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From Abby: Hello Hypothyroid.

With diabetes comes many "bonus conditions," like blood pressure issues or thyroid problems.  Recently, Abby visited her endocrinologist (four hours away, thanks to a complicated insurance situation) and ended up checking a completely new "yes" box.  More from Abby below ...

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I'm living four hours from my endocrinologist now. I can't get a new one here in Boston because I'm still under my mom's New York State insurance, so it has come to me uploading my pump and allowing my endo to look at the data when I need help, and getting bloodwork done at her office when I make a trip home. (Which honestly is fine with me at this point.)

I got all my yearly labs drawn a few weeks ago, without an appointment. It was a quick visit, in-and-out of the lab and on my way home with a bandaged arm and that anticipatory "What will the results BE?!" feeling.

A few days later, I called the nurses line at the office to see if my results were in yet.  For some reason I couldn't put my finger on, I'd been really stressed about my thyroid levels all week. I usually couldn't care less about them, basically just knowing in my mind it was only a matter of time. This week though, I thought about that more than my A1C. I don't have any symptoms, just have had this strange feeling.

A nurse's voice that I didn't recognize from the office (It's a really small office; I think I've met everyone there and probably babysat their kids) called me back with my results. At first, she told me that I had a letter in the mail, but she could give me the results over the phone, too, if I needed them. ("Yes, over the phone would be great," I'm thinking.  Not to be rude, but that is why I called - for the results?)

First the nurse tells me that my A1C is 6.8%. Which is awesome, because this officially marks a whole year under 7.0%. [Editor's note:  NICE JOB on the A1C, Abby!!]  Frankly, I haven't been trying my best - but I guess I've been doing well without knowing it. Sometimes being good isn't even good enough with diabetes, which is really frustrating.

Then the nurse tells me, in a very nonchalant sort of way, that my thyroid is too low and my endo wants to start me on levothyroxine.  I immediately had tears in my eyes, and then thought, "Wait, why are you crying about this ... you knew this A new diagnosis can be a very big pill to swallow.  What, you didn't expect this alt text to be so literal?could be coming at some point?" Except that "knowing it's coming" and "having it be here" are two very, very different things.  A new diagnosis of a chronic disease is not easy - hypothyroidism or not. This one fortunately won't affect my life much, is easily controlled by a daily pill, and is well understood in the medical community. I mean, thank goodness I had diabetes first and hypothyroid second, right?

Still, all that logic and reasoning can't outweigh my emotions.  And these emotions are for the birds because I am not a crier (except for after a drinks or at a really sad movie). So why the waterworks with this news? I just don't get it. Was it the ease in which the nurse told me? Maybe because my blood sugar was over 300mg/dL when she told me? Or are all the other stressors in my life piling up and this one is the icing on the diabetic cake?

Nevertheless, I am now officially adding to the "high probability" that people with type 1 will also have hypothyroidism. So can I go stuff my face with cake now?

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If you're living with a thyroid condition and you have some words of advice - or support - for Abby, please chime in.  A little support goes a very long way.  And Abby, I'm working on that cake.  ;)

Comments

Hi Abby! I have type 1 diabetes (17 years so far) and I was diagnosed with Hashimotos thyroiditis about 8 or so years ago.I said to the doc "quosimoto what"?! I take a thyroid pill everyday and I also notice going Gluten free helps.I mean,It won't make it go away but it stops some of the autoimmune inflammation. There are some wonderful ladies, Andrea Beaman and Mary Shomon.Read up about them :).I hope I helped and I'm always here to support you.You are going to be just fine. Look how strong we are!

Hi Abby! (And Kerri) I've been a Type 1 for 24 years and have taken Synthroid for 17 of those D-filled years! I just turned 30 this year. I don't feel hypothyroidism has taken much from me, beyond remembering to take the pill every morning first thing! It becomes habit pretty quick! :) I've found that the name brand works better for me... I took the generic for a while and it made me feel more fatigued, so in my opinion it's worth the extra few dollars for the name brand. Best wishes to ya gal!

I'd bank on the blood sugar... When I'm over 250 everything makes me cry!

In all seriousness, my mom and many people in her family have thyroid issues,mostly hypo. Also quite a few have rhumo arthritis. I blame them for my T1 (or their genes anyway) . I have a 2nd cousin who was dx with T1 close to the same time and age I was. I sincerely hope I won't develop the problems, and that T1 will be my lone ranger of diseases, but I also worry each time I get bloodwork done like you do.

