere screening of Life For A Child in NYC, a moving documentary profiling children with type 1 diabetes who are living in developing countries.  I'll have a write-up for this next week, but suffice to say that there is so much work that needs to be done, both around the world and here at home.  I ended my evening with a low blood sugar as I left the screening and with mounting frustration on how much worldwide attention diabetes needs, yet doesn't receive.  More on this next week.

2.  The dTOEs that were sent in are AWESOME!  I'll be posting the dTOEs, Second Edition on Monday.  :)  If you have any others you want to add, pop them in the comments section for yesterday's post, or email them to me at kerri [at] sixuntilme [dot] com.   

3.  I spent at least a few minutes siphoning through this list of Smurfs to figure out which one I would be.  I think I'm Jokey Smurf (or Schtroumpf Farceur ... are they French or something?) - I love the idea of his alter-ego, the Masked Pie Smurfer, "a cloaked figure known for sneaking up on other Smurfs and throwing pies at them."  Which Smurf would you be?

4.  Speaking of blasts from the past, one of my favorite books growing up was The Monster at the End of This Book, Starring Lovable, Furry Old Grover.  Come on ... you remember this, don't you?  If not, here's a slide show of all the pages in this book.  I remember being terrified of turning the pages when I was little, entirely unsure of what the monster was going to look like.  I read it to my nephew a few years ago - as we turned the pages, he looked up at me with his big, blue eyes, put his hand on my wrist, and whispered, "Auntie, please don't turn the page, okay?"  The world keeps spitting out all this garbage but at least children's books are still wonderful.

5.  Want to be on dLifeTV?  We're looking for people in good health who have lived with type 2 diabetes for 25 years or more. Send our production team an e-mail and tell us about yourself, including your name, age, contact information, number of years living with type 2 diabetes, plus your thoughts on how you have handled your diabetes, especially what you have done to maintain good control.  Thanks in advance!

6.  It's going to be a long weekend, but not exactly a relaxing one.  Tomorrow night we have the pleasure of attending the wedding of two friends in Brooklyn, then a Cirque du Solelil show on Sunday night, then we're spending Monday in RI to finish up last-minute wedding stuff like finalizing the floral arrangements, the marriage license, our marriage classes, and my final wedding gown fitting.  May is right around the corner, and I couldn't be more excited.  :)

Have a stellar weekend, and look for the dTOEs on Monday!   

Posted by Kerri Morrone Sparling at 04:45 PM | Permalink | Comments (8) | TrackBacks (0)

I spend a lot of time thinking about health and fitness.  

There's my job, where I am often found perusing diabetes-related press releases, checking out the latest websites about endocrine health and wellness, and writing about what day-to-day life with diabetes is all about. 

Then there's my handsome fiance, who has spent time as a personal trainer, writes for various fitness venues (including AOL), eats a regimented, healthy diet, and has a physique that is evidence of time well-spent at the gym.

Oh, and then there is the whole "white wedding dress" thing, where everyone will be looking at me in a few months on a (hopefully sunny) May afternoon.  Not to mention my disease, which I manage with an insulin pump, my meter, attempts at healthy eating, and regular exercise.

So I'm constantly checking out different websites about health and fitness, as the themes touch so many different parts of my life.  My magazine collection is a mish-mash of Women's Health, Shape, and Modern Bride.  These pages are dog-eared and occasionally ripped out and pinned to my cube wall or my office bulletin board. 

Never mind the daily webcrawl I make, bouncing from my daily check of Women's Health online for some daily tips and inspirations, FitDay to continue on with my goal of keeping a food journal for a full month, Slashfood for some foodie snippets.  Recently, I've been checking out iVillage's Your Total Health site, Healthbolt, and Lift Magazine for some newer viewpoints. 

It's all bit-sized bits of health information, which fit into my multi-tasking sort of lifestyle.  But the part that I'm having trouble with is cutting down the workout to a sensible size.  Fitness doesn't appear to come in teeny bits for me.  I need to work out long and hard in order to see results, constantly fighting the uphill battle of treating low blood sugars and the demanding schedule of any fully employed twenty-something.  (Scratch that - the schedule of anyone is demanding, ranging from kids to senior citizens to circus clowns.)  I need to buckle down and make efforts to really reach my goals.  Bit of a tune-up.

A few months ago, I decided I needed to change my workout.  My legs were killing me.  But, as with anything else, my body adjusted and I needed to switch things up again.  I now have a few different methods of attack:  keeping a food journal, avoiding all holiday sweets until the New Year (it's like the Pre-New Year's Resolution), and making some awkward attempts at bringing running into my routine. 

Oh how I hate to run.  I feel awkward and like a great, traipsing gazelle.  But over the last two weeks, I've been trying to work in a circuit of running to help me tone up a bit more before the wedding.  (Five months!)  A combination of weight training and running was constantly touted by all those fitness sites as a killer fat loss program.  So I'm trying it.  First, I did five minutes running, five walking.  Then seven on, five off.  Last night, I did twelve on, five off. 

And I watched as my blood sugar fell from 160 (started the whole workout at 200 mg/dl) to 68 mg/dl.  When my workout changes, my diabetes management methods need to change, too.  Hopefully I'll find a way to trot with a bit more grace.  And hopefully my body will shift into shape by the time I'm donning my white dress for my big walk down the aisle.

Oh hell, maybe I'll run.  Just to prove a point.  ;)

Posted by Kerri Morrone Sparling at 05:55 PM | Permalink | Comments (7) | TrackBacks (0)

More blogging later, but diabetes was the focus of a frank discussion on The Today Show this morning.  Topics ranged from diabetes myths to the power of good control.  Check out this video clip and see what Dr. Nancy Snyderman has to say.

