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30 Things About My Invisible Illness.

It's the meme taking the chronic illness bloggers by storm ... and I wanted to cram this one in before Invisible Illness Week came to a close.  Here's my edition of 30 Things About My Invisible Illness You May Not Know.

   1. The illness I live with is: type 1 diabetes
   2. I was diagnosed with it in the year: 1986
   3. But I had symptoms since: the summer before
   4. The biggest adjustment I've had to make is: adjusting to the changing demands of a disease that doesn't sit still for even a second.
   5. Most people assume: that diabetes isn't a serious disease. They couldn't be more wrong.
   6. The hardest part about mornings are: when the start out of range.  Or with a cat on my head. 
   7. My favorite medical TV show is: I actually don't like medical TV shows.  I'd rather watch Family Guy.
   8. A gadget I couldn't live without is: my glucose meter.
   9. The hardest part about nights are: having low blood sugars in the middle of them.
  10. Each day I take 2 pills & vitamins: I take a prenatal vitamin, blood pressure medication.  And then there's that whole "insulin" thing 24/7.
  11. Regarding alternative treatments: I think that insulin is the only course of treatment that works for type 1 diabetes right now.  But I believe that an overall healthy lifestyle is important, regardless of someone's medical history.
  12. If I had to choose between an invisible illness or visible I would choose: These choices suck.  I'd rather not have any illness, thank you very much.
  13. Regarding working and career: I work.  And I have a career. And I'm finally making diabetes work for me, instead of against me, in a financial sense.
  14. People would be surprised to know: that it's not as easy as we make it look.  Sometimes it hurts in every way.
  15. The hardest thing to accept about my new reality has been: that I have no memory of the "old" reality.
  16. Something I never thought I could do with my illness that I did was: get married.  I'm not sure what put the thought in my head as a child, but the doctors scared the pants off my family and I when I was diagnosed.  They had us convinced that I might not be healthy as an adult, and that I may be "hard to love."  Pfffft.
  17. The commercials about my illness: are never about MY illness.  They are always about type 2 diabetes.
  18. Something I really miss doing since I was diagnosed is: I have no idea - um, I'm sure I liked Halloween more before I was diagnosed, in second grade. 
  19. It was really hard to have to give up: hoping for a cure.
  20. A new hobby I have taken up since my diagnosis is: ... these questions are hard because my diabetes has been in the game for almost all of my life.  I don't know what new hobbies I picked up in 1986, but you can bet that there weren't any hobbies I avoided as a result of being diabetic.
  21. If I could have one day of feeling normal again I would: do nothing.  That would be awesome, to just sit around and hang out, without worrying about a single number.
  22. My illness has taught me: to be strong.  And to be realistic.
  23. One thing people say that gets under my skin is:  "That's not a big deal. It's better than __________"  You know what?  It is way better than a lot of things.  But that doesn't make it any less hard some days.
  24. But I love it when people: really try to understand, and see me as a person, not just as a diabetic.
  25. My favorite motto, scripture, quote that gets me through tough times is: "This, too, shall pass."
  26. When someone is diagnosed I'd like to tell them: that they aren't alone.  And they'll be okay.
  27. Something that has surprised me about living with an illness is: that it's not the definition of who I am.  It's just a small part of the bigger ... problem person.  ;)
  28. The nicest thing someone did for me when I wasn't feeling well was: leave me alone. 
  29. I'm involved with Invisible Illness Week because: if we don't raise our voices, we remain invisible.
  30. The fact that you read this list makes me feel: ... like you might post your own list. 

Get involved with Invisible Illnes Week and let people know that just because you can't see it doesn't mean it isn't there.  And have a great weekend!

Comments

Sounds like your doctors channeled the Dark Lord of Glycemia (aka the D Monster)...

no. 18 made me laugh ;)

I created my own list...thanks Kerri...you are an inspiration!!!

thanks so much much Kerri.
it was a great read.

I too thought I would never marry, thanks for posting that. I thought I would not live past my twenties, so I thought I would never marry, but then in my twenties, I decided not to have children (big regret) because I did not want to pass the disease on and I would not survive childbirth, because I saw Steel Magnolias in my child bearing years and I also thought I would not live to my 30's. When I was first diagosed I was told by my doctor I was going blind, I think it was a scare tactic, and my last eye exam after 42 years of this D crapola, MD is amazed how great my eyes are but as I am now in my 50's (did I say that?) I am still waiting for the big complication and I am even more fearful. Thanks for the great post as always.

Kerri, I have been a reader and a fan for a long time. I'm a Type 2. I've had it for 15 years. #17 on your list caught my eye and I wanted to address it (don't worry, I'm not going to admonished and get angry at you).

The TV commercials and shows about our illness is incorrect all the way around. It is your disease, as well as mine. What bothers me is that those commercials depict Type 2's as overweight, big people who, if they take a shot of insulin, should help them curb their appetite and lose weight.

Our society, to this day, still hasn't "got it" about diabetes. Not all overweight people develop Type 2, and not all kids are diagnosed with Type 1. I was 18 when I was dx'ed with Type 2.

We have to continue telling, showing, and making people sit down and understand diabetes and the life of a diabetic. It feels like a futile journey, but we have to. Not just for ourselves, individually, but for each other.

I was diagnosed at age 8 and was also told horrible things by doctors, leading me to believe I would die before age 30, never get married, never have children, and basically be blind and without feet. It's hard to let go of all of that when you hear it so young. Fortunately 30 years later NONE of what they told me is true! I'm healthy. I've had a wonderful career that has allowed me to travel around the world several times. I got married 3 years ago to a wonderful man, and 3 months ago had a perfect baby girl. I hate when doctors tell me I'm lucky I have no signs of complications. I work hard at keeping this disease under control, and not because of the scare tactics used when I was younger, but because I believe I deserve to be healthy and have everything I listed above. I know you will have all of those things too - including a healthy and happy baby, because you are working hard at control too.

I stole your list and I am going to write a note on facebook and make the answers my own.
Thanks

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