And cake, you totally deserve it. Hey, now you can draw pancreas and thyroid cartoons...

I cried a whole bunch too, when I got the hypothyroid diagnosis. It was just that "one more thing", you know? Like diabetes wasn't bad enough, and now I have this wrong with me too? What organ wants to go next?

I'm not sure I realized how really bad I felt until I started feeling better (after starting Synthroid). I'm sorry you've got that "one more thing", but you're definitely not alone. Hugs, Abby!

Abby, I am so sorry to learn of your recent diagnosis. It is hard, very hard when new chronic health conditions are added to the already heavy list. I too have Type I and hypothyroidism. Previous research I saw reported that 30% of Type I females will be diagnosed with Hashimoto's Thyroiditis or Hypothyroidism. The hypothyroidism diagnosis did have a big effect on my mood, weight and energy level. It may not be this way for everyone. As a result, over the last 10 years i have explored all things holistic to try to feel better. Integrative medicine has helped me a lot. Soon, I will be sharing these experiences on a blog I'm starting. I am in school now and swamped with end of term tests. I am studying to go in to holistic health and share what I have learned with others. I will hopefully start writing over break. Please feel free to message me. Blessings to you. Cynthia

Learning that my (then 4 year old daughter) had another diagnosis of Hashimoto's (hypothyroid disease) to go along with her Type 1 Diabetes, was heartbreaking too. It just adds to the emotional and physical "stuff" that she will have to be carried around. It still weighs on me that my oldest daughter who was diagnosed with type 1 diabetes almost two years ago is sitting on the tracks - waiting her her case of Hashi's to come in as well. The worst is the change of hormone needs and those pesky blood draws of every six weeks when levo needs adjustment. The best is that my daughter tells me that her levo tasts good:) One small bonus!

I too was diagnosed with Hypothyroidism, to go along with my T1. You can read what I posted then at http://crebbinfamily.blogspot.com/2007/05/hypothyroidism.html. I really didn't want one more thing on my plate, but I have to say, other than taking a pill every day, it has had no affect on me. Hope you can say the same.

I've had T1 for nearly 18 years now, and I started Synthroid for my Hashimoto's in 2007. I cried buckets of tears, too - partly because of the "ANOTHER thing?!" diagnosis, and partly because with my low levels I was feeling horrible. Years later, I'm still bummed about my overachieving immune system (and keep my fingers crossed that I get to keep all my other organs at a functioning level), but I'm glad I feel so much better AND that it's just a pill. (FWIW, I agree with the above poster that the name brand works better. NO idea why.)

Feel free to email me if you want to commiserate, or have any questions!

Hi Abby - I received my hypothyroidism diagnosis right before my T2 diagnosis. The more I talk to women, the more I find a lot of women in general are dealing with thyroid issues. Having another autoimmune condition seems to up the ante even more. Wonder what's up with all that.

I've had T1 for 8 years and hypothyroid for about 2. It's not a big deal for me. My endo said people usually love their thyroid pill because it makes them feel so much better. Also most of her patients prefer the brand name instead of the generic.

Oh, Abby, I'm so sorry! I'm T1 for 15 years now. I had a freak-out-cry when my thyroid diagnosis came. Of course, I got it in the form of a letter, stating a diagnosis of "Graves disease", so I was sure I was dying! One more thing added to the list can be so overwhelming! If not for the diabetes, you'd probably have a pretty strong reaction to being told you have a chronic illness. Don't try to diminish that feeling just because you have diabetes. Feel what you're feeling and you'll bounce back in no time.

Hi Abby(and Kerri)- I have been a Type I diabetic for almost 25 years. I can't remember when the Hashimoto's Thyroditis diagnoses came, but it was probably 7 or 8 years ago. The worst part about it is the goiter I have that grows if I forget to take my meds(so don't forget!) I suggest using the brand name and not generic of the pills otherwise you have to have your blood tested more often to make sure you are getting the correct dose. I totally feel for your statement: {"Wait, why are you crying about this ... you knew this could be coming at some point?" Except that "knowing it's coming" and "having it be here" are two very, very different things.} This is exactly how I felt when I went on insulin. I had a very odd start up journey with diabetes, despite being diagnosed at age 10 I did not have to go on insulin until I was 21. I knew the day was coming, but still cried and cried as I left the endo's office. Then I cried some more last year when the Celiac diagnoses came. It seems that autoimmune conditions like to stick together so if you have one you probably have two and if you have two you might just have three. I stay positive because I always remember there are worse things to have and at least a change in my diet and some medication makes my life manageable. Good luck Abby and I hope you have a great new burst of energy after hanging out with Synthroid for a while!