Posted by Kerri Morrone Sparling at 10:25 AM | Permalink | Comments (9) | TrackBacks (0)

I am not the only engaged girl in the dLife editorial department - my fellow dLifer Z is also engaged to be married.  This has our little editorial department all a-twitter about reception halls, wedding favors, invitations, and bridal gowns. 

And because Z and I are having our weddings a mere week apart, we're stressing about the same stuff.  Both searching for photographers.  Both on the hunt for a reasonable DJ.  Both scouring bridal shops for the perfect gown.  Both with desks piled high with glossy bridal magazines.

Therefore, we've established The Cake Wars.

We first thought about having the tortoise and the hare, but neither of us are blazing through the timeline. 

"The tortoise and the tortoise?"  I suggested.

Z looked at me very seriously. 

"I would like to be Grimace."

I couldn't help but laugh.  "Grimace?"

Dead serious.  "Yes.  I think he's cute."

Okay, so my cake is topped by a tortoise (aka Donatello from the Teenage Mutant Ninja Turtles) and Z is represented by her cute pal, Grimace.

Each tier of the cake represents a completed task.  (We already have a few tiers pre-labeled as "stress out.")  At the top of the timeline there are wedding bells with our respective wedding dates.

Here's how Grimace and Donatello are battling it out.

The Great dLife Cake War has begun.  Onwards to May!  (And tomorrow I'll stop making this into a wedding blog.  Besides, I already write for one of those.)

Posted by Kerri Morrone Sparling at 04:08 PM | Permalink | Comments (7) | TrackBacks (0)

Team dLife!

Our team was small but dedicated to the cause, doing our part to raise awareness for diabetes.  It's a remarkable experience, being part of a company dynamic that serves to better the lives of people living with diabetes.  A big THANK YOU to everyone who supported Team dLife, from the walkers to those who donated to the people who tolerated my silly "troop rallying" emails.  (Note to self:  Pictures of sad kittens in teacups = good donations.  It's a proven fact.)

On a completely non-diabetes related note, we also saw Batman and Spiderman wandering around the walk.  Only there was something a bit disconcerting about the footwear.

Chris's voice murmured in my ear as he walked by.  "Does Batman always go barefoot?"

Posted by Kerri Morrone Sparling at 08:12 AM | Permalink | Comments (4) | TrackBacks (0)

Posted by Kerri Morrone Sparling at 09:28 AM | Permalink | Comments (2) | TrackBacks (0)

Pearls from the blogosphere?  Don't mind if I do.

Chris's mom originally pointed me in the direction of Sam Talbot.  "He's from Bravo's Top Chef.  He's been diabetic since he was a kid, like you!"  Of course I checked him out.  And, after a few family leads and some emails from Faithful Readers, I also noticed that Sam is up for "Glad's Steamiest Chef" competition.  According to the website, "For Sam's participation in the Steamiest Chef Contest, Glad is making a $5,000 donation to the Juvenile Diabetes Research Foundation International, the leading charitable funder and advocate of type 1 diabetes research worldwide... If Sam receives the most votes in the contest, Glad will donate an additional $25,000 to help further the foundation's work."  If you haven't already, cast your vote for Sam!

In other diabetes celebrity news, have you taken the dLifestyles of the Rich and Famous quiz?  I was stumped on a few of these - test your celebrity savvy and see how you fare.  Also, on the Halle Berry tip, the discussion about her diabetes has been rekindled over at LOL Diabetes.  (Thanks for starting the buzz up, Hannah!)

Also, I've had the honor and the pleasure of being interviewed by a health reporter from U.S. News and World Report.  Their "Profile:  Living with Type 1 Diabetes" is a look at the daily management tasks of diabetes.  I'd love for you to check it out.  :)

Chris and I are off for the weekend - nice, long holiday weekend.  No laptops.  Cell phones will remain in the car, just for an emergency.  No blogging.  No email.  No roads to race.  No schedule to adhere to.  NOTHING but the quiet bed and breakfast we've booked, some nice dinners, and each other.  Not to sound completely unromantic, but I can't frigging wait.

And in Senseless Purchase news, I now own this:

I have no good reason for owning an iCat.  However, I can plug my iPod into it and it dances, it meows when it's bored, and I'm guessing it will eat batteries faster than my pump.   It was $10 at Kohl's and I bought it and I'm a small bit ashamed, but it made me laugh.  (It's also a smidge annoying and if you grab its tail, it yowls.  My co-workers may kill me within the hour.)  I showed it to Siah last night and she puffed up like a blowfish.  It was worth the $10 just to watch that scene.

Onward to the weekend!  Have a good one, and I'll see you all on Tuesday! 

Posted by Kerri Morrone Sparling at 12:48 PM | Permalink | Comments (10) | TrackBacks (0)

Tonight on dLife, catch the all-new season premiere, featuring Chris Matthews from Hardball (who I had no clue was diabetic until this show).  Also, keep your eyes peeled for all the new shows this season, including one featuring both my maid of honor, along with the blogosphere's own fabulous Shannon, and another dLife cameo from yours truly. 

One more dLife-related thing:  If you are a type 2 diabetic, a senior citizen, and interested in joining the dLife Viewpoints columnist team, I'd love to hear from you.  Please send me an email at dLife - and thanks!

Posted by Kerri Morrone Sparling at 08:20 AM | Permalink | Comments (5) | TrackBacks (0)