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September will mark 25 years for me with type 1 diabetes, but I still haven't learned that an afternoon of lazy 200+ mg/dl's that won't budge, even after multiple boluses (and one really solid rage bolus where I actually grunted "You. Frigging. Diabetes." as my fingers mashed the buttons), after repeated tests that showed climbing numbers ... wouldn't you think I'd inspect that infusion set?  Maybe just give it a peek?  See how things are doing there, on the back of my hip, where that 6 mm cannula is resting (hopefully) comfortably?

Oh, you mean I shouldn't have waited until I smelled that distinct scent?  The one that smells like a cross between bandaids and the dentist's office?  And then, when I dabbed at the gauze patch around my site and felt the dampness, I still didn't really hone in on it because I was so high that everything was on like a 20 minute delay?

Wait, you mean this isn't normal?

Yes, I should have responded to the alarms on my Dexcom but I was so spaceshot, I didn't.  Instead, I regrettably spent over three hours at about 300 mg/dl (the Dex was off, saying I was 400 mg/dl plus when I was actually 304 mg/dl). With, of course, the corresponding morning low this morning:

It's like watching my diabetes fall off a literal cliff.

And then the slight bounce after over-treating the low by about two sips of juice.  I understand the "glucocoaster," but this is frigging ridiculous.

Today is a new day.  Today is a new day.  Today is a new day.  (I need to have that tattooed on my hand.)


Maybe this is totally unrelated, but I can't help but be in awe of the beautifully shaded dex skins!

Sometimes I love the Dex, and sometimes I wish those graphs would just go away!

I feel for you, Kerri. I had the same day yesterday. 375, drop down to 345, back to 447. Two infusion sets later, I finally started coming down. It is so frustrating sometimes! I'm so glad you share your stories so we don't feel alone.

Been there done that a few to many times in the last month. I am waiting now for my new Inset infusion sets as the Inset 30's I have been using lately...just don't like me.

Hang in there all will be well!

Oh, Kerri. Sometimes diabetes + life = stink, don't they (even worse than the liquid bandaid smell). Today is a new day! And Bird is the Word. Hang in there!

Today is a new day, word. Here's to a perfectly perfect weekend.

Right there with you, Kerri. Good luck on balancing out the glucoaster, my friend. And hopefully, we'll manage to do something about the time-lapse in responding, too.

The infusion set is definitely the last thing in my mind when I am high... I often forget to check to make sure it is ok and I rarely change it. Luckily (*knock on wood*) I have had very few bad sites.

There seems to have been a lot of this going around lately! Today is a new day....great mantra! :)

I've done that before. It is amazing how you know it is the infusion set, but you sit there and try to will it to work rather than changing it. Changing my infusion set is my least favorite activity!

Hopefully you aren't feeling like crap from that high to low drop.
Yesterday I was 61 then an hour later 62. I then procceded to under bolus dinner and was 314. I'm NEVER in the 300's. This am I was back to 88.

Have a great Mother's Day!!!!!

Oh that SMELL! I hope you're feeling better soon...and that your eye is healing quickly!

On a side note, my 4 year old *non-D* child just popped in while I was reading this and proclaimed:


So crazy that she recognizes it like that.

So frustrating to deal with this kind of crap!! And just not fair when two sips of juice (or one glucose tab) can send you into the stratosphere. This disease just makes no sense at all.

I'm dreaming of a Dexcom...and hoping that my endocrinologist will agree. In the meantime, those skins are SO cute!

We've only had Charlotte's Dex for a couple of days and I'm loving it, but notsomuch the numbers it's showing us :( Her trend graph this morning was almost identical to your first pic above....totally frustrating. Seems to be lots of this lately around the DOC....going to have to check out her infusion sets and cartridges (hers weren't on the recall)...although I haven't noticed the insulin smell that usually comes with those leaks.
Btw, love that Dex skin...we've just got the gray one that came with it....might have to order her a pink one...anything to keep things a little "happier" looking :)

Hi Kerri (and Sara) - my day was like that yesterday, too! I have just switched from medtronic to ping and i didn't use the new infusion set correctly, (I figured out later). I just kept thinking that can't be it, I JUST changed it. And yes, that *distinct* scent finally tipped me off. ;
I would like to add my thanks for your post,and your blog, it was/is my first and only contact with other 'D's'. You have helped me feel so much more 'normal'. I have (in the last two months since finding your blog) joined the JDRF and I am looking forward to a Type 1 dinner Tuesday. Thanks to you and everyone here.

I've been in the same boat! Took a whopping 23 units yesterday throughout the day to correct a 250, but it was stubborn. That really should set off alarm bells, but it didn't. Wasn't until I got home and noticed that the infusion site was pink.

Now I want an orange skin.

My day was the same thing yesterday! I slowly climbed to above 400 within a 2 hour time period. I bolused and waited. Two hours later... the alarm sounded again that I was high. I bolused and waited. Repeat a third time. Finally change my infusion set this morning after a night full of alarms. (although no kink in the cannula so I'm not sure what happened!) I'm finally back holding steady around 100.

It's funny how many times I Do that too! lol like WHY ISN'T IS GOING DOWN?? Oh yeah...I'm not plugged in...oops!

Im tired after 5 years Kerri...(congrats on your health and hard work!) AND, I do the same thing! Its called denial. Even if just for the day. I just-want-to-pretend-the-sugar-will-come-down-on-its-own. ---Sigh---

I know that Bandaid smell. It is very distinct. It's amazing how insulin can be life saving on one end and potentially life threatening in another perspective (hypoglycemia). I can sympathize with that roller coaster ride! Have a wonderful Mothers Day.

The skins on Dex are awesome. Are those yours? I have never gotten Joe skins b/c he keeps Dexter in a pack. But...man...those are nice.

Dude! I'm totally in on that tattoo idea.

Glad you got back between the lines.

Ahhhh the smell of insulin in the morning... Take off of a movie line, I digress.... The beauty of it is, is that you DO get a new 24 hours tomorrow.

This has been a very tough year for me with this issue. I have been increasingly plagued with bent cannulas. And each time my BS soared, I would get sick to my stomach with a headache and fatigue. My ketones were rising dramatically. It was very frightening. I lost confidence in the pump because I would not know if the set I was about to attach would be good or not.

After dozens of calls to the Minimed help line, training with the nurse trainer, trying a pump vacation with Lantus - I have finally found somewhat relief of this issue. I now use the sure-t. Not my favorite choice - but it works. And if I bend this sucker, I do have abs of steel. hehehe

We work with the best we got. And do the best we can to stay healthy and strong.

Take Care. Christine T1-23yrs.

When my BG goes above 250-300, it's VERY hard to get it down. High BGs increase insulin resistance, and it's a bear to try to figure out how much you need. You don't want to go low, but you do need more than usual. I wish I had a good answer to this question! :-(

Frustrating, to be sure. I think insulin smells like Barbie legs.

Go ahead. You know you wanna go find one now.

Glad I found your blog. I am on the pump too. My diabetic educator told me to keep needles handy so I can inject to get those stubborn highs down especially when having problems with the infusion sets and etc. Have a blessed day.

Thanks for shiarng. What a pleasure to read!

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