I was dx'd with hypothyoidism 2 years ago when they ran blood work to find out why my "cycle" was suddenly whacky. No one ever made the connection with the ever-increasing weight gain and ginormous amounts of insulin I was beginning to have to take. Then the results came back and, yep, Hypothyroid. I started losing the weight, got some energy back, and my insulin was able to be cut back down to a "normal" amount for me. The biggest thing for me is remembering to take it well enough in advance of my breakfast.

Oh, and as far as the generic vs name brand, my endo prescribes the named brand because with the generic, you can have as much as a 20-30% difference in potency because of what lab it comes from. (which may not seem like much, but when you consider the dosage is already in micro-grams, it can make a huge difference!) They're much stricter with the name brand.

I've had Hashimoto's for more than 15 years. While it's not fun to have *another* thing to deal with (and prescription to refill), I've found thyroid disease to be a walk in the park compared to diabetes. I take that pill the minute my alarm goes off in the morning and don't think about it again all day long.

The +1 autoimmune disease that I worry about when I can't sleep at night is celiac. That's a huge lifestyle change.

My 7 year old daughter also has Hypothyroidism. She was diagnosed with it a month after Type 1. Really there is not much thought that goes into it. She just takes the pill 30 minutes before she eats breakfast in the morning. We do lab draws twice a year to make sure her levels are okay. But yes, it was a blow to have yet another diagnosis attached to her. She also has epilepsy.

Good luck!
Kelly

When I found out that my endo told me that I had huge lumps in my thyroid, I also had waterworks. And I think it's because us diabetics deal with SO much crap as it is, that one MORE thing just makes you crack. At least that's how it was for me. Like "REALLY?? WHAT ELSE?" kind of feeling. The lumps turned out to be benign and it's all good, but it's that something else, whether big or small, it's another "thing" we have to deal with. Glad to hear that you can regulate this with a pill. I wish we could regulate our D with a pill!

Hi Abby - I recently (July 2011) added Levothyroxne to the mix as well. You are in good comapny! I have more energy but I am still waiting for the weight to come off...maybe less cookies would take care of that isssue for me. :) One step at a time. Take care.

Count me in the hypothyroid crew too. I got the dx after I gained 70lbs for no apparent reason.

Hi Abby. I cried when they told me about my hypothyroid and diabetes, even though I'd known for years that both would be coming. It's just when you start adding up all the chronic conditions it gets disturbing. Sometimes I feel like I work too hard at being healthy to be falling apart like this. You can blame the tears on the sugar, or you can blame the depression that comes with being hypothyroid. Getting the thyroid levels up should help with that. It's just another pill and another blood test. I wish all my other conditions were that easy.

Hey Abby: First, sorry to hear about the new dx'd. I've been living in that world and mostly on synthroid since about the time I was 16, which is half of my lifetime ago. Switched out to generics a couple times here and there and really didn't notice any difference. But something I've found, through my own slacking in taking that daily pill, is that by missing doses it really does impact overall mood, fatigue, personality, etc. When I have slacked and then gotten back into the routine, my tiredness has gone down and my overall attitude and productivity level have really improved. Anyhow, we are fortunate it's only one pill a day. Good luck in getting started! Drop me a line if you have any questions or follow-up.

Been type I for 29 had Hashimoto's for about 10 my endo then tells me next up is my Testosterone levels will be attacked still waiting for that bomb to drop not to fun for a guy..as if battling the type 2 label is hard enough seems all I read about the thyroid is that it is a girl thing hang in no big deal
MAO in AZ

Hey Abby. Yes, as you can see from the other posts, it was an icing-on-the-cake, what-now reaction! I had it, for sure, four years ago. T1 for 28 years this month. Ditto on the non-generic Synthroid preference.

Hi Abby,
I understand random waterworks(I cry so easily- meh). And I get how adding another diagnosis feels overwhelming even if the thing itself That said, not to minimize your concerns, but hypothyroidism is like the best health issue I have hehe. So easy compared to diabetes. And yeah its sometimes annoying to try to take the levothyroxine 30-60 minutes before my first morning food (and i do NOT always do that). But other than that, piece of cake.

