30 Things About My Invisible Illness: 2011.
This week is Invisible Illness Week, and type 1 diabetes is definitely in that "invisible" category. I wanted to participate in this week's events, but a little Birdy and a little eyeball set me back a bit, productivity-wise. So I'm defaulting to my favorite blog fodder: a meme.
Back in 2009, I did the 30 Things About My Invisible Illness meme, and I'm curious to see how much has changed in the last two years. Bring out your memes!
1. The illness I live with is: type 1 diabetes
2. I was diagnosed with it in the year: 1986
3. But I had symptoms since: 1985
4. The biggest adjustment I’ve had to make is: ... this is a trick question. I don't remember the "before" diabetes moments in my life, so I've been adjusting my schedule, decisions ... life to diabetes for the last 25 years.
5. Most people assume: that I did something to cause it. Or that it's "no big deal." Or that after my pregnancy was over, my diabetes would go away. Or that I "can't eat that." Or that the insulin pump and the CGM automatically regulate my blood sugars, leaving me sitting by the pool and sipping mango margaritas all day long while my blood sugars roll between 90 - 115 mg/dL. (
6. The hardest part about mornings are: when there isn't time to make coffee. (What, it's not all diabetes!)
7. My favorite medical TV show is: Glee?
8. A gadget I couldn’t live without is: Toss up between my insulin pump, Dexcom, and Macbook. Those three things are my best inanimate friends all the livelong day.
9. The hardest part about nights are: being a little anxious that I'll have a blood sugar issue that makes the morning disappear.
10. Each day I take 1 pill & a billion vitamins. And I infuse insulin 24/7. (The meme said "no comments" here, but diabetes maintenance drugs are more than worth mentioning.)
11. Regarding alternative treatments I: believe that holistic health and and nurturing the emotional self is just as crucial as daily insulin doses. But I don't have other alternatives to insulin. It's kind of the missing link.
12. If I had to choose between an invisible illness or visible I would choose: While I am sometimes frustrated that PWD (people with diabetes) don't "look worth curing," I would much, much rather feel good and look healthy than to have tangible, outward symptoms of my medical condition. I appreciate being incognito with my diabetes as much as I can.
13. Regarding working and career: I used to just "work." Now I have a career, and a passion, and I credit that to the influence of my diabetes. Can't lie.
14. People would be surprised to know: that I don't talk about diabetes all the time to my real life friends. Actually, I hardly bring it up.
15. The hardest thing to accept about my new reality has been: that I don't remember the "old reality." I'm a little moody about that, sometimes.
16. Something I never thought I could do with my illness that I did was: have a baby. (Boo. Yeah.)
17. The commercials about my illness: are just now starting to resonate for me. Prior to the new class of commercials that speak to the type 1 community, I just couldn't get into that oatmeal guy from Cocoon.
18. Something I really miss doing since I was diagnosed is: making my own insulin.
19. It was really hard to have to give up: ... hmm. I don't think I've given anything up because of diabetes. To the contrary - I think I've worked harder and earned more (emotionally) due to this mess. :)
20. A new hobby I have taken up since my diagnosis is: caring about my health.
21. If I could have one day of feeling normal again I would: just relax. And revisit the mango margarita thing.
22. My illness has taught me: that "control" is a state of mind.
23. Want to know a secret? One thing people say that gets under my skin is: "You can't eat/do/think/be that." Hey, want to know a secret? I CAN.
24. But I love it when people: love me for me, and not because of or despite diabetes.
25. My favorite motto, scripture, quote that gets me through tough times is: Don't eat fructose snow?
26. When someone is diagnosed I’d like to tell them: that they aren't alone. And there is a very good, very full life, even after diagnosis.
27. Something that has surprised me about living with an illness is: that there are a lot of other people who are living with this illness, too.
28. The nicest thing someone did for me when I wasn’t feeling well was: not say, "What did you do?" As if I caused the whole not-feeling-well moment.
29. I’m involved with Invisible Illness Week because: if we're not involved, our disease remains invisible.
30. The fact that you read this list makes me feel: like you have an appreciation for life with diabetes, and that a small part of your brain is thinking about doing this meme, too. (DO IT!)