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[D-Blog Week] What They Should Know. Yo.

Today's D-Blog Prompt: "Let’s borrow a topic from a #dsma chat held last September.  The tweet asked “What is one thing you would tell someone that doesn’t have diabetes about living with diabetes?”.  Let’s do a little advocating and post what we wish people knew about diabetes.  Have more than one thing you wish people knew?  Go ahead and tell us everything."

I originally wrote this post for D-Blog Day last September, but when I was trying to come up with something for today's prompt, I kept coming back to my original sentiments.  Still rings true for me today, so I'm going with it:

The long road of education.  :)

Here are my six things that I wish society knew about diabetes:

There is more than one kind of diabetes.  This isn't a knock on my type 2 and gestational diabetes friends, but definitely a knock on society's perceptions at large.  People have one musty, old perception of what diabetes looks like, and it's always someone older, heavier, and lazy.  Wouldn't they be surprised to meet our fit type 2 friends, or the 20 year old gestational diabetic?  Or a "juvenile diabetic" who isn't eight years old?  Diabetes doesn't have "a look."  This disease does not discriminate.

Diabetes affects more than just the person playing host to it. I am the one wearing and insulin pump, a continuous glucose monitor, and actually feeling these blood sugar highs and lows.  But I'm not the only one affected by diabetes.  My parents had to care for me when I was young, acting as my pancreas.  My friends have been affected by my lows and highs while we're hanging out, sometimes forced to jump the bar and accost the bartender for orange juice.  (True story.)  And my husband has taken on this disease as his own as best he can, making it such an integrated part of our life together that I don't feel alone.  Diabetes isn't just mine.  It belongs to everyone who cares about me.

Diabetes isn't just a physiological disease.  It's an emotional one, too. It's not just a question of blood sugar levels and insulin supplementation.  It's about managing the emotions that come as part of life with a chronic illness.  It's about the guilt of complications.  The pressure to control an uncontrollable disease.  The hope that tomorrow will come without incident.  I feel that the emotional aspects of diabetes need to be attended to with the same care and diligence as an A1C level.  Maybe more so, because life needs to be happy, whether it's a short life or a very long one.

Diabetes isn't easy.
  We just make it look that way sometimes.  Some of the perceptions that the general public has is that diabetes is easy to handle.  "You just wear the pump, test your blood sugar, and watch your diet and you'll be fine, right?"  Wrong.  You can do the exact same thing every day and still see varying diabetes outcomes.  It's never all figured out.  Diabetes is a daily dance of numbers and emotions and even though we, as a community, make it look easy sometimes, it sure isn't.   

No diabetes is the same. Even within a community of diabetics, there are still widely varying ways of treating diabetes and even more ways of dealing with the emotional aspects.  There's no winning combination and no "right" way to deal with this disease.  Being on a pump means you use a pump to infuse your insulin - this doesn't necessarily mean you are taking better care of yourself than the person who opts for injections.  Low-carb doesn't work for everyone, and neither do certain medications.  Your diabetes may vary (thanks, Bennet), and what works for you may not work for everyone.   It's important to remember that this disease doesn't have a predictable path, so there are plenty of "right' ways to handle it.

Just because we don't look sick doesn't mean we don't deserve a cure.  That statement sums it up for me.  We might make it look easy, but it isn't.  There's no rhyme or reason to this disease, and even with the best care and the best intentions, complications can sometimes still come calling.  And their effects are devastating.  Diabetes, of all kinds, deserves a cure.  No one asked for any of this.  We deserve better than society thinking that diabetes isn't worth their attention.  We deserve a cure.

Comments

Thank you, thank you, thank you.

Thank you for reminding me (and I'm even one of you!) of these things. I like this d-prompt thing. I wrote a post yesterday on my own d-blog which is almost this topic but not quite...

http://bodyofnumbers.com/2012/05/17/6-dumb-shit-people-love-to-tell-diabetics/

-- Kait

Amen sister

"Just because we don't look sick doesn't mean we don't deserve a cure." There is so much to love here, but this I adore. If I had claimed more than one hero for Sunday's post, you would have TOTALLY made the list.

So true. Also, it's EXPENSIVE!!! Pump supplies, prescriptions, Dr. office copays really add up! :(

thumbs up !!!

the explanation of "SUM" has me crying. when the little girl wets the bed and gives up her cuddle pillow. oh oh oh. and then the sweet little honey grows up so smashingly, with friends who assault bartenders to get juice. VICTORY!

You have summed things up nicely.

Loved it then, love it now. Thanks, Kerri. :)

You couldn't have stated it better, Kerri... we deserve a cure.

I was diagnosed with T1 diabetes only a few short weeks after taking the prescription Chantix to quit smoking. In doing something to better myself I feel my timeline has shortened. A cure would make this girl just that much happier. Blogs like this hit home to me.

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