I had tested positive for the anti-thyroid antibodies while my TSH & T3/T4 were still normal. So it was REALLY just a matter of time for me, and my mom (who's a nurse too) could not WAIT. She kept telling my endo, "She is SOO hard to get out of bed in the morning, is she eligible for that levothyroxine yet to make her less lethargic in the morning?" Turns out I am always lethargic in the morning no matter how well controlled my TSH is. BUT, when my TSH did go up they messed up with my lab results and forgot to tell me. So for 4 months until my next appointment I was sleepy, gaining weight, and not getting any faster despite trying hard pretty hard in my first year on the cross country team.

The bright side is that maybe you will have a little more energy now? (unless yours really was completely subclinical)

Hi Abby. I'm 59, D since 16, graves for the last 20 years. I shared the feelings you describe when my jerk of a doctor excitedly told me my thyroid tests were "...abnormal!! They're ABNORMAL!" like this was the first fun result he'd encountered that day. He was shouting to me over his shoulder as he power-walked towards his office, lab coat flying, me trailing along behind. "It's simple," he said, cheerfully. "We just give you a radioactive pill that destroys your thyroid gland. I can set it up for after lunch. Good by you?" Say WHAT?? I ended up in a sobbing heap in the lobby of the medical building.
Really, you know - grieving is totally appropriate when one's organs are killed, I think. Plus anger. Screw anyone who disagrees. If I could I would hold Nuremberg trials for my Gestapo of an immune system and hang those Bad Boys high for all to see.

So I take Armour thyroid - from organic pigs. Has both T3 and T4 in it. The only stuff I feel close to good on. One thing I notice is that if I forget a dose or even take it a few hours off from normal timing, my basal rates then shift around wildly for about a week. Not sure if others find this.

Good luck with getting balanced, Abbey, and I hope your energy and optimism return soon. Cry proudly till then. It really does suck. Sorry you have to join us in this boat, at least we're together in good company.

-Linda

It sounds like this new diagnosis is the "proof" of diabetes complications. There are always possibilities--but then there is the reality. Even though this one isn't "bad" (there's a pill for it!) it is just one more sign of our lack of control even when we try so, so hard. I think maybe hypothyrodism is worse because nothing we do can help--we get it if we get it.

Stink.

But WAY TO GO with your A1C. I am so impressed. That is something that you can influence (if not control, darn pancreas!). And you are doing GREAT! Thanks for the inspiration!

Hi Abby! I can't speak from dual diagnosis standpoint. But I am the mom of an 8 year old T1 daughter and I myself am a thyroid cancer survivor...I had a total thyroidectomy back in November 2007 and have been on Synthroid eversince. It looks like there are many here with advice for you from the dual dx perspective. I agree with the others about the Synthroid vs. generic levothyroxine preference. Hope you're able to get your levels adjusted easily!

Abby - I've had T1 for 20 years now (34 yrs old), and I started Synthroid for my Hashimoto's in 2009. I gained about 18 unwanted pounds and was having sucicidal thoughts. I was in a deep depresssion and was taking antidepressants for 6 months before they decided that I had Hashimotos! Anyway, the uncontrollable crying at the SPCA commercials weaned off after a month of taking the daily pill (thank goodness). But like everyone else on here, I cried. I was angry, mad and shocked that this wasn't caught sooner. But hey - it isn't killing me and for that I am greatful. And that little 'pill' is my savior.

My thyroid is fine (so far). I have a family history of low, though, and I am getting tired of "You know you're probably going to get this - let's see if THIS is the lab work that it shows up on." Screw that, doc, maybe I'll get lucky.

And I TOTALLY understand the grieving - I cried and cried when I got put on cholesterol meds, even though I knew that was coming, even though it's only a pill. I do NOT like hearing that my body is not working well when I am working my ASS off to keep it healthy.

I'm a type 1 with Graves, taking the antithyroid meds now in the hopes of beating it back into remission. Although it stinks that we all have to deal with this added bonus(!) it's nice to hear other peoples experiences about it. If nothing else than just to know they exist! Thanks Abby for bring us all together.

Sorry to hear Abby! I was diagnosed with T1 and hypothyroidism at the same time, and if it's any help, the hypothyroidism has had about zero impact on my life. ;) Sooo different from stressing and worrying about your own insulin dosing - you take one pill a day, and the endo is able to set the dose for you. No lows, no carb counting, and no guilt! Also, it only needs to be monitored every couple of months, because dosing requirements change so slowly. Not like the minutes and hours you deal with for Ti. Hugs!

I've been type 1 diabetic since I was 3 and have had hypothyroidism since I was 4 (I think. Can't really remember back that far, lol). And yeah, hypothyroidism just requires a daily pill. But Abby, as for your feelings about the diagnosis, do what you need to do! Hypothyroidism may be well-understood in the medical community, but the grieving process differs from person to person. If you need cake, you need cake (and a bolus, but you knew that) :) If I could ship you some hugs and a cake, I would! And congrats maintaining such a great A1c!

Hi Abby! Congrats on that A1c! (And for a whole year???? W-O-W)

I too have T1 (22yrs) & Hashimoto's (2yrs-ish). I take Armour because the Synthroid did not work well for me at all. You will definitely feel better once you get regulated. I had no idea how tired I was or why I could never get those 15 pounds off my body. I also have found that staying low carb (don't throw tomatoes at me!) and near gluten free makes a huge difference as well.

I think it's difficult to deal with the fact that our bodies fail us. We already have that hanging over our heads from a diabetes standpoint and it's just a sensitive issue when other organs bail. Hang in there. I look forward to hearing how correcting your TSH, T3 & T4 makes you feel. Thanks so much for sharing this with us!

UGH!

My daughter's thyroid antibody just came back positive. No "active disease" yet, but it seems we'll be sitting on a fence now :(

Between T1 and Celiac, this would round out an autoimmune triple crown.

Hang in there, my friend. Prayers for you from AZ!

While there is little I can add to the many empathetic words posted...I would like to encourage everyone to consider getting tested for celiac. In Europe, it is routine for type 1s to get screened for celiac because the co-morbidity is so high. There is a strong scientifically supported connection between our autoimmune conditions and gluten allergies. I'm happily gluten and grain free after 22 years of T1 and 3 years of hypotyroid...hoping I'm right and the "other shoe" won't drop.

Hi Abby (& Kerri) -Feel free to cry away (my shoulder is available) & eat that cake!!

I was diagnosed with Hyperthyroidism at the age of 18 & had half removed (& I turn 40 this week)! I'm also Type 2 but that didn't show up until my 30's. While it is one more thing to deal with, you can handle it. It's not always easy, but it is manageable. YOU CAN DO YOU! If you can handle T1, you can handle this!!!

Hi Abby, My little girl (you may actually know her from CBC-she remembers you!) also has both T1 and hypothyroidism. She wants you to know... "it's o.k. Abby and not as bad as diabetes!" She also said "I remember feeling sad when my parents told me I had this too. It was ANOTHER disease but it's been over a year now and..hey, what the heck!! No big deal - we've got this!!It just proves how strong we are. It's o.k. Abby" From, Jennifer age 9

Thank you for sharing this! I have T1 for 14 yrs, thyroid antibodies but no symptoms yet, and celiac for 1 1/2 yrs. Also have something else, but currently it is undiagnosed. I am most encouraged to read of your honest reaction to the new diagnosis, AND your A1C results. Only one of my four were 6.8, so now I have a new goal to work for.

Hi, Abby!
I developed hypothyroidism when I was in my mid-20's, before I got diabetes. In one way, it's a take-a-pill-and-forget-it type of disease, because those little pills really do make you feel better. But in another way, it was a problem, because I started with an enlarged thyroid which went untreated for years. I was eventually tested for antibodies, and it WAS Hashimoto's, and I started treatment, but the goiter got large enough that it interfered with swallowing, and I had to have it removed. I didn't enjoy the surgery, and I don't like the fact that I can't sing in soprano or alto range any more. But I still have my normal speaking voice, and being able to swallow is nice. So I'm glad that they caught yours early, and with medication, your gland should not get large, and you should have no problems! Chin up, girl! :-)

Nice! So I can blame the fact that I cry ALL the time on my hypothyroidism? That’s the best news I’ve heard all week . . . year!

I agree that it’s perfectly normal to cry when another organ dies (I was dx with T1 in 1990). After working so hard to stay healthy and keep that dang A1c in check, this is the last thing you need!

My road to hypothyroidism dx was long, filled with many tears, too many tired days, WAY too many unexplainable extra pounds gained, and even more tears because of the related infertility problems. After two years of feeling miserable, I was FINALLY diagnosed with hypothyroid earlier this year and we’re playing the game of adjusting meds.

I HIGHLY recommend Mary Shomon’s book and website. I’m reading it right now and everything she says just makes sense! I really believe that you have to take what makes you feel best, so I take Armour because it’s the only thing that makes me feel AT ALL better!

Hang in there, Abby! After all, thyroid medicine is a lot easier to take than that insulin!

Hi Abby, Kerri, and everyone else. When I was younger (in my teens or so, probably about 10 years after dx) my doc told me I had Hashimoto's. I didn't understand what it meant, and still don't, but I had to have it put on my Medic Alert bracelet and do nothing more. My then-pediatric endo told me that if there were any disease in the world to have, that's what he would choose, because there's nothing to do and nothing to worry about. At some point in my 30s, my more recent endo saw my lab work (TSH? I'm not sure) came back low and put me on 25 micrograms of synthroid, once daily. Since then, I've gone up to 75 micrograms. Each time, I want to resist, thinking it means it's getting worse, when it really may mean nothing in the whole scheme of things. One pill a day and nothing more is easy to manage, right? Certainly easier than D. I forget every once in awhile, but it's not like forgetting insulin and doesn't seem like a big deal. I sure hope it's not.

One thing I learned (after several years of being on the medication) is that it should be taken on an empty stomach so it gets absorbed properly. Maybe not knowing that is why my dosage kept going up -- it never got absorbed 'cause I had it with breakfast. If there's one bit of advice to give, it would be to take it on an empty stomach, best when you wake up and at least 30 min before breakfast.

I guess it's nothing to worry about, it's just something that causes a bit more stress and disappointment. I get that. But the jubilation over your great A1C should more than overcome that!

Abby, you are fantastic!

I remember being told a few weeks after diagnosis this summer that my T1 son tested positive for the hypothyroid antibodies, and I got all GASP! WHAT?! but was told not to worry, it would be easy to deal with and might never actually unfold into anything. COULD THAT BE TRUE? After reading the comments, I think it could not be.

I also remember the same unknown telephone doctor saying the lab forgot to test for the celiac antibodies and that I should ask about it when we next have blood drawn. I dread it!

It's so much to get used to. You are a total inspiration!

I'm sorry about your thyroid.

I was diagnosed with Graves Disease 20 years ago. I was a wreck when I was diagnosed. That high heart rate caused me many an anxiety attack. I was treated with I131 and have taken levothyroxine since. When my son was diagnosed with T1D, I experienced a lot of guilt. I figured between his dad's T1D and my Graves Disease, we contributed to his autoimmune likelihood. But, guilt is a wasted emotion and you just have to live each day. Good news--now it will be easier to lose weight on your exercise program. Hang in there Abby!

Hi Abby!
I think I am one of the atypical ones, because I've been hypothyroid since I was 2 1/2 years old (my mother thinks even before then), and I've been taking a pill every day since.
I was Dx'd Type 1 just after my 19th birthday (31 now), and right before that I found out I have no intrinsic factor in my stomach, which makes me vitamin B12 deficient, so I take a shot once a month for that, too. I am a super-duper autoimmune fail. No one in my family has anything. I'm a mutant that way.

My endo once told me she was waiting for my adrenal glands to fail next. What words of encouragement! Anyway, I try not to think about it. Of all the things, the thyroid is by far the easiest and doesn't affect one millisecond of my day - ever. No worries! You will get through this.

D is much, much harder than anything your thyroid can throw at you. :)

Abby, you rock.

I'm hypo and I take two Armour doses a day. I'm not Type One, but my daughter is. I wouldn't be surprised if she showed up with Hypo.

You got this, baby.

Wow - what great comments! Hope the love is coming through. :) I have Hashimoto's, and my son has T1 ( add to the parental guilt list), and the Hashi is indeed a cake walk. Back to cake again! I can imagine the emotional impact - hope it eases a bit soon.

Hi Abby

I have been on thyroid medication since I was 19 and no one told me about the link with diabetes until after I was diagnosed with T1 when I was 31. I understand the tears though, just when you think you might have a handle on your health somthing else comes along just to let you know not to get too comfortable.

Sometimes you just want to shout enough already, I really do not want to be the one single handedly keeping my chemist in business.

But stay strong we are all with you.

Hi Abby

I have T1 and Grave's disease. I found out about both of them within a week of each other earlier this year... no easing into it! Initially I was more worried about the Grave's than the T1, and I had to take 12 tablets a day to try to get my TSH levels down. Thankfully now they're under control, 1 tablet a day and it's not a big deal to me. The symptoms were pretty nasty for awhile though. I hope you get on top of yours quickly - you'll feel a whole lot better once you do.

Hi Abby... looks like you've had a lot of response, but I figured I'd throw in my 2 cents. I was dx'd with Grave's Disease when I was 13 or so, and it took 2 rounds of radio-active iodine to knock it out. I've mostly been on synthroid (or generic) since then, but for about 5 years I took Armor Thyroid, which made me feel soooooo much better than the synthroid. Good luck getting an endo to prescribe it though. I'm back on the synthroid (had some complications while pregnant with my thyroid and my OB felt more comfortable with me on synthroid).

I'm not T1, but my daughter was dx'd when she was 12 months old... I carry a lot of guilt over that diagnosis, even though I know it's not my fault.

Hey Abby! I'm 17, dx with D at 14 months, dx with hypothyroid at 14 years, and we follow each other on twitter :) (I guess 14 is not my lucky number) I hate the complications of D and I have so sorry you have to go through this. I was always a skinny person and in eighth grade I gained a lot of weight. I wasn't overweight or anything but I gained an unusual amount of weight. I made no unhealthy diet choices so I was really upset. As you probably know, eighth grade is not great for self-esteem without an abundance of endocrine system disorders. I was diagnosed with hypothyroid less than a year later and I've been taking synthroid ever since. Now, hypothyroid isn't a big deal in the scheme of my diabetic life. I just take a pill every morning and that's it. I wish diabetes was that simple.

I burst into tears when I read all of these comments - tears of relief! I've been T1 for 30 years, dx'd when I was 3. I've been taking Levothyroxin for a few years, but honestly never really noticed a difference. I'd skip pills all the time. However, things have changed lately. I'm generally a very moderate, easy-going person. My poor husband has taken some abuse the past few weeks with my lack of patience. I KNEW I was being unreasonable, I just couldn't seem to help myself. I've been back to taking the Levo first thing in the morning every morning for the last week or so, and suddenly the old me is back. My docs have never really given me an impression that it was a very big deal, and have never stressed how important it is to make sure to take the medicine regularly. Or maybe they did and I just didn't pay attention. Now I know!

Thanks to Abby and everyone else for the posts to make me realize staying on top of the medication can really make a difference!!

Hi Abby! Your posted prompted me to respond. I was diagnosed with thyroid cancer in September and had a complete thyroidectomy in October. Prognosis is good since it was Stage 1 and a slow spreading type. The reason I share this is because it makes me feel sort of grateful to have T1 diabetes. I had a new endo and never had my thyroid checked before. Because of my diabetes, they found the cancer and it is out of there. Otherwise, who would have known when we would have found out! In a weird way, diabetes might have saved my life on the one hand even though it might shorten it on the other. It's good that diabetics usually are followed so much closer by doctors because maybe we'll catch things earlier! That's my hope! Take care!

Hi Abby. I've been t1 for about 22 years and have been on synthroid for a hypothyroid for the last 16. In addition to diabetes running on both sides of my family the hypothyroidism runs heavily on my moms. Living on Synthroid can be annoying but TAKE YOUR MEDS (that's my kind advice). I think one little pill won't be that big of deal so I've let my Rx run out for a week or two, leading to exhaustion. Keep taking your meds, first thing in the AM on an empty stomach (wait an hr before eating) and that magic little pill will do wonders!

GOOD luck sweetie!

Abby--I never commented on here... I was diagnosed with thyroid problems a couple years ago. And honestly? It was life-changing. I cried...but they were tears of sheer joy for finally figuring out that feeling bone-tired, cranky, etc. wasn't normal. For years I just thought I was lazy compared to everyone else and that I was doing something wrong. It turned out that my thyroid had been off for a long time, and my issues were from that. So, I can't really relate to your disappointment as I was sincerely thrilled with my diagnosis (as weird as that may sound. Just know that there are SO many others out there with thyroid issues. We don't consider mine diabetes-related at all since I have 10 friends with the same problems and none have diabetes. It's so common! You'll get to know what level feels the best (my tsh can't be above 1.6 or I feel yucky) and be able to take some control. Good luck!

That's really a decent result, congratulation! Just keep taking it and you should finish with a higher dosage but you are already on the normal range, can you tell us more about the benefits you noticed after taking it ?

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